Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Do Withdrawal Symptoms Last ?


dudley007

Recommended Posts

dudley007 Newbie

Hello everyone, I am a newbie here. I started on gluten free diet exactly 2 weeks ago for two reasons:

1) I would like to lose some weight

2) I get headaches/brain fog from time to time and I heard this may be related to gluten (I realize not every headache is caused by gluten)

I have no reason to believe that I am gluten sensitive, my digestive system works very well but I read that people may be gluten sensitive yet have very few symptoms. I have no problems following the diet - in fact, after a week I stopped craving bread/past completely. However (!), 3 days after I eliminated gluten from my diet, I started experiencing strong brain fog episodes and even mild/moderate depression. This has been taking for 11 days now and it is pretty bad.

I read about withdrawal symptoms but people usually report having them for a few days. Is what I experience common? Why the depression?

Thanks for any insight you can share with me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dudley007 Newbie

Any help here? Can you please share if your withdrawal symptoms included depression and if so, how long they lasted? Thank you.

Diane-in-FL Explorer

Withdrawal seems different for everyone.....it depends on how old you are, how long you may have had gluten issues without being diagnosed or knowing it. Gluten is addictive and your body is reacting to missing it, and for some people, withdrawal symptoms can be as bad or worse than their original symptoms. But it will get better.

Welcome to the forum! :)

pricklypear1971 Community Regular

Or, you could need some of the b vitamins gluten goods have added to them. Just a thought - add a multi vitamin?

Kamma Explorer

Hi Dudley...

When I was going through my withdrawals I really wanted to know how long they would last as well. I started reading some of the research stuff and I believe it was in one of Dr. Fassano's papers where he stated that the antibodies created in reaction to the gluten have a half life of three months. So in three months, half of the antibodies are gone, in another three months, half of that half is gone and so on. It takes a full year to eliminate your system of the antibodies if you don't accidently gluten yourself.

I started to feel better for longer periods of time around the two month mark. Lots of energy, good cheer and hope. Some of my symptoms are ramping up at other times.

Hope that helps.

Oh yes! By the way, gluten acts like an opiate on some of the receptors in the brain so when you withdraw from it some people get depressed.

Gfresh404 Enthusiast

Why are you gluten-free, as a just in case?

dudley007 Newbie

Why are you gluten-free, as a just in case?

Thanks for all your posts. I do take a multivitamin once a day. The reason I went gluten free is to

1) lose some weight (success here so far)

2) see if it can help me with my occasional headaches

3) from what I read, anyone can benefit from gluten-free diet even if that person does not have any alergic symptoms


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WendyLee Rookie

Hi Dudley...

When I was going through my withdrawals I really wanted to know how long they would last as well. I started reading some of the research stuff and I believe it was in one of Dr. Fassano's papers where he stated that the antibodies created in reaction to the gluten have a half life of three months. So in three months, half of the antibodies are gone, in another three months, half of that half is gone and so on. It takes a full year to eliminate your system of the antibodies if you don't accidently gluten yourself.

I started to feel better for longer periods of time around the two month mark. Lots of energy, good cheer and hope. Some of my symptoms are ramping up at other times.

Hope that helps.

Oh yes! By the way, gluten acts like an opiate on some of the receptors in the brain so when you withdraw from it some people get depressed.

Thx Kamma for the information about the reseach.

Wendy

  • 2 months later...
JaneG Newbie

This is a useful thread, thanks Kamma for your reply.

I have gone gluten free as a last ditch effort to cure my chronic fatigue - I have done everything else and my Doctors are less than useless, refusing tests unless there are really obvious signs of anything like thyroid, gluten etc. I am having to go it alone because they depress me so much and make me feel I am insane.

Almost a month in, just like above, finding the way of eating easy and pleasurable and not craving bread at all - perhaps because I have learned a lot from the raw food movement. I did high raw for a while but could never give up bread!

Sadly, I feel absolutely dreadful. I sleep more than ever; sometimes feel sick; have severe headaches and neck ache; can't think straight; can't function and today I am angry as well. I am wondering if it is worth it and if I am just clutching at straws. Last year I thought I was healed of chronic fatigue and then it came back, but now much worse since starting this, though the first week was good and I felt I was on the right track.

I need some hope. I have searched so many sites and forums and all I see over and over are these wonder stories of people losing a stone in the first 4 weeks (I have got heavier) and suddenly having all this energy...and I feel like an oddball, like there is something wrong with me and maybe I shouldn't be doing this and it's all rubbish, etc. But it really does feel like my last hope of recovery.

Any advice, links to articles/sites about difficulties would be gratefully received. Thank you

LauraB0927 Apprentice

Why didnt you consult with a doctor and have blood tests done before going gluten free? Headaches and fatigue could point to a lot of different diagnoses and shouldnt just be related to Celiac. More importantly, I'm a bit concerned that you feel that going gluten free is a sufficient way to lose weight. In fact, many people begin to gain weight after starting a gluten free diet - some because they are actually beginning to absorb food and others because they are loading up on the gluten replacement foods which have WAY more carbs and calories. Gluten free doesnt necessarily equate to healthy....If you want to lose weight, you're right, stick to more natural foods like meats, fruits, veggies, nuts, etc, but if you dont have Celiac or a gluten sensitivity then there is a legitimate place for gluten in your diet.

I would seriously suggest consulting with your doctor to discuss your headaches and fatigue - you could be ignoring another problem. I have to admit, this post is coming from a bit of frustration because I'm not sure why anyone would want to be on this "diet" or "lifestyle" if they dont have to be. Rule out any other medical illnesses and get tested for antibodies - it could be from something else and maybe even something easier to manage.

  • 9 months later...
wonderingman Newbie

Hi Dudley...

When I was going through my withdrawals I really wanted to know how long they would last as well. I started reading some of the research stuff and I believe it was in one of Dr. Fassano's papers where he stated that the antibodies created in reaction to the gluten have a half life of three months. So in three months, half of the antibodies are gone, in another three months, half of that half is gone and so on. It takes a full year to eliminate your system of the antibodies if you don't accidently gluten yourself.

I started to feel better for longer periods of time around the two month mark. Lots of energy, good cheer and hope. Some of my symptoms are ramping up at other times.

Hope that helps.

Oh yes! By the way, gluten acts like an opiate on some of the receptors in the brain so when you withdraw from it some people get depressed.

I wonder if acupuncture will help remove the half-life that you researched? I have been gluten-free for 4 months and have no libido. I have also removed diary and sugar too. My labs show normal thyriod. Do you have that article or have you been through a similiar raod with this? How long did it take you? 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,542
    • Most Online (within 30 mins)
      7,748

    Carol Zimmer
    Newest Member
    Carol Zimmer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.