Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Detecting A Casein Problem....

MitziG

Recommended Posts

MitziG Enthusiast
MitziG
Posted

I just passed the 1 yr gluten-free mark and feel SO much better. Still not as energetic as I would like, but getting there. My question is regarding dairy. I have discovered the major adult acne I am fighting goes away if I am 100% casein free. Like nothing that even says (may contain milk) even a little bit breaks me out. Giving up dairy products was easy, but cutting out ALL casein is rough. I fall off the wagon constantly. So hard to not have butter! Or Hershey bars! And so I still am fighting the acne. But that seems to be the ONLY issue. I don't have any stomach pain or bloating.

Trying to determine if it is casein itself that is the problem, or hormones in dairy that I am sensitive to.

My antibody levels to gluten are now 0. I still have some floaty stools though, and some that are mucousy. (Sorry for the TMI

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MitziG Enthusiast
MitziG
Posted
  • Author

Argh. Phone froze so had to post halfway thru. Anyway. I also just had a lipid panel done. Cholesterol good, HDL very high, LDL low. Triglycerides were 42. From what I have read, that indicates malabsorption. So....is it likely dairy is causing continued malapsorption? Cuz I eat way too much sugar and if anyone should have HIGH triglycerides, it is me.

Or does it just take awhile for them to build up after going gluten-free? I guess I am wondering if I need to be casein free for reasons other than vanity. Perhaps that would motivate me!

Skylark Collaborator
Skylark
Posted

If even traces of casein get you I doubt it's hormones in dairy. How could you possibly get enough of a hormone to react to in a "may contain milk" product?

I know how hard it is because I'm testing casein-free right now. I highly recommend Earth Balance for butter substitute. Chocolate is hard if you're super sensitive. I think people eat the Enjoy Life semi-sweet chocolate chips and chocolate bars.

Edit: I just saw your second post. I think it makes a LOT of sense to go strict casein free for a few months and see if it helps the malabsorption. If it gives you acne, who knows what else it is doing? Also being a sugar fiend can keep your gut bacteria out of whack. Might want to try to moderate it a little. :)

MitziG Enthusiast
MitziG
Posted
  • Author

Hmmm. You make a good point about the hormones. Sugar fiend indeed. Been trying to stop but I am SO addicted to chocolate! Haven't been able to find the enjoy life chocolate around here- some dairy free chocolate would definitely help! I will look for the earth balance though.

So...icky question...but...is it normal for SOME stools to float? I mean, I'm talking 2-3 little floaters and several sinkers in every bowel movement. And I go about 5 times a day. (Which seems kind of excessive)

Skylark Collaborator
Skylark
Posted

Floating stools can be a sign of fat malabsorption. It would fit in with the lipid panel results. This seems like a really sensible article I turned up in Google.

Open Original Shared Link

MitziG Enthusiast
MitziG
Posted
  • Author

Hmmmm. Ok. Guess I better go hunting for some dairy free goodies today so I can stick to this. Probably what needs to be done to get over that last little hump....

benXX Rookie
benXX
Posted

Hmmmm. Ok. Guess I better go hunting for some dairy free goodies today so I can stick to this. Probably what needs to be done to get over that last little hump....

As you like chocolate so much, try cocoa-powder with coconut milk.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MitziG Enthusiast
MitziG
Posted
  • Author

Good idea- except I noticed I am breaking out even from dairy free chocolate. Also from soda- so may be chocolate, sugar, caffeine...or all 3! Trying to eliminate all inflammatory foods now until I get to the bottom of this!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748
    ZENken
    Newest Member
    ZENken
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.