Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

First Time Being A Dinner Guest Post-Diagnosis


basilicious

Recommended Posts

basilicious Explorer

I have just gone strictly gluten-free and am eating dinner at my friend's house tonight. She has been so incredibly accommodating and has checked labels, run things through the dishwasher and seems very aware of cross-contamination issues; however, as we all know, the best-intentioned friends may still inadvertently gluten us.

I have not tried gluten digestive enzymes and realize they are not in any way a shortcut for us. That said, since I am scared that I may get some gluten in my system tonight, could taking the gluten digestive enzymes help reduce any possible fallout?

Also, any recommendations on the appropriate dosage? The bottle says 1 capsule, which is 100 mg of "BioCore DPP IV" - Protease Aspergillus oryzae) and Protease AM (from Aspergillus melleus).

Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

I have just gone strictly gluten-free and am eating dinner at my friend's house tonight. She has been so incredibly accommodating and has checked labels, run things through the dishwasher and seems very aware of cross-contamination issues; however, as we all know, the best-intentioned friends may still inadvertently gluten us.

I have not tried gluten digestive enzymes and realize they are not in any way a shortcut for us. That said, since I am scared that I may get some gluten in my system tonight, could taking the gluten digestive enzymes help reduce any possible fallout?

Also, any recommendations on the appropriate dosage? The bottle says 1 capsule, which is 100 mg of "BioCore DPP IV" - Protease Aspergillus oryzae) and Protease AM (from Aspergillus melleus).

Thank you!

How sweet of your friend to try to make you a safe meal. :D

There are differing views on the gluten digestive enzymes. From what I've read the digestive enzymes help break down gliadin faster and so it goes through your system faster.

They are not recommended as an alternative to gluten-free eating, but taking them when you think there's a *possibility* of getting a bit of cc, like when eating away from home, they certainly can't hurt.

My hubby bought me a bottle of the Gluten Defense brand when I was first DXed. That brand says to take 2 with a meal.

Skylark Collaborator

Did you do OK at the dinner?

Here's another way of looking at the enzymes. You've taken all reasonable precautions. If the enzymes settle your mind and will help you relax and enjoy the evening, it's worth taking whether or not they will detoxify a trace of gluten. (Which is not clear to me from looking at studies.)

basilicious Explorer

The dinner went really well. I brought the enzymes with me, which in itself helped ease my mind on some level. However, I didn't end up taking them, because my friends went to pretty remarkable lengths to keep things safe for me. I felt so grateful that I could relax and have a nice time! However, since this is probably a fairly unusual experience, I may opt to use them in the future, since at least it sounds like they couldn't hurt. I need to do more research on the forum regarding what to eat/do when glutened, because maybe I'll make a practice of eating some of those foods or doing whatever is recommended if only as a precautionary follow-up step.

Thanks for your responses. I wish I had thought to post my question sooner!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

    3. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    5. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,845
    • Most Online (within 30 mins)
      7,748

    Paulaannefthimiou
    Newest Member
    Paulaannefthimiou
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
    • xxnonamexx
      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.