Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Have News

Mateto

Recommended Posts

Mateto Enthusiast
Mateto
Posted

Hello everyone,so of you know how I've been having problems getting a proper diagnosis. Today I finally got my blood results back, and they were negative for coeliac disease.

She will not send me for a biopsy, but she said I was gluten intolerant and sensitive. However, I know I have more symptoms than this, and I have diagnosed myself, I suppose you could say, with coeliac. She told me to stop eating gluten, which I've been gradually doing the past few days, and today is my first fully gluten free day! So here I am, excited that within a few months, I might actually feel better for once :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

Well, I'm happy if you're happy :).

I dont remember, did you have vitamin deficiency panels run? That maybe the only thing to look at, if it wasn't already.

Im glad you're excited and I wish you much luck,

Mateto Enthusiast
Mateto
Posted
  • Author

Yes I did. I was told I'm anaemic....ANOTHER symptom of coeliac disease the doctor ignored. :P

pricklypear1971 Community Regular
pricklypear1971
Posted

Well, take some iron (I'm assuming you're talking about iron) and make them retest it in 6 months.

IrishHeart Veteran
IrishHeart
Posted

There are several forms of anemia--

B-12 deficiency, Folate deficiency, Iron deficiency.

What exactly did she say??

How much did she say to supplement with?

Mateto Enthusiast
Mateto
Posted
  • Author

My iron was HIGH on the last test....hemaglobin (or whatever) was low. Which doesn't make sense, I was re-tested for that only today, because she said the results were probably wrong. But yet I'm still anaemic.

Anyways I'm not too concerned, because I've been going gradually gluten free the past few todays and today completely. One symptom has stopped! I know it won't be for a few months until feeling completely better, but my only challenge is getting my family members to take this seriously.

I can NOT stress how important cross-contamination is. THEY JUST WON'T UNDERSTAND!

pricklypear1971 Community Regular
pricklypear1971
Posted

You need to get a copy of all your labs. Plus the retest.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mateto Enthusiast
Mateto
Posted
  • Author

You need to get a copy of all your labs. Plus the retest.

I think I'd have better luck trying to drown a fish :lol:

My Doctor wouldn't let me see them!

Because of our free healthcare under the MCP/NHS, Private practitioners are few and far between. My Doctor (I feel) is only in it for the money, but she told me that apparently she's "told me everything she can" <_<

She also said my hemaglobin will fix itself eventually. I really don't understand her, she gives me a million different answers. The main thing is: I'm on the road to feeling better :)

pricklypear1971 Community Regular
pricklypear1971
Posted

I think I'd have better luck trying to drown a fish :lol:

My Doctor wouldn't let me see them!

Because of our free healthcare under the MCP/NHS, Private practitioners are few and far between. My Doctor (I feel) is only in it for the money, but she told me that apparently she's "told me everything she can" <_<

She also said my hemaglobin will fix itself eventually. I really don't understand her, she gives me a million different answers. The main thing is: I'm on the road to feeling better :)

There must be a law that forces them to disclose.

Seriously.

Mateto Enthusiast
Mateto
Posted
  • Author

I think so!

She called me today because I had more bloodwork done. Out of an act of kindness, at least she told me my hemaglobin is gone back to normal and so is my iron.

I haven't been gluten-free for very long, but I was when I had these tests, so that might have something to do with it.

This doctor is only filling in for my doctor who is in Australia at the moment, so I won't pursure anything legal yet. My normal doctor is excellent, she knows what she is doing, so I know if I ask her for my records she'll probably give me a copy :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total...
    2. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

      hi, i want to say thank you to you and @trents . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood t...
    3. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Just diagnosed today

      Thank you this really helped.
    4. Samanthaeileen1
      - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong. yeah I think we had better test us and the other kids as well.
    5. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,810
    • Most Online (within 30 mins)
      7,748
    rdwells
    Newest Member
    rdwells
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Just diagnosed today

      By JoJo0611 · Posted

      Thank you this really helped. 
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.