Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor In Upstate Ny

JaneWhoLovesRain

By JaneWhoLovesRain
in Doctors

Recommended Posts

JaneWhoLovesRain Enthusiast
JaneWhoLovesRain
Posted

Does anyone know of a good doctor in upstate NY (Saratoga-Troy-Schenectady-Albany area) who is knowledgable in non-intestinal celiac? And by that I mean gluten ataxia and/or DH.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Meggielynn13 Rookie
Meggielynn13
Posted

Irish Heart recommended Dr. Gusten to me. He works for Saratoga Schenectady Gastroenterology in all of their offices. I'm going to see him next week. He is great from what I've heard. DO NOT go to Dr. Boyar. He was my doctor and he was of no help to me. Having a positive Celiac test meant nothing to him. Good Luck!! :)

IrishHeart Veteran
IrishHeart
Posted

Meggielynn beat me to it!! :lol:

Dr. William Gusten at Saratoga-Schenectagy Gastro. He has an office in Burnt Hills as well. He is very celiac-savvy, thorough, compassionate and patient-friendly. Great at follow-through.

He did not intend to be a "celiac expert", I do not think, but he is one as far as I am concerned.

I love this guy. I never say that about doctors and I do not trust them anymore. Except him. ;)

I highly recommend him -- just as he was recommended to me by another member when I asked the same question as you did! :)

PM me if you need more info.

JaneWhoLovesRain Enthusiast
JaneWhoLovesRain
Posted
  • Author

Thank you for the referral Meggie and Irish. It's much appreciated. I know right where the BH office is. :)

IF I have celiac disease (nothing has been determined yet) it is showing in the form of dermatitis herpetiformis as well as vertigo issues. My intestines seem to be okay. Do you think he could still help me or should I be seeing some other kind of doctor?

IrishHeart Veteran
IrishHeart
Posted

Thank you for the referral Meggie and Irish. It's much appreciated. I know right where the BH office is. :)

IF I have celiac disease (nothing has been determined yet) it is showing in the form of dermatitis herpetiformis as well as vertigo issues. My intestines seem to be okay. Do you think he could still help me or should I be seeing some other kind of doctor?

Jane, DH IS celiac disease and if you have THAT, he is going to say you have the skin manifestation of celiac disease and he may want to biopsy you and make a DX. Yes, vertigo is a symptom of celiac disease. (I had it )

Are you still consuming gluten?

And YES, you need a good GI doctor to treat celiac disease. It is a disease of the GI tract--whom else would you see?

He is a VERY good GI doctor, believe me. :)

You say your intestines "seem to be okay"...meaning what? you have no overt gastro symptoms or you've been scoped and biopsied already and it was NEG? Because the absence of gastro symptoms does not mean you do not have celiac disease, as you may know.

"About one in 100 people in America has celiac disease, while about one in four of those will develop dermatitis herpetiformis Duhring, which occurs when celiac disease manifests cutaneously, in the skin. Dermatitis herpetiformis Duhring is uncommon in children, with only 5% of cases appearing in children younger than 7 years. Most often, it presents in people over forty."

You can get in for an appt. in the BH office faster. Call now. Why wait on this??

squirmingitch Veteran
squirmingitch
Posted

Jane, most celiacs with dh do not experience the gastro symptoms like those w/o dh. But that does not diminish the fact that we still have GI damage.

pricklypear1971 Community Regular
pricklypear1971
Posted

Jane, most celiacs with dh do not experience the gastro symptoms like those w/o dh. But that does not diminish the fact that we still have GI damage.

Yeah, Betsy on that one.

As I'm finding out, later.....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

From the Univ. of Maryland Center for Celiac Research:

Is it necessary to have an intestinal biopsy to confirm the diagnosis of Dermatitis Herpetiformis (DH)?

A skin biopsy is sufficient to confirm the diagnosis of DH.

DH is the skin manifestation of celiac disease.

JaneWhoLovesRain Enthusiast
JaneWhoLovesRain
Posted
  • Author

You say your intestines "seem to be okay"...meaning what? you have no overt gastro symptoms or you've been scoped and biopsied already and it was NEG? Because the absence of gastro symptoms does not mean you do not have celiac disease, as you may know.

I mean I have no MAJOR gastro symptoms, but lots of minor ones which may or may not mean anything. I haven't yet been scoped and biopsied (except for colonoscopy, but I don't think that counts).

I'm not knowingly consuming gluten, I am probably getting cross contamination or maybe from soap/shampoo/mouthwash etc.

Good ideas and thoughts from everyone. Thank you very much! I'm learning a lot here.

I will give the doctor's office a call. At the least they hopefully can give me the name of a good dermo.

Great

IrishHeart Veteran
IrishHeart
Posted

I mean I have no MAJOR gastro symptoms, but lots of minor ones which may or may not mean anything. I haven't yet been scoped and biopsied (except for colonoscopy, but I don't think that counts).

I'm not knowingly consuming gluten, I am probably getting cross contamination or maybe from soap/shampoo/mouthwash etc.

Good ideas and thoughts from everyone. Thank you very much! I'm learning a lot here.

I will give the doctor's office a call. At the least they hopefully can give me the name of a good dermo.

Great

celiac disease is NOT Dxed via colonoscopy.

https://www.celiac.com/articles/5/1/How-is-celiac-disease-diagnosed/Page1.html

You may not find a dermo who knows a darn thing about DH. A KNOWLEDGABLE GI doctor is your best bet.

But, it's your choice.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,066
    • Most Online (within 30 mins)
      7,748
    MamaMercedes
    Newest Member
    MamaMercedes
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      This is an older article, but may be helpful.  
    • gfmom06
      Celiac getting dentures

      By gfmom06 · Posted

      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.