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Celiac Or Something Else?


pinkpandapants

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pinkpandapants Rookie

Hello! I recently have been looking into the possibility of having Celiac disease, and stumbled upon this forum. After lurking for a bit, I thought I'd share my symptoms and see what other people think.

I was originally just looking into food intolerance in general, because a LOT of foods disagree with me. I've toyed with the idea that I may be intolerant to foods (esp. dairy) for a while now, but I've always been afraid to look into Celiac disease because I love my bread, crackers and pasta and didn't want to give them up! I always thought that it was something else making me sick when I ate wheat with other foods - but now I'm not so sure. Once I started researching, everything started falling into place. Anyway, here are my symptoms:

*Various pooping problems

-Diarrhea: 1-2 semi-liquid stools in the morning at least 4-5 times a week, for at least the past year or so!

-If not liquidy stools, then very soft and difficult to wipe away

-Occasional constipation - usually small, thin poops that are difficult to get out, and sometimes they're kind of pale

-Very rarely do I have a normal bowel movement!!

*Acid reflux

*Stomachaches

*Intestinal cramping/discomfort (feels like something clenching my lower intestine)

*Lots of burping/gas/bloating

*Thyroid disease


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Bubba's Mom Enthusiast

Hello! I recently have been looking into the possibility of having Celiac disease, and stumbled upon this forum. After lurking for a bit, I thought I'd share my symptoms and see what other people think.

I was originally just looking into food intolerance in general, because a LOT of foods disagree with me. I've toyed with the idea that I may be intolerant to foods (esp. dairy) for a while now, but I've always been afraid to look into Celiac disease because I love my bread, crackers and pasta and didn't want to give them up! I always thought that it was something else making me sick when I ate wheat with other foods - but now I'm not so sure. Once I started researching, everything started falling into place. Anyway, here are my symptoms:

*Various pooping problems

-Diarrhea: 1-2 semi-liquid stools in the morning at least 4-5 times a week, for at least the past year or so!

-If not liquidy stools, then very soft and difficult to wipe away

-Occasional constipation - usually small, thin poops that are difficult to get out, and sometimes they're kind of pale

-Very rarely do I have a normal bowel movement!!

*Acid reflux

*Stomachaches

*Intestinal cramping/discomfort (feels like something clenching my lower intestine)

*Lots of burping/gas/bloating

*Thyroid disease

Skylark Collaborator

Yes, insist on celiac testing. Your symptoms are pretty typical.

mommida Enthusiast

Start working with a gastroenterologist. You have symptoms for Celiac, but also another short list of disorders too. If you are Celiac, there is another short list of possible disorders that are higher odds for a Celiac too. Some of these need to be diagnosed by an endoscopy with biopsy. (This would be a good idea to see what damage GERD has done or if it could be Eosinophilic Esophagitus.)

pinkpandapants Rookie

So I went to my new doctor today, and she was awesome! She ordered just one Celiac test for me, the tTG-IgA. Is that one generally pretty accurate? I'm still new to all of this Celiac terminology, haha. My doctor also referred me to an allergist (because I have a whole lot of other food problems going on) and said that we'd figure out what to do gluten-wise after I get my tTG-IgA results back. I think she said that whether it was conclusive or not, she'd refer me to a gastroenterologist. So I'm very hopeful at the moment that my problems are on the way to being solved!

Skylark Collaborator

No, having only one celiac test is not accurate at all and TTG-IgA is lacking in sensitivity. It only picks up maybe 80% of people with celiac disease. Most of the research articles I've read lately suggest DGP-IgG along with the TTG-IgA. If you're positive on either you are very likely celiac.

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      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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