Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hidden Gluten In Drinks?


Billygoat

Recommended Posts

pokey Newbie
hi all... i was offically diagnosed monday... andi am bummed... and overwhelmed.. my doc told me to see a nutritionst... which i will.. but in the mean time... this is a lot to take in.. i didn print the lists you suggested to billygoat.. and i am even more overwhelmed.. where do i start??? help..lol... i'm trying to suck it up .. but this sux!...

:unsure:

Don't be suprised if the nutritionist is a little lost. Lots of doctors are also lost when it come to celiac disease diet. You'll find as much info on the boards as anywhere but don't always trust that either. Check yourself when in doubt of an ingriedient. Just my experience.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular
That is interesting so, I can go back to drinking my herbal teas. Like apple and cinnamon. It is nice that we have our own urban legends.

hehe :-) yep. do check the ingredients, of course, particularly on herbals, as toasted barley appears in some teas. (it's flavorful - like toasted rice in asian tea.) but many are gluten free. (celestial seasonings will list "gluten free" on the bottom of the box, even!)

Guest BERNESES

It is DEFINITELY possible to get glutened by drinks. My biggest beef is Tropicana. I got sick as a dog from drinking their lemonade and then did some research and found out that they use gluten (hidden under "natural flavors") in all but 2 of their US plants. That's when I crossed them off my shopping list FOREVER.

Celestial Seasonings will clearly label any gluten ingredients. I've had no problem with Tetley or Lipton. Sick as a dog from Yogi tea though.

Also, I now refrain from mixed drinks in bars because many of the frozen drink mixes use "natural flavors" and I got very sick from a margarita once. Sad... but if I want one I make it myself with fresh fruit and ice and know that I'm safe (and it tastes better anyway).

jnifred Explorer

tea bags, tropicana?????? that is BAD. I didn't even think to look there. I have an entire shelf devoted to tea bags. And it does make sense re: tropicana, I always get sick from drinking it, thought it was the acid. And yet I am able to suck on lemons and limes iwthout a problem. duh!! This is crazy.

I got mad the other day and ate a store bought cookie, it wasn't even good as I like home baked much better, but I was mad and obviously not rational. I am soooo paying for it now.

The wining from the family is going to increase x10 if I cut out their Tropicana, any good brands that are ok???

mookie03 Contributor
tea bags, tropicana?????? that is BAD. I didn't even think to look there. I have an entire shelf devoted to tea bags. And it does make sense re: tropicana, I always get sick from drinking it, thought it was the acid. And yet I am able to suck on lemons and limes iwthout a problem. duh!! This is crazy.

I got mad the other day and ate a store bought cookie, it wasn't even good as I like home baked much better, but I was mad and obviously not rational. I am soooo paying for it now.

The wining from the family is going to increase x10 if I cut out their Tropicana, any good brands that are ok???

Their OJ makes me a little sick too, ive never been an OJ drinker b/c of it, and like you i thought it was the acid! But it seems like most of their OJs are gluten-free b/c most dont have natural flavors-- is it the cross-contamination problem?

Guest BERNESES

I'm not sure what the exact problem is BUT this is what i found from the Delphi list after I got sick from their lemonade:

Tropicana (800.237.7799) (Open Original Shared Link) (vp=7/23/04).

Only “Pure Premium” from certain facilities can be guaranteed gluten-free. The facility number is listed after the expiration date.

Tropicana (PepsiCo) (800.237.7799) (vp=07/24/02) (www.tropicana.com)

The following Tropicana Juices are gluten-free: Ruby Red Orange; Orange Banana; Orange Pineapple; Orange Tangerine; Orange Strawberry; and all 100% juices are gluten-free (as long as Natural Flavors is not listed). For those with natural flavors you should call the company. Some are gluten-free and some aren't. Some of those listed above might contain natural flavors but these have been verified as gluten-free.

I say call 'em and give em an earful! Minute Maid and Newman's own are gluten-free. You can access the Delphi list (invaluable resource) by going to:

Open Original Shared Link

and downloading the files. i have found their lists to be very reliable. Best, Beverly

jerseyangel Proficient

Oh boy--I drink Trop. Pure Premium EVERY morning. Its my favorite. Now I wonder if when my stomach dosen't feel right during the day for no apparent reason, if thats it. What if I get a carton from the wrong facility? This never ends :( . Anyway, thanks Bev for bringing that to my attention. I did check with them early on and was told that packages with 48 as the first numbers in the code were gluten-free. That was before I learned about the dreaded cross contamination. Oy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest BERNESES

Yeah- I know. It's a BIG beef with me. I wouldn't trust them but that's just my opinion. I buy Newman's. I trust Paul :D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.