Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Im New


kevbogreen

Recommended Posts

kevbogreen Newbie

Hi...my name is Kevin im 16 and i live in Arkansas...i just found out that i have celiac diease...and i was j/w if it was hard to cope with or easy to mannage? I would apprecate ur responses...

Kevin


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skoki-mom Explorer

Hi Kevin,

I'm new to all this as well. Just wanted to say welcome and I'm sure you'll find some good information and support here. It's been pretty overwhelming the last week for me, but I'm doing ok and finding there are lots of gluten-free products to try, and of course the naturally gluten-free food as well! So far I'm not starving!

tarnalberry Community Regular
Hi...my name is Kevin im 16 and i live in Arkansas...i just found out that i have celiac diease...and i was j/w if it was hard to cope with or easy to mannage? I would apprecate ur responses...

Kevin

<{POST_SNAPBACK}>

Welcome to the board. I'm sorry you need to be here, but glad you found us.

As for how hard celiac disease is to cope with, it pretty much depends on how well you cope with the diet. And that varies widely. If it means that you have to greatly change your eating habits, and you also are very uncomfortable being "different" from the crowd, it'll be harder than if neither of those is true. But it's a learning curve, and it'll take some time to learn and adjust to the diet.

Are your parents supportive of the diet and will be helping you keep the kitchen/food safe?

KaitiUSA Enthusiast

Welcome to the board.It is very easy to manage as long as you are 100% gluten free...if you stay gluten free you are good to go. You have to be extremely careful. It may seem a bit overwhelming at first because gluten is hidden under so much but then you'll see how much we can still have and good substitutes for the stuff we now can't have. If you need any info or someone to talk you can contact me anytime. I am 18 and I was diagnosed when I was 16 too.

It can be hard, especially at first, when people make comments about it...some people do not understand it.

kevbogreen Newbie

yea my parents have been supportive so far...but its only been about a week since i found out...so i dont know how far they will go...thanks for eveyones responses...

Kevin Green

Cindy Chabot Newbie

Hi Kevin

I have been recently diagnosed along with my 16 year old son. There are a lot of gluten-free choices available which help to make dealing with this disease easier. The hard part is going to restaurants or just out with people, you have to be careful not to be glutened. I have found this forum an excellent place to find out information. My son is finding the diet not to bad to deal with. I hope you find some gluten-free food that you like.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,612
    • Most Online (within 30 mins)
      7,748

    Rotary
    Newest Member
    Rotary
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • itsdunerie
      Dang......did it again and yeah I should admit I am 63 with clumsy phone thumbs. I started feeling better quickly and a doctor a year later said I had to eat  poison (gluten) every day for a month so he could formally diagnose me and NO FREAKING WAY. I couldn't then and can't imagine putting my body through that crap (no pun intended) on purpose ever again.  Why ingest poison for a month to have some doctor say Hey, All you Have To Do Is Never Eat poison Again.. 
    • itsdunerie
      Poop head, sorry, but I accidentally posted and can't figure out how to continue my post. My long winded post was going to tell you that after I figu
    • itsdunerie
      15 years ago my best friend 'diagnosed' me as Celiac. Her little nephew had been formally diagnosed and her observations of me dealing with brain fog, stomach problems and other stuff had her convincing me to try going gluten free. Oh my heavens, within 3 days, no lie, I felt human again. Took me about a y
    • Scott Adams
      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.