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- MoniqueCham posted a topic in Related Issues & Disorders0Celiac Disease, Lymphocytic colitis and Bowel rupture
I was diagnosed with celiac disease 40 years ago and lymphocytic colitis 20 years ago along with refractory celiac disease affecting mid jejunum to mid ileum (diagnosed using a capsule endoscopy). My antibodies to tissue transglutaminase were normal on a strict gluten free diet. Both the lymphocytic colitis and the refractory celiac disease responded well... -
- Jmartes71 posted a topic in Coping with Celiac Disease0Second chance
Hello, I'm I crazy, nieve, or atomistic? I reached out to my former pcp of 25 years on the medical app today.Reading on the National Library of Medicine 75.6 physicians don't know celiac disease.To be fair he is primary and with the lack of knowledge, I did reach out because he was my Dr for 25 years.I do prefer his app than the one I currently have that... -
- trents replied to colinukcoeliac's topic in Gluten-Free Restaurants13What should I expect from a UK restaurant advertising / offering "Gluten Free" food
@cristiana, I'm thinking the intensity of our response to the same amount of gluten can vary from time to time. Our bodies are a dynamic entity.- 1
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- Scott Adams commented on Scott Adams's article in Winter 2026 Issue2
The Future of Gluten Detection: Smart Tools That Could Change Life With Celiac Disease
One of our sponsors is Nima Partners, and their tools is currently the best I know of.- 1
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By MoniqueCham · Posted
I was diagnosed with celiac disease 40 years ago and lymphocytic colitis 20 years ago along with refractory celiac disease affecting mid jejunum to mid ileum (diagnosed using a capsule endoscopy). My antibodies to tissue transglutaminase were normal on a strict gluten free diet. Both the lymphocytic colitis and the refractory celiac disease responded well to entocort. I have a number of autoimmune conditions including systemic granuloma annulaire (a skin condition) which was treated with methotrexate. I was on a low dose of methotrexate (15 mg once a week with folic acid every day when not taking methotrexate). In 5 months my sigmoid colon ruptured. Pathology reports show that I had significant necrosis of my sigmoid bowel due to no known cause and a large hole in the bowel. My surgeons felt that the methotrexate may have caused the damage and rupture to my bowel (1 in a million chance). My question is has anyone experienced similar issues with methotrexate given that the integrity of our intestines may be compromised in celiac disease? -
Hello, I'm I crazy, nieve, or atomistic? I reached out to my former pcp of 25 years on the medical app today.Reading on the National Library of Medicine 75.6 physicians don't know celiac disease.To be fair he is primary and with the lack of knowledge, I did reach out because he was my Dr for 25 years.I do prefer his app than the one I currently have that was ignite of the disability celiac circus name chaser thanks to the one that I currently have Since May 31, 2025 to present.
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@cristiana, I'm thinking the intensity of our response to the same amount of gluten can vary from time to time. Our bodies are a dynamic entity.
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By Scott Adams · Posted
I'm going to try Jersey Mike's soon--we have one nearby. Thanks for sharing! -
Hi @trents Two things can happen: 1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus for a couple of days. 2/ For a substantial glutening, and thankfully it's only happened once in recent years, I get bad chills, followed by vomiting, and my heartbeat is all over the place and I can hardly stand. It's pretty extreme. That happens within about 2 hours of eating the gluten. I might feel slightly dizzy for a couple of days after the glutening episode. Interestingly I've just been out to a cafe which hitherto has made a big thing about how their french fries are cooked in a separate fryer. I shared some with a friend and they were served with chilli sauce, jalapenos, cheddar cheese and fried onions. Definitely not health food! Anyway, I'd eaten half when I realised I'd not checked the menu to ensure that this dish is still gluten-free - and it turns out it isn't!!! They've changed the ingredients and the fried onions are now cooked with wheat. I came home expecting to feel dreadful as I had no idea how much gluten I have consumed but so far if anything I feel just little queasy. I think I'd have thrown up by now had there been a lot of gluten in the onions.
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