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Immuno Suppressants

Celiac Ninja

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Celiac Ninja Enthusiast
Celiac Ninja
Posted

My celiac is way out of control, cross contamination is my biggest threat at all times during the day. When I wake up in the morning I have to wash my mouth and face before eating or I can have a reaction. Things are beyond my patientce but I am not willing to go on chemicals or drugs to suppress my immune system. I was wondering if there was a natural way to lower my immune system. I am about to try a vegetable and fruit juice diet for five days, meat every other day as needed. This is to see if I can heal after my last couple of swollen painful belly episodes (gluten episodes).

Is there a natural way to lower my immune system? I feel like I'm just not remembering what it is.

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pricklypear1971 Community Regular
pricklypear1971
Posted

Cigarettes.

Debate if its natural...

Actually, I think its the nicotine: Open Original Shared Link

I read a blog somewhere about a woman with multiple AI problems. An occasional cigarette improved her life tremendously.

ravenwoodglass Mentor
ravenwoodglass
Posted

Is there a way to encounter less CC? What is it that you are constantly in contact with that is getting you? IMHO it is better to get rid of CC than to mess with your immune system.

cassP Contributor
cassP
Posted

oh i would really really like to know some good answers to your question- as i FEEL UR PAIN BIG TIME... my immune system needs to settle the F down... i was REALLY looking forward to perhaps trying Low Dose Naltrexone... i dont really want to be on more drugs- but im so sick of my intestines freaking out to EVERYTHING that remotely could be mistaken for gluten, cross contamination, and also candida. i need a break!!!!!!!!!!!!!!!!! i asked my Endo about LDN and she practically laughed in my face :(

so, yes, bring on the natural answers !!!!!

i wanna say there was some kind of mushroom supplement that soothes the immune system, but ive forgotten the name and would have to hunt for the link

i know D3 soothes the immune system, but ive already gotten mine up

good luck to us all!

oh also- D Mannose is supposed to help bind and purge Gluten... i DO take that sometimes but not regularly

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    • AlwaysLearning
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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
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      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
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      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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