Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh


elbar

Recommended Posts

elbar Apprentice

I have been diagnosed with DH and have been on a gluten-free diet for a month. I licked an envelope this morning by mistake and by 11:00 a.m., my stomach was protesting very vividly!

I didn't get diarrhea when eating gluten in the past, however, the itching was unbelievable. I'm wondering if having a small amount of gluten now, after being gluten-free for a month, could be causing this diarrhea.

Thanks in advance for your answers.

elbar63


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frenchiemama Collaborator

Well, it does for me.

carrielynn Apprentice
I have been diagnosed with DH and have been on a gluten-free diet for a month.  I licked an envelope this morning by mistake and by 11:00 a.m., my stomach was protesting very vividly!

I didn't get diarrhea when eating gluten in the past, however, the itching was unbelievable.  I'm wondering if having a small amount of gluten now, after being gluten-free for a month, could be causing this diarrhea. 

Thanks in advance for your answers.

elbar63

<{POST_SNAPBACK}>

Did you itching subside after going gluten-free? My 5-year old son scratches like crazy -- everywhere. He's been gluten-free (to the best of our knowledge) for 7 weeks and he's still scratching constantly. I contacted the doctor and he said it could take months for his skin to heal. We keep hoping for a miracle with his skin here, but it hasn't happened. However, his mood and energy are a lot better, so we're grateful for that.

Carrie

elbar Apprentice
Did you itching subside after going gluten-free?  My 5-year old son scratches like crazy -- everywhere.  He's been gluten-free (to the best of our knowledge) for 7 weeks and he's still scratching constantly.  I contacted the doctor and he said it could take months for his skin to heal.  We keep hoping for a miracle with his skin here, but it hasn't happened.  However, his mood and energy are a lot better, so we're grateful for that.

Carrie

<{POST_SNAPBACK}>

My itching stopped almost immediately after going gluten-free. I have read on these message boards that it can take quite a while, I guess I was just lucky to have such quick results. Hopefully his miracle will happen soon.

Elaine

cdford Contributor

Most of us with DH did not stop itching quickly. My outbreaks began to come further and further apart, but even small glutenings can mean weeks of itching and nasty looking skin. My daughter does not break out as quickly nor do hers last as long the longer she is gluten-free, but then she did not let hers go for more than 40 years without getting it diagnosed. At first, I did not have to get into gluten for an outbreak to occur. I began to wonder if the stuff just had to have lots of time to work its way out of my skin because it had been there so long.

Also, heat and lots of sunlight can trigger it even without a gluten incident. So can iodine so check your salt.

Rachel--24 Collaborator
Also, heat and lots of sunlight can trigger it even without a gluten incident. So can iodine so check your salt.

<{POST_SNAPBACK}>

I had radioactive iodine treatment for Graves Disease...the next day I got a weird blister on my face. At first I thought it was a pimple...it wasnt and it stayed for weeks. Ever since then I get them off and on. Sometimes they are symetrical (one on each cheek) or in very small clusters...sometimes its just one all by itself. They always come back pretty much in the exact same spots but they don't itch and dont look like a rash...just blisters that take forever to leave. I get the itchy rash on my arms but I'm not sure if its DH. What do you think? Could the iodine from the treatment have triggered it?

oakpoint9 Newbie

I have been gluten-free since March 05, I find , even the smallest amount causes me to break out, usually in a place that is in the healing stage. I have been really careful, but every week or two, I get into something. It is usually when I eat away from home.

I hope that someday we will all have a wonder cream that will work on all stages of our rashes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cdford Contributor

Yeah, mine keep breaking out in the same spots as well. They will scab over, heal, then break out again. We got cross contaminated at McD's yesterday and are breaking out again. I always know it is DH and not acne when it starts in my ears and hairline (not to mention that it starts to itch).

oakpoint9 Newbie

DH on the ears is the pits! It is so hard to get ride of. Not as painful as other parts of the body, but just as itchy. Luckily, I do not have any GI problems.

elbar Apprentice
DH on the ears is the pits!  It is so hard to get ride of.  Not as painful as other parts of the body, but just as itchy.  Luckily, I do not have any GI problems.

<{POST_SNAPBACK}>

I was recently diagnosed with DH but had no digestive problems. If you are glutened, what happens - do you start itching? I've been glutened accidently a few times and I not only get the itching and blisters back but also GI problems. Does anyone else get that also?

Thanks for your responses.

elbar

frenchiemama Collaborator
I was recently diagnosed with DH but had no digestive problems.  If you are glutened, what happens - do you start itching?  I've been glutened accidently a few times and I not only get the itching and blisters back but also GI problems.  Does anyone else get that also?

