Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Do Withdrawal Symptoms Last ?


dudley007

Recommended Posts

dudley007 Newbie

Hello everyone, I am a newbie here. I started on gluten free diet exactly 2 weeks ago for two reasons:

1) I would like to lose some weight

2) I get headaches/brain fog from time to time and I heard this may be related to gluten (I realize not every headache is caused by gluten)

I have no reason to believe that I am gluten sensitive, my digestive system works very well but I read that people may be gluten sensitive yet have very few symptoms. I have no problems following the diet - in fact, after a week I stopped craving bread/past completely. However (!), 3 days after I eliminated gluten from my diet, I started experiencing strong brain fog episodes and even mild/moderate depression. This has been taking for 11 days now and it is pretty bad.

I read about withdrawal symptoms but people usually report having them for a few days. Is what I experience common? Why the depression?

Thanks for any insight you can share with me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dudley007 Newbie

Any help here? Can you please share if your withdrawal symptoms included depression and if so, how long they lasted? Thank you.

Diane-in-FL Explorer

Withdrawal seems different for everyone.....it depends on how old you are, how long you may have had gluten issues without being diagnosed or knowing it. Gluten is addictive and your body is reacting to missing it, and for some people, withdrawal symptoms can be as bad or worse than their original symptoms. But it will get better.

Welcome to the forum! :)

pricklypear1971 Community Regular

Or, you could need some of the b vitamins gluten goods have added to them. Just a thought - add a multi vitamin?

Kamma Explorer

Hi Dudley...

When I was going through my withdrawals I really wanted to know how long they would last as well. I started reading some of the research stuff and I believe it was in one of Dr. Fassano's papers where he stated that the antibodies created in reaction to the gluten have a half life of three months. So in three months, half of the antibodies are gone, in another three months, half of that half is gone and so on. It takes a full year to eliminate your system of the antibodies if you don't accidently gluten yourself.

I started to feel better for longer periods of time around the two month mark. Lots of energy, good cheer and hope. Some of my symptoms are ramping up at other times.

Hope that helps.

Oh yes! By the way, gluten acts like an opiate on some of the receptors in the brain so when you withdraw from it some people get depressed.

Gfresh404 Enthusiast

Why are you gluten-free, as a just in case?

dudley007 Newbie

Why are you gluten-free, as a just in case?

Thanks for all your posts. I do take a multivitamin once a day. The reason I went gluten free is to

1) lose some weight (success here so far)

2) see if it can help me with my occasional headaches

3) from what I read, anyone can benefit from gluten-free diet even if that person does not have any alergic symptoms


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WendyLee Rookie

Hi Dudley...

When I was going through my withdrawals I really wanted to know how long they would last as well. I started reading some of the research stuff and I believe it was in one of Dr. Fassano's papers where he stated that the antibodies created in reaction to the gluten have a half life of three months. So in three months, half of the antibodies are gone, in another three months, half of that half is gone and so on. It takes a full year to eliminate your system of the antibodies if you don't accidently gluten yourself.

I started to feel better for longer periods of time around the two month mark. Lots of energy, good cheer and hope. Some of my symptoms are ramping up at other times.

Hope that helps.

Oh yes! By the way, gluten acts like an opiate on some of the receptors in the brain so when you withdraw from it some people get depressed.

Thx Kamma for the information about the reseach.

Wendy

  • 2 months later...
JaneG Newbie

This is a useful thread, thanks Kamma for your reply.

I have gone gluten free as a last ditch effort to cure my chronic fatigue - I have done everything else and my Doctors are less than useless, refusing tests unless there are really obvious signs of anything like thyroid, gluten etc. I am having to go it alone because they depress me so much and make me feel I am insane.

Almost a month in, just like above, finding the way of eating easy and pleasurable and not craving bread at all - perhaps because I have learned a lot from the raw food movement. I did high raw for a while but could never give up bread!

Sadly, I feel absolutely dreadful. I sleep more than ever; sometimes feel sick; have severe headaches and neck ache; can't think straight; can't function and today I am angry as well. I am wondering if it is worth it and if I am just clutching at straws. Last year I thought I was healed of chronic fatigue and then it came back, but now much worse since starting this, though the first week was good and I felt I was on the right track.

I need some hope. I have searched so many sites and forums and all I see over and over are these wonder stories of people losing a stone in the first 4 weeks (I have got heavier) and suddenly having all this energy...and I feel like an oddball, like there is something wrong with me and maybe I shouldn't be doing this and it's all rubbish, etc. But it really does feel like my last hope of recovery.

Any advice, links to articles/sites about difficulties would be gratefully received. Thank you

LauraB0927 Apprentice

Why didnt you consult with a doctor and have blood tests done before going gluten free? Headaches and fatigue could point to a lot of different diagnoses and shouldnt just be related to Celiac. More importantly, I'm a bit concerned that you feel that going gluten free is a sufficient way to lose weight. In fact, many people begin to gain weight after starting a gluten free diet - some because they are actually beginning to absorb food and others because they are loading up on the gluten replacement foods which have WAY more carbs and calories. Gluten free doesnt necessarily equate to healthy....If you want to lose weight, you're right, stick to more natural foods like meats, fruits, veggies, nuts, etc, but if you dont have Celiac or a gluten sensitivity then there is a legitimate place for gluten in your diet.

