Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Or Ibs

scottyg354

Recommended Posts

scottyg354 Enthusiast
scottyg354
Posted

Ok guys, this is going to be a little straight forward and gross but I am going to post anyways. I can't seem to get an answer anywhere and I know you guys are always great and helpful.First off I want to start by saying I am hypothyroid. I have recently been feeling decent compared to how I have been. Maybe because I started back up on an AD until all this crap is over. Fatigue hasn't been bad recently, but my stomach problems are still consistent. I have always been under the suspicion I have underlying Celiac. I had the whole blood panel done and the only thing that was mildly elevated was my Giladin/Gluten IgG. Anyways, some of my symptoms are Upper Left Abdominal Pain, Burning Nausea in stomach, constipation (with occasional diarrhea), stool come out tan to very light tan almost skin tone (the gross part lol) I'm not sure if that is whats considered clay color or not, very rank flatulence, I also have white spots on my front teeth. Does this sound like Celiac or something else, I had a colonoscopy and everything there was good except for one polyp. I am feeling decent, except for these digestive issues, and an IBS diagnosis is the final one I am will to take.

When I initially had the panel done I was pretty much on a gluten free diet for about a week or two. I wasn't being too careful about cross contamination or anything, but I wasn't eating any gluten containing foods, which I now understand can screw up the panel results. Anyways, I brought this up to the doc and he wants to wait and see if things clear up after my thyroid is totally adjusted. He said he would like to try the Gluten Free Diet if things persist. I have been back on gluten for a while now and was wondering if you guys think it would be worth it for me to ask for another panel before going gluten free again?

One other thing. I have been having foamy urine lately. No protein in my urine, BUN and Creatinine are perfect. Only thing that was elevated besides my Thyroid was my ALT and Blood Protein, ALT elevated by 20, I think it was at 92 and my blood protein by .8 it was at 9. Any of this sound familiar?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


scottyg354 Enthusiast
scottyg354
Posted
  • Author

I could really use some ideas here guys? I'm really at my wits end.

adab8ca Enthusiast
adab8ca
Posted

I cannot imagine going gluten-free for a week is going to screw up the test results. That being said, did you feel better not eating gluten? Get the panel re-done (and note that many people here get negatives but still get better eating the gluten-free diet, either false negatives or a non celiac gluten intolerance). Regardless of the result, I would give gluten-free a really good try. The gliadin antibodies do indicate some intolerance to wheat, although I believe the test is not THAT specific.

My ALT was also raised and I believe this is a liver enzyme that can increase in Celiacs (but of course, can probably increase with a ton of other things).

Good Luck!

Ada

researchmomma Contributor
researchmomma
Posted

I agree with Ada. I would eat gluten and get tested. Good luck.

cahill Collaborator
cahill
Posted

You are hypo but have you been tested for Hashimoto's??

Do you need a "official" celiac diagnoses??

scottyg354 Enthusiast
scottyg354
Posted
  • Author

You are hypo but have you been tested for Hashimoto's??

Do you need a "official" celiac diagnoses??

Haven't been tested for Hashi's doc said he is pretty sure thats what it is as I'm not converting T4 well. Anyhow if I said a week I apologize I was off for about 2 or 3 weeks. I would just like to get a diagnosis either way for peace of mind. And I'm not going to lie, I do enjoy a good craft beer and if I find out its not wheat then I won't have to worry about it, but I don't want to be doing damage to my body.

cahill Collaborator
cahill
Posted

Haven't been tested for Hashi's doc said he is pretty sure thats what it is as I'm not converting T4 well. Anyhow if I said a week I apologize I was off for about 2 or 3 weeks. I would just like to get a diagnosis either way for peace of mind. And I'm not going to lie, I do enjoy a good craft beer and if I find out its not wheat then I won't have to worry about it, but I don't want to be doing damage to my body.

Being off gluten for two to three weeks will effect your blood test.

If your want to be tested again stay on gluten for at least three months before retesting.

Has your doc mentioned doing an endoscopy ?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


scottyg354 Enthusiast
scottyg354
Posted
  • Author

Being off gluten for two to three weeks will effect your blood test.

If your want to be tested again stay on gluten for at least three months before retesting.

Has your doc mentioned doing an endoscopy ?

No note yet. He is really pushing for me to try the diet and see results which I will probably end up doing. But I have been back on Gluten for a while. The thing that got me thinking was a few months ago I went low carb. I felt great physically for the couple weeks I was on it, but I felt that I needed the carbs for energy,the minute I added carbs back in all this crap started again. I figured I would stay on the carbs for a while and push to get another test. I do understand that people with thyroid disease also don't do well with gluten, so maybe it would be beneficial if I do the diet regardless of diagnosis.

cahill Collaborator
cahill
Posted

No note yet. He is really pushing for me to try the diet and see results which I will probably end up doing. But I have been back on Gluten for a while. The thing that got me thinking was a few months ago I went low carb. I felt great physically for the couple weeks I was on it, but I felt that I needed the carbs for energy,the minute I added carbs back in all this crap started again. I figured I would stay on the carbs for a while and push to get another test. I do understand that people with thyroid disease also don't do well with gluten, so maybe it would be beneficial if I do the diet regardless of diagnosis.

There are plenty of gluten free carbs.

I do better on a mod to high carb diet.I find I have much more energy then when I am low carb.

And yes,since IBS,Hashimoto's and of course celiac all respond to a gluten free diet,it would be beneficial to do the diet regardless of diagnosis

scottyg354 Enthusiast
scottyg354
Posted
  • Author

I appreciate your responses. Hopefully I figure something out soon. Had a colonoscopy so I am assuming that could rule out chrons and UC.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies...
    2. Scott Adams
      - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted...
    3. Wheatwacked
      - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

      Have you had your 25(OH)D vitamin D blood level checked? Vitamin D deficiency occurs in 40 - 60% of western societies. It is even more common in Celiac Disease because of malabsorption syndrome. Appropriate intake of vitamin D or skin production from sun, increases the absorbtion rate of Calcium.and phosphorus, two minerals crucial to...
    4. Wheatwacked
      - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Some backup to my statement about gluten and milk. Some background. When my son was born in 1976 he was colicky from the beginning. When he transitioned to formula it got really bad. That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease...
    5. trents
      - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,387
    • Most Online (within 30 mins)
      7,748
    LizzieE
    Newest Member
    LizzieE
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      Shingles - Could It Be Related to Gluten/ Celiac

      By trents · Posted

      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.