Confused

[xraylady65]

I was just diagnosed with celiac last week so this is all totally new to me....

going through my cupboards witht hte list of ingrediaents to avoid given to me by my dr.... list says modified food starch and modified starch, jello box says modified corn starch.....

also avoid list says malt and jello box says maltodextrin.....

but these forums says jello is fine....

can someone please explain

thank you....

you may also contact me on yahoo messenger as xraylady65 i need all the help i can get... just let me know you are from here...

[kareng]

First thing you should know is that most doctors know nothing about diet , gluten-free or otherwise. It's not in the training. Giving you an old, outdated pamphlet it the extent of most's knowledge.

We have a list of safe ingredients, let me get the link, then I'll be back.

[kareng]

I'm back

At the top of some of these forum topics is a link to info. Look at the top of the posts . See the Frequently asked questions? https://www.celiac.com/forums/forum/5-celiac-disease-coping-with/

https://www.celiac.com/articles/181/1/Safe-Gluten-Free-Food-List-Safe-Ingredients/Page1.html

I'm assuming you're in the US. Canada is similar but a few products are made differently.

The " malt" to worry about is barley malt. Sometimes it just says malt. Maltodextrin isn't made from barley ( I think it's usually corn? You could look it up).

In the Us, wheat must be labelled in food. Modified starches are almost never wheat, but if they were, they would put the word on there like mod. Wheat starch. I don't think they can make it out of barley. Rye is just in obvious things like rye bread.

There are companies that have said that they will clearly label any gluten, not just the required wheat. Kraft and Con- Agra are 2 I remember. Jello is gluten-free. Mix a pack of green jello with Sprite or 7 Up. Yum! ( sodas are gluten-free. The only one I have ever seen made with barley malt for sweetener was at a Civil War re- enactment years ago. Some " soldier-made" root beer)

[Roda]

I eat Jello brand all the time. It is made by Kraft. Kraft is one of the good companies that will clearly disclose gluten on their lables.

After I was fist diagnosed I went and consulted with a dietician. For me it was a waste of time. I knew just as much as her if not more. She gave me some pamplets that were outdated. I pointed out to her that there were mistakes on them.

[Googles]

Roda-

I had to do the same thing with the dietician I saw. Her list of safe foods was out of date. It just made me cry because I felt so alone, overwhelmed, and confused. I had really been hoping that the dietician would make things clearer.

[xraylady65]

thank you everyone.... its really hard for me to deal with right now as I had lapband 3 years ago.. so not only do my foods have to lapband friendly but now also gluten free.... adn so many of my recipes I use calls for sugar free jello I was really worried....

[psawyer]

There are a lot of out-of-date lists still circulating. Many things that were once considered possible gluten sources no longer are. This is partly because of improved understanding of certain ingredients (e.g., vinegar), but also because wheat must now be declared explicitly. In practical terms, we must worry about hidden barley--and it is very seldom hidden. Barley malt is expensive, so it is declared as "malt," or "malt flavor."

Kraft, General Mills, ConAgra and Unilever, among others, have clear gluten disclosure policies. If gluten is present in any of their products, the name of the gluten grain will appear in the ingredients list.