Thanks for your responses.

elbar

<{POST_SNAPBACK}>

Yep.

oakpoint9 Newbie

I start to feel neddles under my skin 3-4 hours after I eat something with Gluten.

Then the itch will start shortly after that, even wakes me up at night.

Rash and itch lasts 2-3 days and then 2-3 days for the area to completly heal.

I am very careful with my diet, but I still get Gluten.

  • 4 weeks later...
Emilynlukesmom Newbie

I had radioactive iodine treatment for Graves Disease...the next day I got a weird blister on my face. At first I thought it was a pimple...it wasnt and it stayed for weeks. Ever since then I get them off and on. Sometimes they are symetrical (one on each cheek) or in very small clusters...sometimes its just one all by itself. They always come back pretty much in the exact same spots but they don't itch and dont look like a rash...just blisters that take forever to leave. I get the itchy rash on my arms but I'm not sure if its DH. What do you think? Could the iodine from the treatment have triggered it?

<{POST_SNAPBACK}>

I have the same problem on my face. At first I thought it was acne, but it seeps like the blisters on my elbows. I put triamenacinalone on my face and it dries up, but won't go away. They keep coming back. :(

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      10

      Severe severe mouth pain

    2. - trents replied to Charlie1946's topic in Related Issues & Disorders
      10

      Severe severe mouth pain

    3. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      10

      Severe severe mouth pain

    4. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      10

      Severe severe mouth pain

    5. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      10

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,900
    • Most Online (within 30 mins)
      7,748

    sai4a
    Newest Member
    sai4a
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
    • Charlie1946
      @knitty kitty are you kidding?  I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found this group and all of you with all this helpful information!! I thought I was going crazy!!  I have sebaceous hyperplasia too- is that related to Celiac?  OH , and I wanted to ask if there is a site where I could find information on mental health issues , with celiac safe facilities??
    • Charlie1946
      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before.  I think maybe the thrush made it worse, I just can't figure out why I can't get it to go away 
    • knitty kitty
      Oh, my dear!  Get off that Fairlife chocolate protein shake!  That's got milk in it!  Egads! Some people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all.  Reacting to Casein is not the same as lactose intolerance.  Damaged villi are incapable of producing lactAse, the enzyme that digests lactOse, the sugar in dairy.  If the villi grow back, they can resume making lactase again.   I react to casein and lactose both.  I get sores in my mouth and coated tongue, and inflammation, my Dermatitis Herpetiformis flares up, I get cold sores or shingles, and TMJ pain, well, joint pain in general, and my brain health is really affected, depression and anxiety.  So dairy is a really scary horror movie.     I take Benfotiamine and Thiamine TTFD  (tetrahydrofurfuryl disulfide).  These have anti-viral properties.   I've had chicken pox/shingles, and I also harbor the cold sore herpes virus which traveled to one eye through a nerve. It's broken now.  I had really bad nerve pain in my check at the time, then it turned into Bell's Palsy.  Thiamine TTFD helped clear up the dysphagia I was also experiencing then.  I took lots of Lysine to fight the herpes viruses as well.  Between the Thiamine TTFD and the Lysine, and avoiding dairy, mine stays dormant for the most part.   I also take a B Complex, and Magnesium Threonate to help the Thiamine TTFD work, Vitamin C, Vitamins A and D, and Zinc supplements to help Thiamine TTFD fight off those viruses. I have Sjogren's so I understand dry eye and mouth.  I found including Omega Threes, healthy fats, improved my problem.  You know how oil floats on top of water?  That's going on in our body, too.  Flaxseed oil supplements, and flaxseed oil to use on food is one way I increased my Omega Threes.  Choline and sunflower seed oil supplements are other choices I've tried.  Eat real food!  Eat fresh vegetables and fruit!  I had cooked stew in a crockpot until super mushy so I could chew and swallow it without lots of pain.  I got a bag of mandarin oranges, Cuties, whatever they're called now.  They're not too acidic.  Gluten free crackers don't have any nutritional value, no vitamins.   I followed the low histamine version of the Autoimmune Protocol Diet.  The book The Paleo Approach by Dr. Sarah Ballantyne has been most helpful.  She's a Celiac herself, and the diet has been shown to improve intestinal health. I have seen liquid vitamins on line.  Thiamine TTFD comes in a capsule, but tastes really strongly of garlic, so be prepared if your Gatorade tastes funny.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.