Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Angry, All Doctors Are Inept (Here Anyways)

Cujy

By Cujy
in Doctors

Recommended Posts

Cujy Apprentice
Cujy
Posted

Well just as suspected I have just come from my doctors office, and now them armed with a confirmed celiac diagnosis, have chosen to ignore my urine sample that states significant crystals and significant bacteria. I am in so much pain (side and back) and I was put on pred and pain killers for a week....basically its all the fault of celiac, stay on the diet and get out!

Rrrrrrrrrrrrrrrrrr................

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


frieze Community Regular
frieze
Posted

Well just as suspected I have just come from my doctors office, and now them armed with a confirmed celiac diagnosis, have chosen to ignore my urine sample that states significant crystals and significant bacteria. I am in so much pain (side and back) and I was put on pred and pain killers for a week....basically its all the fault of celiac, stay on the diet and get out!

Rrrrrrrrrrrrrrrrrr................

geesh.....is there an ED you can go to? the crystal part=drink, drink, drink! But if there are truly significant bacteria, why didn't they consider an antibiotic?

Cujy Apprentice
Cujy
Posted
  • Author

She didn't even mention that....because again I gave them a sample today and it was clear. I said the sediment won't come out till tonight or tomorrow morning. I wonder if I go in with a sore throat, or I can't see if they'll tell me its the celiac too!?!? :angry::( I should have bypassed the doc and gone to emerg, but then again they'd tell me Im fibbing again like they did last time before the official diagnosis....They did a CT two and half months ago, she said stones would have shown up on that...well this pain only started two weeks ago, and she snarked at me and said that stones dont grow in two weeks!!!! Again I felt about an inch tall and just ran out of there bawling like a baby....I think I must have left some peel marks pulling out of the parking lot I was so angry....guess my anger management problem that I just had today is a result of celiac too..... :unsure:

tom Contributor
tom
Posted

:angry: Snarky health professionals are very professional.

And did the House show give them the go-ahead to treat patients as a buncha liars?

(Not that I don't like the show overall ;) )

Infuriating.

Cujy Apprentice
Cujy
Posted
  • Author

Tom, I love the show House, its my favorite show in the world....He's a cocky guy, BUT his diagnostics are fabulous. Ive quite often over the last couple months fantasized about meeting with his show consulting team, 18 of the worlds best diagnosticians....ahhh....They'd figure this out I just know they would....We can dream, until then I sit in excrutiating pain wishing all the worlds doctors would take lessons in patient relations!!!!!!!!!!!! :(

frieze Community Regular
frieze
Posted

She didn't even mention that....because again I gave them a sample today and it was clear. I said the sediment won't come out till tonight or tomorrow morning. I wonder if I go in with a sore throat, or I can't see if they'll tell me its the celiac too!?!? :angry::( I should have bypassed the doc and gone to emerg, but then again they'd tell me Im fibbing again like they did last time before the official diagnosis....They did a CT two and half months ago, she said stones would have shown up on that...well this pain only started two weeks ago, and she snarked at me and said that stones dont grow in two weeks!!!! Again I felt about an inch tall and just ran out of there bawling like a baby....I think I must have left some peel marks pulling out of the parking lot I was so angry....guess my anger management problem that I just had today is a result of celiac too..... :unsure:

the stones (if you have any) could have been growing for at least the 2.5 months since the CT scan. Don't know the average time from start to pain. Is your unrine more concentrated when the sediment occurs? Is it granular, or soft, or mucus? Clean out your diet as much as possible. good luck

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Tom, I love the show House, its my favorite show in the world....He's a cocky guy, BUT his diagnostics are fabulous. Ive quite often over the last couple months fantasized about meeting with his show consulting team, 18 of the worlds best diagnosticians....ahhh....They'd figure this out I just know they would....We can dream, until then I sit in excrutiating pain wishing all the worlds doctors would take lessons in patient relations!!!!!!!!!!!! :(

I'm so sorry you're having such a rough time with your Dr. May be time to try a new one?

House is really good at diagnosing..but have you noticed he usually wants to look inside people's brains..no matter what the symptoms? :o You wouldn't want that! ;) LOL

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


quincy Contributor
quincy
Posted

yeah doctors are clueless sometimes. I went to an endocrinologist in 2006 cause I knew something was wrong and I thought it was low testosterone. He basically ran some blood work and told me I was depressed. If he had checked my vitamin D back then my celiac might have been discovered perhaps 4 years earlier than it was. instead I wound up being given lexapro and xanax and what a night mare that was....

I have had IC symptoms lately as well. have you checked out the IC network for more info?

Cujy Apprentice
Cujy
Posted
  • Author

Hi all...glad to know I don't feel like a headcase here! My friend keeps telling me to go to emerg, but last time I did that, they kicked me out after trying to kill me by running a bag of morphine over 5 minutes! Oh and called me a liar about me saying there was blood in my BM.

As for changing docs, can't do it here. The system mandates that if you have a doc yer stuck with them unless you move to another province and can't get to your old one, or your old one leaves. Sucks but true.

