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Celiac And Hair Loss


alimore33

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alimore33 Newbie

Hi everyone,

I'm new, my name is Ali. I'm waiting on blood tests but can see gluten is the culprit of my pain and suffering. My belly is no longer angry with me like before.

I have an array of symptoms but my main concern is hair loss. I wasnt sure if it was


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rosetapper23 Explorer

First, you should be tested for thyroid problems (perhaps your doctors already have?), because an underactive or overactive thyroid can be a cause for hairloss, and many of us suffer from thyroid conditions.

However, if the hairloss is truly a result of nutritional deficiencies, you might consider taking a B complex vitamin that contains biotin, chelated zinc, and a silicon product called BioSil, which a number of us take on this Forum, which helps to regrow hair, nails, and connective tissues. Some folks on this forum take it for joint pain. I also take a bovine collagen product made by NeoCell that I buy at a healthfood store.

If this combination is helpful, you'll see 1/2 inch of hair growth within 4-5 weeks around your hairline.

alimore33 Newbie

Awesome thank you so much for your reply!

Cara in Boston Enthusiast

Right when I was getting tested, I noticed my hair was thinning at an alarming rate and I had a bald spot developing right at my temple where my part ended. After testing and going gluten free, my other symptoms started going away (GI issues, headaches, joint aches, fogginess, etc.) immediately but the hair loss continued. It wasn't until about 3 months that I noticed my sink wasn't full of hair after I brushed it. Now, after almost a year, the hair at my temple is clearly growing back - it is almost two inches long and I never have the big clumps of hair in the shower drain or sink like I did right before being diagnosed. It can take a while. Don't give up.

Cara

Bubba's Mom Enthusiast

I second the thyroid test opinion. Thyroid issues and Celiac/gluten intolerance seem to go together quite often.

I had hair loss at an alarming rate too. :o I didn't get bald spots..just an overall thinning. My thyroid test was normal. In my case it was a lack of nutrition due to damage in my intestine. I now take a good B complex vitamin. Biotin is specific for hair growth.

It takes time to heal, even if you take supplements, so don't get discouraged if you don't see a change over night. It should get better once you're on the path to healing.

orange Newbie

Ali ,

first of all keep faith that u are on right track and being celiac we have no other option .

well i didnot had hair loss but my hair were weak and grey almost close to whiteish silver but on gluten free for 4 mon they look healthy and changing to blackish silver and patches looks very much black , so lets hope down track this problem of yours will get better . give time to recovery .

good luck

Hi everyone,

I'm new, my name is Ali. I'm waiting on blood tests but can see gluten is the culprit of my pain and suffering. My belly is no longer angry with me like before.

I have an array of symptoms but my main concern is hair loss. I wasnt sure if it was – stress, or that I colored my hair twice in 2 weeks, drastic diet change, or Fibromyalgia (I've had since 2006).

Osteopath & Dr mentioned gluten intolerance,and it explains hair loss, bladder problems, hip pain, constipation, acne, and skin rashes, abdominal discomfort and even fatigue and joint pain, which actually makes me think I don't have Fibromyalgia at all but Celiac.

Anyway, I'm on day 8 of a gluten-free diet. But hair loss persists, every day I see hair loss, some days it's more aggressive than others. Its quite alarming, especially because I'm only 32 and other than feeling like I got hit by a bus, I'm ok and in a good mood.

How long after a gluten-free diet does it take for hair loss to cease? Do you mind sharing your experiences? Did you experience hair loss and what did you do to slow it down?

I would appreciate any information you can give me. Thanks so much for your experiences and for this site.

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    • SamAlvi
      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
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