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Finally Have Some Answers...now I Have Even More Questions

jcronan

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jcronan Rookie
jcronan
Posted

After waiting for what seemed like eternity, I finally heard back from my doctor. She said I tested positive for Celiacs (amongst other things). So while I am relieved to finally know what I am dealing with... and quite frankly happy to know it was not all just in my head, I am quite anxious to know what lies ahead. I have already started a gluten free diet (only 5 days ago) so I know I am on the right track, but I just am overwhelmed. I even had a dream about a wheat field the other night (I wish I was joking about that). Does anyone have any advice for how to deal with the anxiety that comes along with the diagnosis?

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ravenwoodglass Mentor
ravenwoodglass
Posted

It is overwhelming at first and some of us will go through withdrawl that will make us anxious or moody. That does pass. Do start out with mostly whole foods, fruit, veggies, fresh meats and chicken, rice and potatoes. That will help you heal and help keep accidental glutening to a minimum. It is a good idea to drop dairy also for a bit. Most of us can add it back in after we have healed. When your feeling better start with yogurt and hard cheeses and see if you tolerate them.

Read as much as you can here and ask any questions you may have. I hope you are feeling better soon.

jcronan Rookie
jcronan
Posted
  • Author

It is overwhelming at first and some of us will go through withdrawl that will make us anxious or moody. That does pass. Do start out with mostly whole foods, fruit, veggies, fresh meats and chicken, rice and potatoes. That will help you heal and help keep accidental glutening to a minimum. It is a good idea to drop dairy also for a bit. Most of us can add it back in after we have healed. When your feeling better start with yogurt and hard cheeses and see if you tolerate them.

Read as much as you can here and ask any questions you may have. I hope you are feeling better soon.

Thank you for the advice. I am spending my day cleaning out the pantry and then heading to the store. I will keep your suggestions in mind. I am not big on processed foods anyway... I figured out a long time ago that I had strange reactions to them. I just didn't realize exactly what the right root cause was. Thanks again for the support.

lc1333 Apprentice
lc1333
Posted

Thank you for the advice. I am spending my day cleaning out the pantry and then heading to the store. I will keep your suggestions in mind. I am not big on processed foods anyway... I figured out a long time ago that I had strange reactions to them. I just didn't realize exactly what the right root cause was. Thanks again for the support.

I feel your pain, I went gluten-free about 5 days ago now, and the other night I had a dream I was running down the hallway eating a Butterfinger, trying to not get caught!!!

Bubba's Mom Enthusiast
Bubba's Mom
Posted

It IS a bit overwhelming at first! I think you are off to a good start? Going through your pantry, condiments, and spices and getting rid of anything with gluten is a great idea. Then they won't be there to grab accidentally.

I think a LOT of us are anxious about gluten and trace gluten? Many of us go through a sort of withdrawl at first too? It's a big change in our lives to suddenly find out it's dangerous to us, and it's everywhere around us!

It helps us keep "on our toes" though, right?

Also, if you are low on some vitamins/minerals it can give you anxiety as a symptom. I hope your Dr. ran blood panels to check these for you? If not, request them.

If your anxiety gets worse and interferes with your ability to do the things you want to do, tell your Dr. It might be helpful to have some medication to settle it down?

There are a lot of posts here about how to get your kitchen free from gluten, so read what you find. If you have any questions..just ask! :D

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    • trents
      Blood tests low iGA 4 years later digestive issues

      By trents · Posted

      Welcome to the forum, @Mmoc! Please include the reference ranges for the IGA and the TTG tests in your next post if you have access to them. We cannot comment much otherwise as different labs use different reference ranges for these tests and also different units of measurement. There are no universal standards as of yet so the raw test numbers are not always helpful. Having said that, if your IGA (what we usually call "total IGA") is low, the TTG-IGA score will be skewed and cannot be trusted. Other kinds of tests for celiac disease would need to be run, particularly those in the IGG family of tests. Perhaps this will be helpful:  
    • Mmoc
      Blood tests low iGA 4 years later digestive issues

      By Mmoc · Posted

      Hi there any advice welcomed. I have had 4 years of symptoms ranging from immune related anaphylactic symptom sudden onset food allergy to peppers/paprika/chilli/capsicum family derivatives. all these allergies fizzled out and following a food challenge test in hospital I reintroduced them a few months ago. Since then my digestive system is a mess. i have since noticed that 4 years ago when testing for iga allergies my iga level was .62 and my ttg was less than .1 (due to symptoms I was probably eating very plainly at that time). should I insist on being retested for celiac? I’ve since read two indicators for celiac include: sensitive to spicy foods when in flare up tooth enamel weakness and symmetrical discolouration patches on teeth which I have had since childhood on my two front teeth     thanks
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

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      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
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