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Is This Feeling With Celiac Normal?

SKACeliac

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SKACeliac Newbie
SKACeliac
Posted

So I was diagnosed with celiac when I was younger. I believe 7, I am 24 now. I was ridiculously skinny and as soon as I stopped eating gluten i plumped up.

Lately, I would say 3-4 weeks I have been super crampy, VERY bloated, and lower abdominal fullness. (granted i did have a period last week so im sure that contributed to it, buts its still here) I have also been really gassy, no matter WHAT i eat! my stomach just rumbles and makes noise like I am hungry but I am not. I also feel even more full then usual after eating, i eat the same amount but for a little im just superrr full and then slowly my stomach makes noises and it lessens in fullness.

My bowel movements and appetite did not change at all, just this full, bloated, cramping, uncomfortableness.

I have made an appointment with my doctor, but I am in law school and have anxiety and cannot calm myself down. I wake up constantly thinking what is wrong.

I never felt this before, but I know they say celiacs are gassy and bloated. Is this normal? Can anyone give me insight? I also am the first in my family so no one else can help!

Thank you!

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pondy Contributor
pondy
Posted

Do you have pain or tenderness? Just two weeks ago I had all of the symptoms that you described, but I also developed pain & pressure behind my bellybutton. It then radiated to the right side.

My doctor ordered a pelvic ultrasound to rule out something ovary related - the test showed nada & the symptoms just went away.

For me too, the symptoms started a few days after my period.

My doctor said ovarian cysts could cause those symptoms - they typically resolve themselves...

I sympathize with you! I know all that pressure & bloating is SO incredibly uncomfortable!

Sorry I don't have any answers for you - just hugs & hoping you feel better soon!

Pondy

Skylark Collaborator
Skylark
Posted

It sounds to me like there is gluten in your diet. Did you start eating anything different in the last 3-4 months, change roommates so there is gluten in the kitchen, get a pet that's eating gluten food, or start eating out frequently at a new place?

SKACeliac Newbie
SKACeliac
Posted
  • Author

No, my diet has stayed the same, nothing new has occurred to come about. My celiac doctor ordered a blood test, but sometimes i just feel like I know better than them that something is not normal. Its not ok to feel this bloated and full all the time. And to others i dont look bloated and my clothes do not make me feel bigger or tight on me. Its strange and weird to me.

Thanks for the help! my doctor said the same thing to check or ovary related problems and all that was the same as you, nada! and so strange my pain started on my one side, went to the other and the stomach and alternates on an off. I had the pressure or pokey feeling near my belly button also. Thought it was appendix but that would have not lasted for a month. I hope my pain goes away like you said. Thank you for the assistance!

pricklypear1971 Community Regular
pricklypear1971
Posted

I had similar symptoms when they suspected I had (have?) endometriosis. I was about to start testing when I got pregnant, and after my son was born the symptoms went away so I never pursued it again.

You may try progesterone cream (read Dr. John Lee's books). Its not unusual to go through periods of hormonal flux and benefit from progesterone now and then.

Just a thought...

pondy Contributor
pondy
Posted

I was told, by both my doctor and the radiology tech, that pelvic ultrasounds can show different things on different days - I know, it sounds ridiculous, right?

The reason my latest ultrasound showed nothing was because there was too much stool in the way - sorry for TMI ;) I know I have/had an ovarian cyst because they saw it on a scan 10 months ago. Like I said, I had your EXACT symptoms.

At my last doctor visit, they said a repeat ultrasound would be necessary if the symptoms continued. It all lasted about 8 days, then just vanished! Weird stuff!

Just an FYI - for the extreme gas, I got down on the floor and did stretching and massaging of my abdomen. It helped to release some of the pressure. Prior to that, I could barely stand upright! :blink:

I also tried to do lots of walking (outside, alone ;) that also helped to relax me somewhat.

All best,

Pondy

SKACeliac Newbie
SKACeliac
Posted
  • Author

Thanks everyone. Its really helpful to know that I am not the only one feeling this way.

Pondy, I did two ultra sounds once before a period and once after and they still found nothing. The doc also suspects since its stomach bloated and gassiness and lower ab bloating that it was not related to anything in the "down there" department. I do have another appointment with her in two weeks against just as a check up and I will make her repeat now that you told me. Thank you!

I guess this is just strange. I have just done a blood work, and have appointments with my regular doctor and a GI specialist in the next week just to see whats wrong. Sometimes I feel completely normal and nothing, but then the heaviness comes on strong. ugh this feeling is horrible. And today i developed some flemy (sorry tmi) and mucus in my throat and woke up with a sore back (but thats prolly due to sleep since i cant seem to lay comfortable lately). the flem might be allergies with all this pollen but who knows...

Thanks again everyone, its calming me down.

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
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      By SilkieFairy · Posted

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