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Took Gluten Out And Feeling No Pain

addis001

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addis001 Apprentice
addis001
Posted

So my liver is normal

My poop is normal

My colonoscopy was normal, camera down the throat was normal

The GI calls it IBS... Yeah right...

The pain is only on my right side under my right rib.. My biggest 3 concerns is gluten sensitivity/allergy, a stone in bile duct (no gallbladder), and Sphincter of Oddi Dysfunction(happens when you've had gallbladder removed).

My Grandmother has Celiac. And my aunts and cousins on that side have horrible food allergies.. My brother is allergic to shellfish of all things..

I did Gluten free for about a month now.. and the pain is gone.. I have it once in awhile when I am not careful, because I'm not totally gluten free, just avoiding anything potentially gluten. Basically eating Chicken, rice, rice cakes, fruits, vegetables were just added, V-8 juice, and a few other things. But I have cheated once or twice and felt the pain return. So I hope its not in my head and this might solve my mystery pain, diarrhea, nausea etc...

I see my new GI next Monday.. he is amazing and a wonderful listener.. So I'm hopefully going to get the help i need soon..

Do you think I need to get recommended an allergist? Or stick with GI more?

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cathlaur Newbie
cathlaur
Posted

WOW we could be twins. I am shocked. My Dr had me tested for Celiac and everything came back no. I still had pain on the right side under the rib just like you. She said she thinks it is still Gluten. I have been Gluten free for a month AND OMG I feel awesome. The pain is gone for the most part. I cannot believe it. Who would have thought. So I guess I have a Gluten Intolerance. SO this is how I am eating. I do not find it that hard probably because I do not have to worry about cross contamination.

What a pleasure to feel better. I was so skeptical that this is what it was!

So I am happy to know I can control the pain that was taking over me every single day.

Good luck

Katie

So my liver is normal

My poop is normal

My colonoscopy was normal, camera down the throat was normal

The GI calls it IBS... Yeah right...

The pain is only on my right side under my right rib.. My biggest 3 concerns is gluten sensitivity/allergy, a stone in bile duct (no gallbladder), and Sphincter of Oddi Dysfunction(happens when you've had gallbladder removed).

My Grandmother has Celiac. And my aunts and cousins on that side have horrible food allergies.. My brother is allergic to shellfish of all things..

I did Gluten free for about a month now.. and the pain is gone.. I have it once in awhile when I am not careful, because I'm not totally gluten free, just avoiding anything potentially gluten. Basically eating Chicken, rice, rice cakes, fruits, vegetables were just added, V-8 juice, and a few other things. But I have cheated once or twice and felt the pain return. So I hope its not in my head and this might solve my mystery pain, diarrhea, nausea etc...

I see my new GI next Monday.. he is amazing and a wonderful listener.. So I'm hopefully going to get the help i need soon..

Do you think I need to get recommended an allergist? Or stick with GI more?

Roda Rising Star
Roda
Posted

Did your doctor even test you for celiac with blood work? There is also a good chance if they were not looking for celiac at the time you had your upper scope that the doctor didn't biopsy for it. Or if they did biopsy, then not enough samples were taken. For some reason doctors only like to take a couple and you need a minimum of 8-11 taken just in the upper part of the small bowel alone not counting the samples they take from the stomach and esophagus. Request a copy of all your labs and your report from your scopes. You might just be suprised by what you find or don't find.

If you want to persue more testing you need to be aware that being gluten free and even gluten light can skew the tests. Or if your done with testing continue gluten free. It sounds like it has helped already.

addis001 Apprentice
addis001
Posted
  • Author

Yes being gluten free has helped my energy level, and pain..

Which is funny today and felt my back right rib, and felt a protrusion.. Definitely going to ask GI on Monday's appt.. My biggest fear is that it is a cyst of some kind..

My new GI, I'm going to ask for blood test, a new biopsy test, and a CT scan.. But after going gluten free, and being pain free, I really don't want to go back to gluten and be in pain just so they can test for it.. Its the worst pain ever!

  • 3 weeks later...
loreece Newbie
loreece
Posted

Hi everyone. I'm a new member here. I've been doing a lot of research online because so far, nothing has been found to be causing my right side pain. My pain is located below my right rib cage on the side, the back, and the front. I've had ultrasounds (abdominal and pelvic), a CT scan to check for kidney stones, and numerous blood work that all showed normal. I'm now waiting on a referral to see a GI doctor and possibly getting a colonoscopy and an endoscopy. The pain is more toward the surface of the skin and it's sharp and pinchy. It sometimes moves around and can feel it in the top of my stomach or left side. But those pains subside but the right side pain stick around. It's been over a month now and I am sick of feeling this pain daily. After reading many posts on this site, I am now wondering if I need to start a gluten free diet? Any insight and/or suggestions? Thank you so much!

addis001 Apprentice
addis001
Posted
  • Author

I would try it... I was soooo tired of the pain all the time.. Not knowing how long the episode would last.. I was desperate to try anything...

Now after 6 months of TTC, I am pregnant after just one month on the gluten-free diet.. how crazy is that!!!! With my first we were pregnant on first try.. so taking this long was a surprise to both of us.. but just one month on the gluten-free diet, and we;re pregnant.. I know for sure its celiac..

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
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      IBS-D vs Celiac

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    • SilkieFairy
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      By SilkieFairy · Posted

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