Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Or Ibs


scottyg354

Recommended Posts

scottyg354 Enthusiast

Ok guys, this is going to be a little straight forward and gross but I am going to post anyways. I can't seem to get an answer anywhere and I know you guys are always great and helpful.First off I want to start by saying I am hypothyroid. I have recently been feeling decent compared to how I have been. Maybe because I started back up on an AD until all this crap is over. Fatigue hasn't been bad recently, but my stomach problems are still consistent. I have always been under the suspicion I have underlying Celiac. I had the whole blood panel done and the only thing that was mildly elevated was my Giladin/Gluten IgG. Anyways, some of my symptoms are Upper Left Abdominal Pain, Burning Nausea in stomach, constipation (with occasional diarrhea), stool come out tan to very light tan almost skin tone (the gross part lol) I'm not sure if that is whats considered clay color or not, very rank flatulence, I also have white spots on my front teeth. Does this sound like Celiac or something else, I had a colonoscopy and everything there was good except for one polyp. I am feeling decent, except for these digestive issues, and an IBS diagnosis is the final one I am will to take.

When I initially had the panel done I was pretty much on a gluten free diet for about a week or two. I wasn't being too careful about cross contamination or anything, but I wasn't eating any gluten containing foods, which I now understand can screw up the panel results. Anyways, I brought this up to the doc and he wants to wait and see if things clear up after my thyroid is totally adjusted. He said he would like to try the Gluten Free Diet if things persist. I have been back on gluten for a while now and was wondering if you guys think it would be worth it for me to ask for another panel before going gluten free again?

One other thing. I have been having foamy urine lately. No protein in my urine, BUN and Creatinine are perfect. Only thing that was elevated besides my Thyroid was my ALT and Blood Protein, ALT elevated by 20, I think it was at 92 and my blood protein by .8 it was at 9. Any of this sound familiar?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



scottyg354 Enthusiast

I could really use some ideas here guys? I'm really at my wits end.

adab8ca Enthusiast

I cannot imagine going gluten-free for a week is going to screw up the test results. That being said, did you feel better not eating gluten? Get the panel re-done (and note that many people here get negatives but still get better eating the gluten-free diet, either false negatives or a non celiac gluten intolerance). Regardless of the result, I would give gluten-free a really good try. The gliadin antibodies do indicate some intolerance to wheat, although I believe the test is not THAT specific.

My ALT was also raised and I believe this is a liver enzyme that can increase in Celiacs (but of course, can probably increase with a ton of other things).

Good Luck!

Ada

researchmomma Contributor

I agree with Ada. I would eat gluten and get tested. Good luck.

cahill Collaborator

You are hypo but have you been tested for Hashimoto's??

Do you need a "official" celiac diagnoses??

scottyg354 Enthusiast

You are hypo but have you been tested for Hashimoto's??

Do you need a "official" celiac diagnoses??

Haven't been tested for Hashi's doc said he is pretty sure thats what it is as I'm not converting T4 well. Anyhow if I said a week I apologize I was off for about 2 or 3 weeks. I would just like to get a diagnosis either way for peace of mind. And I'm not going to lie, I do enjoy a good craft beer and if I find out its not wheat then I won't have to worry about it, but I don't want to be doing damage to my body.

cahill Collaborator

Haven't been tested for Hashi's doc said he is pretty sure thats what it is as I'm not converting T4 well. Anyhow if I said a week I apologize I was off for about 2 or 3 weeks. I would just like to get a diagnosis either way for peace of mind. And I'm not going to lie, I do enjoy a good craft beer and if I find out its not wheat then I won't have to worry about it, but I don't want to be doing damage to my body.

Being off gluten for two to three weeks will effect your blood test.

If your want to be tested again stay on gluten for at least three months before retesting.

Has your doc mentioned doing an endoscopy ?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



scottyg354 Enthusiast

Being off gluten for two to three weeks will effect your blood test.

If your want to be tested again stay on gluten for at least three months before retesting.

Has your doc mentioned doing an endoscopy ?

No note yet. He is really pushing for me to try the diet and see results which I will probably end up doing. But I have been back on Gluten for a while. The thing that got me thinking was a few months ago I went low carb. I felt great physically for the couple weeks I was on it, but I felt that I needed the carbs for energy,the minute I added carbs back in all this crap started again. I figured I would stay on the carbs for a while and push to get another test. I do understand that people with thyroid disease also don't do well with gluten, so maybe it would be beneficial if I do the diet regardless of diagnosis.

cahill Collaborator

No note yet. He is really pushing for me to try the diet and see results which I will probably end up doing. But I have been back on Gluten for a while. The thing that got me thinking was a few months ago I went low carb. I felt great physically for the couple weeks I was on it, but I felt that I needed the carbs for energy,the minute I added carbs back in all this crap started again. I figured I would stay on the carbs for a while and push to get another test. I do understand that people with thyroid disease also don't do well with gluten, so maybe it would be beneficial if I do the diet regardless of diagnosis.

There are plenty of gluten free carbs.

I do better on a mod to high carb diet.I find I have much more energy then when I am low carb.

And yes,since IBS,Hashimoto's and of course celiac all respond to a gluten free diet,it would be beneficial to do the diet regardless of diagnosis

scottyg354 Enthusiast

I appreciate your responses. Hopefully I figure something out soon. Had a colonoscopy so I am assuming that could rule out chrons and UC.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,713
    • Most Online (within 30 mins)
      7,748

    Kgb
    Newest Member
    Kgb
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      @Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos.  I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, it did still end up fairly sweet.  Anyway, I think I've almost got this drink order down!
    • Wends
      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
    • deanna1ynne
      She has been dairy free for six years, so she’d already been dairy free for two years at her last testing and was dairy free for the entire gluten challenge this year as well (that had positive results). However, now that we’re doing another biopsy in six weeks, we decided to do everything we can to try to “see” the effects, so we decided this past week to add back in dairy temporarily for breakfast (milk and cereal combo like you said).
    • Gigi2025
      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.