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Just Got The Phone Call!


BrittLoves2Run

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BrittLoves2Run Apprentice

I just got a phone call from my doctor's office stating that I am positive for Celiac. They said my numbers were abnormally high indicative of Celiac. I almost cried when I heard this. I no longer feel crazy and i'm looking forward to feeling normal and healthy again!!!!


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revenant Enthusiast

This is wonderful news! I'm so happy for you, and the next chapter of your life

Lisa Mentor

Great news!!! Your recovery is in your hands and we are here to help guide you to feeling wonderful again :D

love2travel Mentor

Great news for you!

Many of us also went through a short period of gluten withdrawal. I did - I felt ill (not terribly) and dizzy and extremely hungry for about a week then that disappeared. Just sort of warning you in case it happens to you - it may not!

Either way, you are on your way to a whole new world. Poke around this site - there are incredibly knowledgable people around who are willing to respond to any questions. :) Lots of interesting and helpful topics.

Just focus on how awesome you will feel! Looks like you are already.

BrittLoves2Run Apprentice

Thanks everyone. I'm so happy. I went out to Common Market tonight and bought a bunch of gluten-free foods and even got a gluten-free vitamin and toothpaste. It's going to be a lot of learning and researching but i'm so glad I'm pointed in the right direction. I called my mother to tell her she should consider getting tested as well.

navigator Apprentice

Thanks everyone. I'm so happy. I went out to Common Market tonight and bought a bunch of gluten-free foods and even got a gluten-free vitamin and toothpaste. It's going to be a lot of learning and researching but i'm so glad I'm pointed in the right direction. I called my mother to tell her she should consider getting tested as well.

I hope your Mum pays more attention to you than I did to my daughter! My daughter was diagnosed in March 2009 and immediately told me I should be tested. I had been very ill at the end of 2008 and my ferritin was 4. I picked up a bit but was never 'well' (just didn't realise I was ill). I then went downhill again in summer of 2009, thought I was anaemic again but tests showed I was only borderline. My daughter kept telling me that she thought I had coeliac disease and that I should ask to get tested. Don't ask me why but I was completely convinced that I wasn't coeliac and ignored her advice. To cut a long story short, I got very ill and eventually had to give my career. I went to the G.P. my daughter attends and he immediately told me that he was 90% sure that I was coeliac and following blood tests, endescopy and biopsy I got official diagnosis. If I'd listened to my daughter in the first place I would still have my career. She loves being able to say to me 'I told you so' !!

I'm now eight months down the line and have improved greatly. I still get the odd bad days but on my really good days I feel better than I have at any point in my life. Tell your Mum my story if she's reluctant to get tested.

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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