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Who's In Their 20's?


GlutenFreeStudent

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LRgirl Explorer

Hi,

I'm 26 and from Maryland. It has been hard adjusting to my gluten intolerance as well as other allergies. You'll find this to be a very helpful and supportive board.

Traci


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Guest zipy

Hi there! I'm 25 and was dxed about 1 month ago. I'm a grad. student at ASU and it's hard to be gluten-free. All the parties, socials, gatherings...free pizza by the Greek rush ....it's not much fun to be on the outside of all the "fun" and normal stuff. I was thinking about seeing if there is gluten-free student support group on campus, or maybe looking in to starting one? I mean, what do students stuck in the dorms eat when they buy a meal plan? Hang in there...I'm making all my own foods from scratch and it is a pain and does take a lot of time...but they taste good! I chewed my husband out the other day for eating my home-made gluten-free granola bars when we have a pantry full of the store bought ones...he said he liked mine better! Lol!

happygirl Collaborator

It's nice to know that there are others out there that are young and living gluten free (or trying the best we can!). I've never met anyone with celiac disease so it makes me feel better to know that there are others like me :)

VegasCeliacBuckeye Collaborator

I just turned 30 a few months ago (ok, 7 seven months ago).

I have been diagnosed since 1997.

The first couple of years were difficult, but they got easier.

You should always be reading about celiac disease and always be reading about food. I have plenty of cookbooks and food-educational sources at home. The more knowledge the better.

This site is great, better than any Doctor I have ever seen. Welcome!

Ken Guzzardo Newbie

Hey everyone, my name is Ken and I'm 24 years old. I was diagnosed in October, and had been getting sick for about 5 years previously. I'm new to all this posting stuff, but I wanted to hear from more people my age that have this disease. GFSTUDENT, if you allow your body some time to heal; there's a good chance that you will be able to tolerate more foods in the future. Eating a very restrictive diet for a limited time is a small price to pay if it buys you years of health in the future. As someone else posted (I forget who), dealing with eating out with friends is a difficult situation for me. My friends will laugh when I bring my cooler of food on the golf course, as they're all toating their coolers of beer, but oh well. A quick note to everyone.. I recently returned from Disney World, which was the first vacation I have taken since being on the diet, and I would definitely recommend it to anyone. As long as you make all the reservations with advance notice and alert them to your restrictions, they were more than accomodating. Each head chef came over to talk to me, which made the trip a lot less stressful for me (and therefore my girlfriend). I'm living outside of Philly, so anyone in the area email me or post back... i haven't met anyone aside from 50 year olds with this, so it will be nice to talk to someone more my age.

emeraldskies Rookie

I'm 27 and was diagnosed with celiac disease slightly over a year ago, but I've had signs of it since infancy.

I'm in my twenties, too. I think people our age are more open to the idea of food causing illness, compared to my grandparents' generation. I think it's because there's more awareness now that not everything can be solved with a "suck it up, get over it, and move on" --type attitude. You know, the mentality that says, "if I don't see gushing blood, you're just fine." Has anyone else noticed this? In my experience, when I tell someone 30 years older than me what celiac disease is, I'm much more likely to get a skeptical reaction than if I tell someone my own age.

<{POST_SNAPBACK}>

Yes, I've had a similar reaction even though I had most of the same health issues (and more) as the middle aged people I'd encounter. I was also told, "You're young; you'll bounce back from anything" repeatedly pre-diagnosis. I still haven't bounced back.

Lauren M Explorer
I'm living outside of Philly, so anyone in the area email me or post back

<{POST_SNAPBACK}>

Hey Ken - I'm in grad school at Drexel!

Do you ever visit Mr. Ritts in Philly?

- Lauren


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Ken Guzzardo Newbie
Hey Ken - I'm in grad school at Drexel!

Do you ever visit Mr. Ritts in Philly?

- Lauren

<{POST_SNAPBACK}>

Hey Lauren - I've been to Mr. Ritts a couple of times. Their jewish apple cake is ridiculously good. what are you going to school for? i graduated from jefferson last year.

ken

Lauren M Explorer

Ken,

I'm getting my masters in Publication Management. I have my bachelors in Rhetoric & Communications. For one of my grad classes last year, I "created" a magazine entirely about Celiac disease and the gluten-free diet :P

I think EVERYTHING at Mr. Ritts is ridiculously good! I'll have to try the apple cake next time. I got my birthday cake from them last year (my only request was that it had to have chocolate and it had to have peanut butter) and they came up with something that was to die for :D

It's cool to find out about others my age with celiac disease! And you're all so nice!

- Lauren

frenchiemama Collaborator

I'm in my (late) 20's as well, but I have to say that I haven't had too much trouble with people regarding celiac disease overall. My husband's family have really been the only ones to have a strange reaction ("can't she just take some benadryl?").

jkmunchkin Rising Star

Welcome! I'm 27 (will be 28 in just over a week). I just found out a couple months ago that I have celiacs, but have most likely had it for nearly 10 years. Atleast now I know why I was always sick.

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    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
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    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
    • Jmartes71
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