Today I am suffering from massive back pain, not sure if its related to the kidney thing. I had the white sediment again last night, and it looks like small white bits, almost like running CLR through a coffee machine, just the flakes arn't as big. It looks like white powder and thats what they said is "significant crystals being dumped". I know from other people that stones can develop quick, even over a span of two months. All I asked for was a renal ultrasound, but no one will do it. Because I had the CT 2.5-3 months ago. I also at the same time had an internal ultrasound but they were checking my ovaries, not even sure if they can see my kidneys on that because it dosn't require the fluid intake as does a renal ultrasound.

By IC you mean collitis? Not even sure what the symptoms are, and would they not see that on a colonoscopy which I already had???

The doc asked me yesterday how my diarhea was....I said, WHAT diarhea???? I never ever had that problem or even said anything about it...so she was making stuff up!!!!!!!!! I was never bloated and never had a problem with BM's other then the blood.

I am at a loss....Ill just suffer with the pain rather then feel like an idiot, or a headcase.

frieze Community Regular
frieze
Posted

Hi all...glad to know I don't feel like a headcase here! My friend keeps telling me to go to emerg, but last time I did that, they kicked me out after trying to kill me by running a bag of morphine over 5 minutes! Oh and called me a liar about me saying there was blood in my BM.

As for changing docs, can't do it here. The system mandates that if you have a doc yer stuck with them unless you move to another province and can't get to your old one, or your old one leaves. Sucks but true.

Today I am suffering from massive back pain, not sure if its related to the kidney thing. I had the white sediment again last night, and it looks like small white bits, almost like running CLR through a coffee machine, just the flakes arn't as big. It looks like white powder and thats what they said is "significant crystals being dumped". I know from other people that stones can develop quick, even over a span of two months. All I asked for was a renal ultrasound, but no one will do it. Because I had the CT 2.5-3 months ago. I also at the same time had an internal ultrasound but they were checking my ovaries, not even sure if they can see my kidneys on that because it dosn't require the fluid intake as does a renal ultrasound.

By IC you mean collitis? Not even sure what the symptoms are, and would they not see that on a colonoscopy which I already had???

The doc asked me yesterday how my diarhea was....I said, WHAT diarhea???? I never ever had that problem or even said anything about it...so she was making stuff up!!!!!!!!! I was never bloated and never had a problem with BM's other then the blood.

I am at a loss....Ill just suffer with the pain rather then feel like an idiot, or a headcase.

I am wondering if the IC she is referring to would be interstitial cystitis?

Cujy Apprentice
Cujy
Posted
  • Author

I have an ovarian cyst but its not the "bad" kind of thats what IC means??? Sorry Im slow! LOL

quincy Contributor
quincy
Posted

I have an ovarian cyst but its not the "bad" kind of thats what IC means??? Sorry Im slow! LOL

IC means Interstitial Cystitis, its a condition where the mucous lining of the bladder breaks down and causes burning, frequency and urgency of urination.

it sounds like if sediment is being released then it is something different than IC. They say that taking magnesium supplements or having a multi vitamin with magnesium will help with the calcification in the kidneys, bladder etc. has anyone else heard of this?

I go on IC-Network as many people with Celiac also have IC.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Matthias
      - Matthias replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Unexpected gluten exposure risk from cultivated mushrooms

      Thanks a lot for your response! Can you maybe specify which kind of cheeses I should be cautious about? Camembert/Brie and blue cheeses (the molds of which are nowadays mostly grown on gluten-free media, though, so I've read, right?) or other ones as well? Also, I was under the impression that yeast is generally gluten-free if not declared otherwise...
    2. Scott Adams
      - Scott Adams replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Unexpected gluten exposure risk from cultivated mushrooms

      I agree with @trents, but thank you for bringing this up here!
    3. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi @trents, yes I've had my levels checked in Dec 2025 which revealed vit D deficiency. I considered eggs although they only contain about 45 IU vitamin D/egg. I need 2000 IU vitamin D for maintenance as per my doctor. Although now, I likely need way more than that to treat the deficiency. My doctor has yet to advise me on dosing for deficiency. I've also...
    4. trents
      - trents replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    5. Jane02
      - Jane02 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      Thanks a lot for your response! Can you maybe specify which kind of cheeses I should be cautious about? Camembert/Brie and blue cheeses (the molds of which are nowadays mostly grown on gluten-free media, though, so I've read, right?) or other ones as well? Also, I was under the impression that yeast is generally gluten-free if not declared otherwise. Is that false?
    • Scott Adams
      Unexpected gluten exposure risk from cultivated mushrooms

      By Scott Adams · Posted

      I agree with @trents, but thank you for bringing this up here!
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Hi @trents, yes I've had my levels checked in Dec 2025 which revealed vit D deficiency. I considered eggs although they only contain about 45 IU vitamin D/egg. I need 2000 IU vitamin D for maintenance as per my doctor. Although now, I likely need way more than that to treat the deficiency. My doctor has yet to advise me on dosing for deficiency. I've also considered cod liver oil, although again, if it's processed in a facility that has gluten, especially on flour form, I worried to test it, even if they have protocols in place to mitigate cross-contamination with gluten.
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.