Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally Have Some Answers...now I Have Even More Questions


jcronan

Recommended Posts

jcronan Rookie

After waiting for what seemed like eternity, I finally heard back from my doctor. She said I tested positive for Celiacs (amongst other things). So while I am relieved to finally know what I am dealing with... and quite frankly happy to know it was not all just in my head, I am quite anxious to know what lies ahead. I have already started a gluten free diet (only 5 days ago) so I know I am on the right track, but I just am overwhelmed. I even had a dream about a wheat field the other night (I wish I was joking about that). Does anyone have any advice for how to deal with the anxiety that comes along with the diagnosis?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

It is overwhelming at first and some of us will go through withdrawl that will make us anxious or moody. That does pass. Do start out with mostly whole foods, fruit, veggies, fresh meats and chicken, rice and potatoes. That will help you heal and help keep accidental glutening to a minimum. It is a good idea to drop dairy also for a bit. Most of us can add it back in after we have healed. When your feeling better start with yogurt and hard cheeses and see if you tolerate them.

Read as much as you can here and ask any questions you may have. I hope you are feeling better soon.

jcronan Rookie

It is overwhelming at first and some of us will go through withdrawl that will make us anxious or moody. That does pass. Do start out with mostly whole foods, fruit, veggies, fresh meats and chicken, rice and potatoes. That will help you heal and help keep accidental glutening to a minimum. It is a good idea to drop dairy also for a bit. Most of us can add it back in after we have healed. When your feeling better start with yogurt and hard cheeses and see if you tolerate them.

Read as much as you can here and ask any questions you may have. I hope you are feeling better soon.

Thank you for the advice. I am spending my day cleaning out the pantry and then heading to the store. I will keep your suggestions in mind. I am not big on processed foods anyway... I figured out a long time ago that I had strange reactions to them. I just didn't realize exactly what the right root cause was. Thanks again for the support.

lc1333 Apprentice

Thank you for the advice. I am spending my day cleaning out the pantry and then heading to the store. I will keep your suggestions in mind. I am not big on processed foods anyway... I figured out a long time ago that I had strange reactions to them. I just didn't realize exactly what the right root cause was. Thanks again for the support.

I feel your pain, I went gluten-free about 5 days ago now, and the other night I had a dream I was running down the hallway eating a Butterfinger, trying to not get caught!!!

Bubba's Mom Enthusiast

It IS a bit overwhelming at first! I think you are off to a good start? Going through your pantry, condiments, and spices and getting rid of anything with gluten is a great idea. Then they won't be there to grab accidentally.

I think a LOT of us are anxious about gluten and trace gluten? Many of us go through a sort of withdrawl at first too? It's a big change in our lives to suddenly find out it's dangerous to us, and it's everywhere around us!

It helps us keep "on our toes" though, right?

Also, if you are low on some vitamins/minerals it can give you anxiety as a symptom. I hope your Dr. ran blood panels to check these for you? If not, request them.

If your anxiety gets worse and interferes with your ability to do the things you want to do, tell your Dr. It might be helpful to have some medication to settle it down?

There are a lot of posts here about how to get your kitchen free from gluten, so read what you find. If you have any questions..just ask! :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,846
    • Most Online (within 30 mins)
      7,748

    Fultonn
    Newest Member
    Fultonn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.