Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh Big Time From Casein..possible?

GFreeMO

By GFreeMO
in Dermatitis Herpetiformis

Recommended Posts

GFreeMO Proficient
GFreeMO
Posted

I have a casein allergy. Is it possible for casein to flare up DH? I had some milk and butter and got my usual reaction but now since my DH is flaring on my elbows and pits again, I am thinking I had to have been glutened.

Anyone know?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

From what I have read, I do not believe casein causes eruptions.

Excerpted From Celiac Disease: The Hidden Epidemic. Dr. Peter H. R. Green and Rory Jones Chapter 11

..."DH is very erratic. Since the skin may not be rid of IgA deposits for more than 2 years after starting a gluten-free diet, flare- ups occur without obvious gluten ingestion.

It may take patients a substantial amount of time to erase years of IgA buildup in the skin."

A flare could also be due to inadvertent gluten ingestion, iodine, or the use of NSAIDS. Opinions vary as to whether topical lotions and creams have ingredients that might trigger a reaction and stress may exacerbate the flares, although there is no science behind the stress link.

If the patient has DH, it may take years for it to get better. (Green )

I know that some people also report a huge improvement following a low salicylate diet .

GFreeMO Proficient
GFreeMO
Posted
  • Author

Thanks.. must have been the sals or I was glutened and mistook it for casein. This stuff is so hard to figure out! Since my gluten, corn and casein reactions are all the same, sometimes I never know!

GFreeMO Proficient
GFreeMO
Posted
  • Author

I found this on some literature from a neuropath.

A milk-free diet may improve symptoms of dermatitis herpetiformis. The intake of milk products intensified symptoms of DH in two patients despite adherence to a gluten-free diet and a milk and gluten-free diet was effective.

- Since I already had a Dh flare from the NSAIDS I took a few weeks ago, maybe this just made it worse.

pricklypear1971 Community Regular
pricklypear1971
Posted

I found anything that "irritates" me irritates DH if it's flaring.

In the beginning I had neuro + DH aggravated by MSG and that was awful. How do you deal with your armpits on fire when your brain doesn't function and your heart is going 100 mph and you're paranoid and angry???

OMG.

Yes, Mo, until you get DH to lay down a gnat fart will probably make it worse. I'm sorry, it sucks.

GFreeMO Proficient
GFreeMO
Posted
  • Author

I found anything that "irritates" me irritates DH if it's flaring.

In the beginning I had neuro + DH aggravated by MSG and that was awful. How do you deal with your armpits on fire when your brain doesn't function and your heart is going 100 mph and you're paranoid and angry???

OMG.

Yes, Mo, until you get DH to lay down a gnat fart will probably make it worse. I'm sorry, it sucks.

UGH! Thanks

IrishHeart Veteran
IrishHeart
Posted

Yes, Mo, until you get DH to lay down a gnat fart will probably make it worse. I'm sorry, it sucks.

gnat fart :lol:

DH is not funny, but you are. I bet you made MO laugh.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,128
    • Most Online (within 30 mins)
      7,748
    Steve715
    Newest Member
    Steve715
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Just wanted to add that checking B12 and Vitamin D only is not going to give an accurate picture of vitamin deficiencies.   B12 Cobalamine needs the seven other B vitamins to work properly.   You can have vitamin deficiency symptoms before the B12 blood level changes to show deficiency.  You can have "normal" B12, but have deficiencies in other B vitamins like Thiamine and Niacin, for which there are no accurate tests. Take a B Complex supplement with all the B vitamins.  Take additional Thiamine B 1 in the form Benfotiamine which has been shown to promote intestinal healing.  Thiamine Mononitrate found in most vitamin supplements is not easy for the body to utilize.  What makes thiamine mononitrate not break down on the shelf also makes it hard for the body to absorb and utilize.  Thiamine and Niacin B 3 deficiency symptoms include anxiety, depression and irritability.  The brain uses more Thiamine than other organs.  Take the B Complex and Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and look for health improvements in the following weeks.
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Hello, @rei.b, Ehlers Danlos syndrome and Celiac Disease can occur together in genetically predisposed individuals.  Losing ones gallbladder is common with celiac disease. I'm glad Naltrexone is helping with your pain.  Naltrexone is known to suppress tTg IgA and tTg IgG production, so it's not surprising that only your DGP IgG and DGP IgA are high.   Have you tried the Autoimmune Protocol diet designed by Dr. Sarah Ballantyne, a Celiac herself?  The AIP diet helps lower inflammation and promotes intestinal healing.   The AIP diet is a Paleo diet that eliminates foods that can cause intestinal inflammation until you heal on the inside, then more foods can be added back in.  The low histamine AIP diet will help reduce inflammation further.   Histamine is released as part of the immune response in celiac disease.  Foods also contain various amounts of histamine or provoke histamine release.  Lowering the amount of histamine from foods helps.  The body, with help from B vitamins, can clear histamine, but if more histamine is consumed than can be cleared, you can stay in an inflammatory state for a long time. Cutting out high histamine foods is beneficial.  Omit night shades which contain alkaloids that add to leaky gut syndrome found with celiac disease.  Night shades include tomatoes, peppers including bell peppers, potatoes and eggplants.  Processed foods like sausages and gluten-free processed products are high in histamines.  All Grains are removed from the diet because they are inflammatory and provoke histamine release. Blood tests for deficiencies in B vitamins are notoriously inaccurate.  You can have vitamin deficiency symptoms before blood levels show a deficiency.  Blood levels do not accurately measure the quantity of B vitamins stored inside the cells where they are utilized.  The brain will order stored vitamins to be released from organs into the blood stream to keep the brain and heart supplied while deficiency occurs inside organs, like the gallbladder.  Gall bladder dysfunction is caused by a deficiency in Thiamine Vitamin B 1 and other B vitamins.   The eight essential B vitamins are water soluble and easily lost with diarrhea and constipation, and the malabsorption and inflammation that occurs with celiac disease.  Because they are water soluble, the body can easily excrete any excess B vitamins in urine.  The best way to see if you are deficient is to take a B Complex and Thiamine in the form Benfotiamine and look for health improvements in the following weeks.  Most B Complex supplements contain Thiamine Mononitrate which is not bioavailable.  The body has a difficult time utilizing thiamine mononitrate because it doesn't break down easily.  Benfotiamine has been shown to promote intestinal healing.   Remember your intestines are in a damaged, permeable state.  Treat them tenderly, like you would a baby until they heal.  You wouldn't feed a baby spicy bell peppers and hard to digest corn and nuts.  Change your diet so your intestines can heal.   I use a combination of B12 Cobalamine, B 6 Pyridoxine, and B1 Benfotiamine for pain.  These three B vitamins have analgesic properties.  They relieve pain better than other otc pain relievers. 
    • Mari
      My only proof

      By Mari · Posted

    • trents
      High DGP-A with normal IGA

      By trents · Posted

      Sorry, I think I got you mixed up with another poster.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I hadn't been eating gluten free before having the antibody test done. I started eating gluten free after having the test done because the gastro PA told me to eat gluten-free for 6 months. I'm now 3 months in.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.