Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Tired

Stubborn red head

Recommended Posts

Stubborn red head Apprentice
Stubborn red head
Posted

I have been messing with my diet here and there testing out different things, some I have been lucky and happy :) I tried but most things I have regretted dearly :( ! I am going to take a break on trying different things for a while and try again in a couple months to expand my diet more than it is. I ate tonight at Golden Corral. I know stupid me but my husband likes it from time to time so I ate a salad and a piece of fish from the skillet fish, and some icecream with carmel from a pump. Now I am having issues with my stomach. I thought I was playing it safe. Not getting any of the hot foods and keeping to a salad, and a piece of fish. I was wrong!!! :(

I know I have only been on the diet for a few weeks, and I feel like I am giving up to early, and shouldn't be dealing with this many issues right off the bat but I am. Could I be over reacting? I guess but I don't like running to the bathroom within 30 minutes of leaving the table and then there is the bubbly belly for the rest of the night. :angry:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sa1937 Community Regular
sa1937
Posted

If everything you ate was indeed gluten-free, I would think the possibility of cross-contamination would be huge at Golden Corral.

dilettantesteph Collaborator
dilettantesteph
Posted

It's only been a few weeks. There is a lot to learn. You need to be patient with yourself. It will be worth it in the end. I felt like I was aging in reverse for a long time as I got better and better. I kept finding new symptoms which I hadn't even known were caused by gluten. It was worth every bit of frustration and difficulty. Good luck.

Stubborn red head Apprentice
Stubborn red head
Posted
  • Author

It's only been a few weeks. There is a lot to learn. You need to be patient with yourself. It will be worth it in the end. I felt like I was aging in reverse for a long time as I got better and better. I kept finding new symptoms which I hadn't even known were caused by gluten. It was worth every bit of frustration and difficulty. Good luck.

Thnaks, for your encouragement. I dont want to go back to gluten.. ever! :D

I'm just feeling frustrated by all the things that are making me sick. I knew doing this there would be a learning curve. My parents are gluten free and have been for 10 years now. I know that thy cheat a little bit here and there they tell me that they do, it took them 5 years to be able to eat small amounts of gluten without having issues. (small amounts would mean eating something like the filling out of a pie and leaving the crust, sushi the black wrap has wheat starch in it, most fast food restaurants due to CC) I know its going to take some time, I have the hardest time around my husband, its not his fault but he loves to eat and that used to be one of our things going out to eat, but now it seems that's out the door for the most part. (hubby works out of town through the week)

mamaw Community Regular
mamaw
Posted

I chuckled at your comment of( "over re-acting).. I think as humans we think of the worse & hope for the best...

The more serious you are at the beginnning the better you will be at the end ...

CC is big anywhere you eat out but salad bars have tons of CC. Maybe you should have spoken to the mgr &asked if you could have a salad with whatever veggies from the storage bucket, still not safe but better than salad from the bar area....not even sure they would do this...never hurts to ask..

You are still so new to this lifestyle change... We all wish it could easy & fast but for most NOT... Also keep it simple to give your body a chance to do its healing..Tyr not to focus on what you can't do or eat but what you can have... Your mental attitude is just as important as healing your intestinal issues..body, mind & spirit all three must be in order for a complete healing to take place...

Take a deep breath, try to relax a little & enjoy knowing you are on your way to better health..positive thinking please.....

hugs

Stubborn red head Apprentice
Stubborn red head
Posted
  • Author

I am doing my best to stay positive but when I get hit with unexpected CC (ok slightly expected) I get kinds discouraged. I'm thinking its time to put my adventurous side, aside and just stick to the basics and eat at home for a while.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Roses8721
      - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    2. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      GI DX celiac despite neg serology and no biopsy

      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    3. Scott Adams
      - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    4. Scott Adams
      - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy

      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover...
    5. Ginger38
      - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,472
    • Most Online (within 30 mins)
      7,748
    kygirlsusan
    Newest Member
    kygirlsusan
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Roses8721
      gluten-free Oatmeal

      By Roses8721 · Posted

      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    • Scott Adams
      Shingles - Could It Be Related to Gluten/ Celiac

      By Scott Adams · Posted

      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    • Scott Adams
      Challenges eating gluten before biopsy

      By Scott Adams · Posted

      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.