Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac In Children


MumOf2

Recommended Posts

MumOf2 Newbie

Hi,

I am under the suspicion my daughter might have celiac (or some other type of gut issue) I have a pediatrician appointment in 5 weeks time, but thought that hoping on here might help me a little in the mean time.

My almost 4 year old daughter has suffered from gut issues with an intollerance to cows milk noticed at 12months after I finished breastfeeding. The symptoms i noticed were irritability and consipation. once I put her onto goats milk, the irritability and sever constipation improved. Also for the first 12months she suffered a lot of colds (Stuffy, runny nose)while I breastfed her (I drank a lot of milk at the time).

By her growth charts, she was on the 50th percentile from birth until approx 6 months (when solids were starting to be introduced) and from then, she has slowly from 6 months of age to when she was around 2 - 3 years, dropped below the 3rd percentile for both height and weight. at 2 years she weighted 10 kilograms (approx 22 pounds)and 80cm (i think this is about 34 inches?) at 3 she weight around 11 kg (24pounds) and 89cm (35 inches?)

SHe gets a lot of headaches and still sufferes from constipation occassionally. SOmetimes her stools do float in the toilet and they look hard. She has had the blood tests last year for Celiac and came back fine so i had left the situation until the last few months she has been vomitting out of the blue, and no one else is sick. OFten complains of a headache before the vommitting. She still has a bloated looking stomach, and I thougth that by around this age, that might have gone down? (thinking it was a baby thing?)

There was also a period of time she was waking up in the night with sore legs/knees the were making her cry.

I had been told by the doctor if she has gone 2 days without a bowel movement, to give her some orange juice (this does help) I have been very strict with no cows milk in her diet since a large amount of icecream gave her diarreah.

Any help with this situation would be appreciated. NOt sure if i am on the wrong track of thought here, but just looking at some alternatives until the pediatrician appointment .

Thanks,

MumOf2


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

To get to the bottom of things, you have to keep the diet "normal". Do not remove gluten until testing is complete.

What you can do until the appointment is keep a food journal. Maybe the vomitting is not that sporatic, you just haven't found the delayed food reaction? You have to realize some reactions are 12 days long. Keep track of all ingredients, food amounts may be helpful, take note of aversion foods, mood check/symptoms, BMs and consistancy report, air allergen count record would be thorough, and brief description of outings and activities.

researchmomma Contributor

Hi,

I am under the suspicion my daughter might have celiac (or some other type of gut issue) I have a pediatrician appointment in 5 weeks time, but thought that hoping on here might help me a little in the mean time.

My almost 4 year old daughter has suffered from gut issues with an intollerance to cows milk noticed at 12months after I finished breastfeeding. The symptoms i noticed were irritability and consipation. once I put her onto goats milk, the irritability and sever constipation improved. Also for the first 12months she suffered a lot of colds (Stuffy, runny nose)while I breastfed her (I drank a lot of milk at the time).

By her growth charts, she was on the 50th percentile from birth until approx 6 months (when solids were starting to be introduced) and from then, she has slowly from 6 months of age to when she was around 2 - 3 years, dropped below the 3rd percentile for both height and weight. at 2 years she weighted 10 kilograms (approx 22 pounds)and 80cm (i think this is about 34 inches?) at 3 she weight around 11 kg (24pounds) and 89cm (35 inches?)

SHe gets a lot of headaches and still sufferes from constipation occassionally. SOmetimes her stools do float in the toilet and they look hard. She has had the blood tests last year for Celiac and came back fine so i had left the situation until the last few months she has been vomitting out of the blue, and no one else is sick. OFten complains of a headache before the vommitting. She still has a bloated looking stomach, and I thougth that by around this age, that might have gone down? (thinking it was a baby thing?)

There was also a period of time she was waking up in the night with sore legs/knees the were making her cry.

I had been told by the doctor if she has gone 2 days without a bowel movement, to give her some orange juice (this does help) I have been very strict with no cows milk in her diet since a large amount of icecream gave her diarreah.

Any help with this situation would be appreciated. NOt sure if i am on the wrong track of thought here, but just looking at some alternatives until the pediatrician appointment .

Thanks,

MumOf2

Hi MumOf2, hang in there. Just know that many times the blood tests come out negative in children. My neighbor's 18 month was negative but his biopsy was very positive. As the other poster stated, keep her on gluten diet.

Funny, I could have written your post regarding the breastfeeding to milk. It caused constipation in my daughter and horrible moods. She had colds and even pneumonia a few times before 2. She is constipation free now after 2 months gluten-free.

You said you were seeing a pediatrician in 5 weeks. Is this person a GI? Really push for a endoscopy and biopsy regardless of the blood work.

Welcome to the Boards. It is a great resource.

MumOf2 Newbie

To get to the bottom of things, you have to keep the diet "normal". Do not remove gluten until testing is complete.

What you can do until the appointment is keep a food journal. Maybe the vomitting is not that sporatic, you just haven't found the delayed food reaction? You have to realize some reactions are 12 days long. Keep track of all ingredients, food amounts may be helpful, take note of aversion foods, mood check/symptoms, BMs and consistancy report, air allergen count record would be thorough, and brief description of outings and activities.

THanks for the advice, I will try and keep a food journal from now until the appointment! I didn't think about his before.

MumOf2 Newbie

Hi MumOf2, hang in there. Just know that many times the blood tests come out negative in children. My neighbor's 18 month was negative but his biopsy was very positive. As the other poster stated, keep her on gluten diet.

Funny, I could have written your post regarding the breastfeeding to milk. It caused constipation in my daughter and horrible moods. She had colds and even pneumonia a few times before 2. She is constipation free now after 2 months gluten-free.

You said you were seeing a pediatrician in 5 weeks. Is this person a GI? Really push for a endoscopy and biopsy regardless of the blood work.

Welcome to the Boards. It is a great resource.

Thanks for this, the pediatrician is one that comes highly recommended and is very hard to get into. I will look at the journal as said befoer and see how i go! Thanks

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,540
    • Most Online (within 30 mins)
      7,748

    Nina J
    Newest Member
    Nina J
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.