Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated, Upset, Concerned...

Ninja

By Ninja
in Coping with Celiac Disease

Recommended Posts

Ninja Contributor
Ninja
Posted

I've not been feeling good for the past couple of weeks and it's really starting to make me doubt whether I'm on the right path. It seemed to start with a trip I took a month ago when I was cc'd over and over. Well then I pet-sat and received glutteny kisses from 2 dogs as they were still chewing their treats. Then it was my conditioner, then it was the dog shampoo and eating with my hands directly after ( :blink: ) and then the grapes last night (no gluten, just high salicylates). I've been trying to go low sals to see if that helps at all given the array of foods that don't seem to agree with me. It's the only thing that makes sense because my reactions seem to follow no pattern (except that I react to higher sals foods) and sals are cumulative, I've learned. I'm having a really difficult time giving up fruit. If there's one food group I would never want to give up, it would be fruit.

I've been supplementing with vitamin D, B12 and a multivitamin, taking probiotics and digestive enzymes. I'm worried that I'm creating more issues by doing this. I should be feeling better not worse, right?! Some days are fantastic – like amazing... and then this happens. I know I need to give myself time to heal, but I'm worried that I'm doing more harm than good here. It's so frustrating. On top of that my mom is so concerned about all of this and how I'm feeling. It breaks my heart when she asks how I am feeling and I can't tell her that I'm happy, or that what we are doing is working... My dad (who is the gluten eater) went away for a week and I noticed an improvement with my symptoms. Maybe it was just coincidence? I know I could be more careful in the kitchen... :unsure:

I just want to feel better and I don't want to do the wrong things. I feel so clueless about it all.

Thanks for listening.

~Laura

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFreeMO Proficient
GFreeMO
Posted

I had some apple cider over the weekend (very high in sals) and I feel glutened from it. If you have a problem with sals, this could be it. I am struggling with the same thing as you right now. Check out the sals thread in the DH forum. There is a lot of great info there.

BTW, your dog is adorable!!! Whats his/her name?

Ninja Contributor
Ninja
Posted
  • Author

I'm sorry you're feeling so crappy. :( I've been following some of those threads

GFreeMO Proficient
GFreeMO
Posted

I'm sorry you're feeling so crappy. :( I've been following some of those threads – I don't think I would have figured it out otherwise!

The dog in the avatar is named Honey and the one in my profile picture is Ally – they are mother and daughter. :)

Sweet babies! I love their names.

Hopefully we will both be feeling good soon! Hang in there.

BTW, I can not go near grapes. They leave me feeling glutened from the sals. I find that I can tolerate red apples and strawberries and pears. LIke you said, they add up over time though so I try to limit it to one fruit a day and try to stay away from the high sals ones. (although, I drank liquid sals on sat. in the apple cider) and I can def. feel it.

Ninja Contributor
Ninja
Posted
  • Author

I learned my lesson – stay with known safe foods! I seem to be able to tolerate those, too (yay!). Bananas have definitely been a staple.

Very complicated. :huh:

Thanks – you too! :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,154
    • Most Online (within 30 mins)
      7,748
    J. Nichols
    Newest Member
    J. Nichols
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.5k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Dora77
      Energy drink can has stains - potential gluten?

      By Dora77 · Posted

      It wasnt really eye catching, but they were small stains which looked like dried out liquid. I dont know if it was normal or shouldve been just completely clean. But if someone didnt pay attention, it wouldnt be noticeable.
    • RMJ
      Energy drink can has stains - potential gluten?

      By RMJ · Posted

      If there were stains or particles on a drink can in an area that would either contact the drink or my lips, I would wash that can whether or not I had celiac disease.
    • Bebygirl01
      Not Just Wheat, Barley and Rye Glutens that make us sick

      By Bebygirl01 · Posted

      You are on the money, but I should also add that Italian, French and other countries research shows exactly what I have said. Our FDA is behind the ball when it comes to this research and I am hopeful that Kennedy can straighten this out soon, albeit he is giving the food companies too long to just remove food dyes from our foods when in fact they have to remove all that in order to sell for example, in the UK as they aren't allowed such things. The food companies and the cola companies have also changed their formulas to have just sugar in them instead of corn gluten aka high fructose corn syrup and corn starch in them. Misinformation here in America is a very dangerous thing. I also have been grain free for a long time now and at no time can I even have the smallest amount of corn gluten -I recently got glutened from a supplement that claimed to be grain free yet upon further research I found that it had erythritol (corn sugar) in it and that is what got me sick for 7 days straight. I am not hopeful to ever be able to add back into my diet any of the grain glutens, but perhaps those who were only gluten intolerant might be able to, but for me being celiac, I have no hope in that. Thank you for the article, I will add it to my collection of research as I am collecting everything I can find on this subject and posting it on X as well as other places.  I also don't use psuedo grains i.e. quinoa as that also reacts negatively with my gut, so I am 100% a cassava/tapioca/arrow root girl and that is my go to bread replacement. There are some new items made with chicpea/green peas that are sold as rice alternatives, i bought one to try but haven't yet. So food companies are getting creative, but like you said, I am fresh whole foods and don't buy many processed foods, I make my own cheese, ketchup, pickles, jams, etc.
    • Dora77
      Energy drink can has stains - potential gluten?

      By Dora77 · Posted

      There were small spots (stains) on the drinking area at the top of the energy drinks can from the store that looked as the same color as milk — maybe oat milk (Hafermilch) or a wheat-based drink (Weizendrink), but I’m not sure what it was. There were also some particles that looked like either flour or dust, but not many. Could it have been a gluten-containing drink spilled onto the can or just regular small stains which I shouldn‘t worry about? Do you watch out for stuff like that or am I overthinking? Would it cause damage to a celiac?
    • Scott Adams
      Not Just Wheat, Barley and Rye Glutens that make us sick

      By Scott Adams · Posted

      This is such an important discussion! While corn gluten (zein) is structurally different from wheat gluten, emerging research suggests some celiac and gluten-sensitive individuals may still react to it, whether due to cross-reactivity, inflammation, or other factors. For those with non-responsive celiac disease or ongoing symptoms, eliminating corn—especially processed derivatives like corn syrup—might be worth exploring under medical guidance. That said, corn’s broader health impact (GMOs, digestibility, nutritional profile) is a separate but valid concern. Like you mentioned, ‘gluten-free’ doesn’t automatically mean ‘healthy,’ and whole, unprocessed foods are often the safest bet. For those sensitive to corn, alternatives like quinoa, rice, or nutrient-dense starches (e.g., sweet potatoes) can help fill the gap. Always fascinating (and frustrating) how individualized this journey is—thanks for highlighting these nuances! Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...