I would seriously suggest consulting with your doctor to discuss your headaches and fatigue - you could be ignoring another problem. I have to admit, this post is coming from a bit of frustration because I'm not sure why anyone would want to be on this "diet" or "lifestyle" if they dont have to be. Rule out any other medical illnesses and get tested for antibodies - it could be from something else and maybe even something easier to manage.

  • 9 months later...
wonderingman Newbie

Hi Dudley...

When I was going through my withdrawals I really wanted to know how long they would last as well. I started reading some of the research stuff and I believe it was in one of Dr. Fassano's papers where he stated that the antibodies created in reaction to the gluten have a half life of three months. So in three months, half of the antibodies are gone, in another three months, half of that half is gone and so on. It takes a full year to eliminate your system of the antibodies if you don't accidently gluten yourself.

I started to feel better for longer periods of time around the two month mark. Lots of energy, good cheer and hope. Some of my symptoms are ramping up at other times.

Hope that helps.

Oh yes! By the way, gluten acts like an opiate on some of the receptors in the brain so when you withdraw from it some people get depressed.

I wonder if acupuncture will help remove the half-life that you researched? I have been gluten-free for 4 months and have no libido. I have also removed diary and sugar too. My labs show normal thyriod. Do you have that article or have you been through a similiar raod with this? How long did it take you? 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,127
    • Most Online (within 30 mins)
      7,748

    Steve715
    Newest Member
    Steve715
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Just wanted to add that checking B12 and Vitamin D only is not going to give an accurate picture of vitamin deficiencies.   B12 Cobalamine needs the seven other B vitamins to work properly.   You can have vitamin deficiency symptoms before the B12 blood level changes to show deficiency.  You can have "normal" B12, but have deficiencies in other B vitamins like Thiamine and Niacin, for which there are no accurate tests. Take a B Complex supplement with all the B vitamins.  Take additional Thiamine B 1 in the form Benfotiamine which has been shown to promote intestinal healing.  Thiamine Mononitrate found in most vitamin supplements is not easy for the body to utilize.  What makes thiamine mononitrate not break down on the shelf also makes it hard for the body to absorb and utilize.  Thiamine and Niacin B 3 deficiency symptoms include anxiety, depression and irritability.  The brain uses more Thiamine than other organs.  Take the B Complex and Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and look for health improvements in the following weeks.
    • knitty kitty
      Hello, @rei.b, Ehlers Danlos syndrome and Celiac Disease can occur together in genetically predisposed individuals.  Losing ones gallbladder is common with celiac disease. I'm glad Naltrexone is helping with your pain.  Naltrexone is known to suppress tTg IgA and tTg IgG production, so it's not surprising that only your DGP IgG and DGP IgA are high.   Have you tried the Autoimmune Protocol diet designed by Dr. Sarah Ballantyne, a Celiac herself?  The AIP diet helps lower inflammation and promotes intestinal healing.   The AIP diet is a Paleo diet that eliminates foods that can cause intestinal inflammation until you heal on the inside, then more foods can be added back in.  The low histamine AIP diet will help reduce inflammation further.   Histamine is released as part of the immune response in celiac disease.  Foods also contain various amounts of histamine or provoke histamine release.  Lowering the amount of histamine from foods helps.  The body, with help from B vitamins, can clear histamine, but if more histamine is consumed than can be cleared, you can stay in an inflammatory state for a long time. Cutting out high histamine foods is beneficial.  Omit night shades which contain alkaloids that add to leaky gut syndrome found with celiac disease.  Night shades include tomatoes, peppers including bell peppers, potatoes and eggplants.  Processed foods like sausages and gluten-free processed products are high in histamines.  All Grains are removed from the diet because they are inflammatory and provoke histamine release. Blood tests for deficiencies in B vitamins are notoriously inaccurate.  You can have vitamin deficiency symptoms before blood levels show a deficiency.  Blood levels do not accurately measure the quantity of B vitamins stored inside the cells where they are utilized.  The brain will order stored vitamins to be released from organs into the blood stream to keep the brain and heart supplied while deficiency occurs inside organs, like the gallbladder.  Gall bladder dysfunction is caused by a deficiency in Thiamine Vitamin B 1 and other B vitamins.   The eight essential B vitamins are water soluble and easily lost with diarrhea and constipation, and the malabsorption and inflammation that occurs with celiac disease.  Because they are water soluble, the body can easily excrete any excess B vitamins in urine.  The best way to see if you are deficient is to take a B Complex and Thiamine in the form Benfotiamine and look for health improvements in the following weeks.  Most B Complex supplements contain Thiamine Mononitrate which is not bioavailable.  The body has a difficult time utilizing thiamine mononitrate because it doesn't break down easily.  Benfotiamine has been shown to promote intestinal healing.   Remember your intestines are in a damaged, permeable state.  Treat them tenderly, like you would a baby until they heal.  You wouldn't feed a baby spicy bell peppers and hard to digest corn and nuts.  Change your diet so your intestines can heal.   I use a combination of B12 Cobalamine, B 6 Pyridoxine, and B1 Benfotiamine for pain.  These three B vitamins have analgesic properties.  They relieve pain better than other otc pain relievers. 
    • Mari
    • trents
      Sorry, I think I got you mixed up with another poster.
    • rei.b
      I hadn't been eating gluten free before having the antibody test done. I started eating gluten free after having the test done because the gastro PA told me to eat gluten-free for 6 months. I'm now 3 months in.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.