Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Kidney Stones!?


Cujy

Recommended Posts

Cujy Apprentice

Okay all for fear of sounding redundant....Ciliac can cause kidney stones yes? So am I over reacting in asking my doc to do a renal ultrasound, or should I just do as she says and stay on the GFD and suck up with the pain and deal with it...see if the diet helps? How long do I wait...How long do I sit in pain to see if the diet alone will make all things great? Does anyone else on here have ciliac and kidney stones, or kidney issues? Ive never had any existing issues with my kidneys until now and am very nervous just letting the issue sit and stew...especially given the pain Im in from it. Maybe Im just a hypocondriac... :( I don't want to keep mentioning it, but maybe someone with the same experience can shed some light on this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Eleanor Creasey Rookie

Okay all for fear of sounding redundant....Ciliac can cause kidney stones yes? So am I over reacting in asking my doc to do a renal ultrasound, or should I just do as she says and stay on the GFD and suck up with the pain and deal with it...see if the diet helps? How long do I wait...How long do I sit in pain to see if the diet alone will make all things great? Does anyone else on here have ciliac and kidney stones, or kidney issues? Ive never had any existing issues with my kidneys until now and am very nervous just letting the issue sit and stew...especially given the pain Im in from it. Maybe Im just a hypocondriac... :( I don't want to keep mentioning it, but maybe someone with the same experience can shed some light on this.

Interesting. I passed a kidney stone and became sick afterwards...almost a year later I was diagnosed as gluten-intolerant. Do I think Celiac causes kidney stones...I don't think so. I know dehydration causes kidney stones. My doctor suggested that the stress of passing the kidney stone may has caused the onset of the gluten-intolerance. I sure hope you feel better soon! Are you drinking lots of water?

Cujy Apprentice

Yes I always drink tons of water... and could urinate all day long, I sometimes equate myself with a perculating coffee machine! LOL Sorry too much information.

I was told that celiac can cause kidney stones...dunno...my doc couldn't give me a difinitive answer, but did cite the "significant calcium crystals" in my urine as the result of celiac.

AVR1962 Collaborator

I have had issues with kidney stones for ovr 20 years. Have 2 lodged in my kidneys as I type. The thing here besides hydration is that you could also being having irritants that are causing the kidneys issues, like chlorination in the water. This will aggrivate my kidneys, make me sick,lots of pain in the kidney area. I also stay away from caffeine as this can cause issues, pain and dehydration. Because I have lodged stones that I don't want to grow if I can hlp it I also avoid nuts and spinach along with black tea.

If you are passing a stone, drink tons of water. When I start feeling the pain in my kidneys I will go to a liquid diet for usually 3 days til symptoms pass, no alcohol. If you have never passed a stone before don't worry.....it is pinful but unless it blocks something or lodges some place else you should be fine. I have had many a ultra sound and they ahve never caught my traveling stones.

Let me know if you have any more questions.

Annette

Ninja Contributor

Celiac is associated with kidney stones. My limited knowledge tells me that in the gut calcium binds with the excess fats (not absorbed due to untreated celiac) and leaves an excess amount of oxalate molecules. Those molecules travel to the kidneys and bind with the calcium there to be filtered out and expelled through the urine. (Missing some specifics and a few steps here...) This process is not as efficient as the gut is which makes it prone to complications including stones. Of course, dehydration exacerbates this issue and celiacs tend to be dehydrated..... Here's a good article:

Open Original Shared Link

I had a bout of kidney stones for the first time a couple months ago. I so understand and empathize with you...the pain is terrible. I had periods where the majority of the pain would subside though... The worst was the residual bladder pain...it took 2-3 weeks to resolve! Drove me crazy!! I hope you get feeling better soon!

~Laura (who is writing on a tiny keyboard and apologizes for any errors...)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748

    IRENEG6
    Newest Member
    IRENEG6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.