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Celiac Or Something Else?


pinkpandapants

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pinkpandapants Rookie

Hello! I recently have been looking into the possibility of having Celiac disease, and stumbled upon this forum. After lurking for a bit, I thought I'd share my symptoms and see what other people think.

I was originally just looking into food intolerance in general, because a LOT of foods disagree with me. I've toyed with the idea that I may be intolerant to foods (esp. dairy) for a while now, but I've always been afraid to look into Celiac disease because I love my bread, crackers and pasta and didn't want to give them up! I always thought that it was something else making me sick when I ate wheat with other foods - but now I'm not so sure. Once I started researching, everything started falling into place. Anyway, here are my symptoms:

*Various pooping problems

-Diarrhea: 1-2 semi-liquid stools in the morning at least 4-5 times a week, for at least the past year or so!

-If not liquidy stools, then very soft and difficult to wipe away

-Occasional constipation - usually small, thin poops that are difficult to get out, and sometimes they're kind of pale

-Very rarely do I have a normal bowel movement!!

*Acid reflux

*Stomachaches

*Intestinal cramping/discomfort (feels like something clenching my lower intestine)

*Lots of burping/gas/bloating

*Thyroid disease


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Bubba's Mom Enthusiast

Hello! I recently have been looking into the possibility of having Celiac disease, and stumbled upon this forum. After lurking for a bit, I thought I'd share my symptoms and see what other people think.

I was originally just looking into food intolerance in general, because a LOT of foods disagree with me. I've toyed with the idea that I may be intolerant to foods (esp. dairy) for a while now, but I've always been afraid to look into Celiac disease because I love my bread, crackers and pasta and didn't want to give them up! I always thought that it was something else making me sick when I ate wheat with other foods - but now I'm not so sure. Once I started researching, everything started falling into place. Anyway, here are my symptoms:

*Various pooping problems

-Diarrhea: 1-2 semi-liquid stools in the morning at least 4-5 times a week, for at least the past year or so!

-If not liquidy stools, then very soft and difficult to wipe away

-Occasional constipation - usually small, thin poops that are difficult to get out, and sometimes they're kind of pale

-Very rarely do I have a normal bowel movement!!

*Acid reflux

*Stomachaches

*Intestinal cramping/discomfort (feels like something clenching my lower intestine)

*Lots of burping/gas/bloating

*Thyroid disease

Skylark Collaborator

Yes, insist on celiac testing. Your symptoms are pretty typical.

mommida Enthusiast

Start working with a gastroenterologist. You have symptoms for Celiac, but also another short list of disorders too. If you are Celiac, there is another short list of possible disorders that are higher odds for a Celiac too. Some of these need to be diagnosed by an endoscopy with biopsy. (This would be a good idea to see what damage GERD has done or if it could be Eosinophilic Esophagitus.)

pinkpandapants Rookie

So I went to my new doctor today, and she was awesome! She ordered just one Celiac test for me, the tTG-IgA. Is that one generally pretty accurate? I'm still new to all of this Celiac terminology, haha. My doctor also referred me to an allergist (because I have a whole lot of other food problems going on) and said that we'd figure out what to do gluten-wise after I get my tTG-IgA results back. I think she said that whether it was conclusive or not, she'd refer me to a gastroenterologist. So I'm very hopeful at the moment that my problems are on the way to being solved!

Skylark Collaborator

No, having only one celiac test is not accurate at all and TTG-IgA is lacking in sensitivity. It only picks up maybe 80% of people with celiac disease. Most of the research articles I've read lately suggest DGP-IgG along with the TTG-IgA. If you're positive on either you are very likely celiac.

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    • lalan45
      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
    • SamAlvi
      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
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