Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Constantly Hungry- Never Full


Xhale1227

Recommended Posts

Xhale1227 Newbie

I took an allergy test and it said I had gluten sensitivity. Pretty sure I don't have celiac disease. My doc said he wanted me to give up gluten for a few months and see how I feel. I am on week 4 and my digestive system is feeling much better. However I am still very bloated, which I hope improves with time. My main concern though is my hunger. I have put on 5 pounds in the last few weeks, and if I ate when I was truly hungry, it would be 10 pounds. I am starving 24/7. I'm eating MORE calories now than I did when I ate gluten, and yet still my hunger is ravenous. Before this diet change, I would have to force myself to eat.... Now I eat as if I am going into hibernation every day. It is ridiculous. I just had 2 cups of oats, a peanut butter protein bar, half an avocado, fruit, protein shake, and 2 eggs for breakfast. No joke. I am now an hour later.... starving. Why is this happening? I am tempted to just quit, I don't want to gain weight.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Brittany85 Rookie

I took an allergy test and it said I had gluten sensitivity. Pretty sure I don't have celiac disease. My doc said he wanted me to give up gluten for a few months and see how I feel. I am on week 4 and my digestive system is feeling much better. However I am still very bloated, which I hope improves with time. My main concern though is my hunger. I have put on 5 pounds in the last few weeks, and if I ate when I was truly hungry, it would be 10 pounds. I am starving 24/7. I'm eating MORE calories now than I did when I ate gluten, and yet still my hunger is ravenous. Before this diet change, I would have to force myself to eat.... Now I eat as if I am going into hibernation every day. It is ridiculous. I just had 2 cups of oats, a peanut butter protein bar, half an avocado, fruit, protein shake, and 2 eggs for breakfast. No joke. I am now an hour later.... starving. Why is this happening? I am tempted to just quit, I don't want to gain weight.

I felt that way too when I went gluten-free. I think it has something to do with malabsorption. I'd suggest eating small meals and snacks frequently with lots of protein. I think this is part of the detox process and I'm sure it will get better.

squirmingitch Veteran

Did the allergy testing include testing for soy? Soy gives me bloat.

I am hungry all the time too. I think it is like Brittany said ~~~ it's part of the process.

adab8ca Enthusiast

i had no appetite before I was diagnosed with Celiac...Lost 30 pounds without trying. Once I stopped eating gluten, I was RAVENOUS. If it was not nailed down, I ate it. I was never, ever ever full.

It did subside but I did put on at least 10 pounds in a very short time. If you are feeling better, I would not give up the diet for fear of a little weight gain. It eventually subsided with me, although I have started working out a LOT and am having a hard time losing any weight. My body seems to want to hold on to the nutrition it gets!!!

Lori2 Contributor

I would really recommend that you stay away from oats for a while.

TeknoLen Rookie

I wonder if your breakfast had too high of a glycemic load. Two cups of oats and the fruit might be spiking your blood sugar which can cause your insulin production to spike which can then lead to a "crash" as the insulin knocks down your blood glucose. Hunger is a common result of the blood sugar crash. The fats and protein in your breakfast should have helped moderate digestion of the carbs, but perhaps the sheer glycemic load was too much...

Xhale1227 Newbie

I quit the diet. I just cant do it. I was like 2 months in and felt AWFUL. I could barely think, was starving constantly, very low energy, felt like I had mild flu symptoms. I think Im betting off just eating like a normal person.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

I quit the diet. I just cant do it. I was like 2 months in and felt AWFUL. I could barely think, was starving constantly, very low energy, felt like I had mild flu symptoms. I think Im betting off just eating like a normal person.

I'm sorry to hear that. Good luck.

RiceGuy Collaborator

I quit the diet. I just cant do it. I was like 2 months in and felt AWFUL. I could barely think, was starving constantly, very low energy, felt like I had mild flu symptoms. I think Im betting off just eating like a normal person.

As was suggested in another post, the oats might not have been such a good idea. They're basically all contaminated with gluten unless you buy gluten-free oats. And even then, there's no guarantee that you can actually have oats without suffering consequences anyway. Some can, and some cannot.

However, the symptoms you describe while on a gluten-free diet are not uncommon for those just starting out. Sounds like it could be gluten withdrawal, and many do go through it. Give it time. I think if gluten presented no problems for you, your body wouldn't be exhibiting such changes. I too had a ravenous appetite at first, and it lasted nearly a year. Ate until I thought I'd puke or explode, but couldn't satisfy the hunger. I resorted to liquefying all my meals in a blender, so as to maximize digestion and nutrient absorption. Wasn't very tasty, and got really monotonous, but it was necessary. You may not have to take such measures, but this should illustrate just how messed up a body can become, without the person even knowing it. After all, gluten was the last thing I thought bothered me. I ate tons of the stuff.

If gluten is a problem for you, be assured it is nothing to be trifled with. It will catch up to you, and like many on this board, you'll wish you'd taken action sooner. I know I sure do. But there's no going back. Today is the first day of the rest of your life. Make it count.

  • 2 months later...
Happytobefree Newbie

I quit the diet. I just cant do it. I was like 2 months in and felt AWFUL. I could barely think, was starving constantly, very low energy, felt like I had mild flu symptoms. I think Im betting off just eating like a normal person.

I had the same thoughts as RiceGuy ( a few posts after this quoted post). From the descrpton of what you were eating, I think you are glutenng yourself. Be aware that once you give your body a break from gluten, you basically give it a chance to stand up for itself. I think that is what you are experiencing. The oats, the protien bar, produce wax, and your old kitchen equipment are all direct or contaminated sources of gluten. You can send your body back to starvation and malnutrition mode and lessen the symptoms, but you will be doing damage overtime. I would listen to your body. If you are not feeling, it's a sign that you are still ingesting gluten. I would encourage you to try again and start yourself off with a few food items that are COMPLETELY gluten-free and have only a few things on the ingredients list to lessen the chance of cross contamination. This site is an awesome guide to gluten-free versions of common food items and, as for fresh produce, I would find frozen gluten-free veggies and try finding a local produce shop that sells uncoated and unsprayed frut and veg. It is an undertaking, I can't deny that, but I, personally have been rewarded by getting my life, mind, and health back in sound condition.

Best of luck to you,

Jessica Enevold

Razzle Dazzle Brazell Enthusiast

When i stoppedeating gluten i was taking B-12 so i think it helps tremendously. I also take gluten fre multivitamin gummies. I agree that lacking nutrients can cause that insatiable hunger. How are you coping with the diet change? Are you using alternative flours and eating a varied diet with a lot of vegetables and fruits?

squirmingitch Veteran

Please note that the OP has not posted since they said they were quitting gluten-free on 2/27/12.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    3. - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    4. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,387
    • Most Online (within 30 mins)
      7,748

    LizzieE
    Newest Member
    LizzieE
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.