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Gluten Free... Before And After.

phil1

By phil1
in Coping with Celiac Disease

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phil1 Apprentice
phil1
Posted

I'm almost possitive I have celiac. I was incredibly sick a few years ago then cut out gluton foods and got much better. But I am far from 100% still... I still have problems with several things. Life is much better than when I was eating gluten and I thought I was going to die... but I don't understand why I'm still not back to normal. Below I've listing the things that I used to have before gluton free and what I still have afterwards. Maybe you guys can help me make sense of why these things haven't gone away. I haven't been able to find a doc who's not an idiot yet, (I'm going to my 3rd on May 11th) so until then I'd like to rely on your suggestions. Let me know what you think.

Before I was gluton free I had...

-Major stomach pains, expecially after eating. Shooting pain in my abs.

-Constant, ravenous hunger.

-Major muscle cramps in my legs, to the point of not being able to run a mile

-fever... temp above 100

-twitching muscles

-lots of gas

-diarrhea

-brain fog

-dizziness

-balance problems

After gluton free

-Constant hunger, but not nearly as bad as before (still not normal amount though)

-muscle cramps (can run farther then before but still can't run more than a mile at a time)

-twitching muscles

-dizziness

-brain fog

Why do I still have these problems after being gluton free for a few years?

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pricklypear1971 Community Regular
pricklypear1971
Posted

Have you had your vitamin and mineral levels checked? Iron panel, d, b's, cal/mag, k. Many Celiacs are low in at least one.

Have you had your thyroid checked? Ask for a tsh and TPO ab test.

MitziG Enthusiast
MitziG
Posted

A few possibilities come to mind- are you certain you are 100% gluten-free? Its tricky business, gluten is everywhere and even tiny amounts could be responsible for your symptoms.

What about cross contamination? Are you in a shared household with gluten eaters? If so, you need your own utensils, cutting board, dishes, toaster, etc to stay safe.

What about other food intolerances? Dairy intolerance is very common amongst Celiacs, and can often not show up right away.

Definitely request some bloodwork as mentioned above. Deficiencies in B, D, K and E are common in Celiacs as those are fat soluble vitamins. Iron deficiency is also common. Many of your symptoms could be explained by a deficiency.

Thyroid as mentioned, cdefinitely!

You are on the right path, I hope you get some answers!

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