Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

As If Gluten Intolerance Wasn't Enough: Now It's A Whole Slew Of Other Foods!


jenny0

Recommended Posts

jenny0 Newbie

Hi everyone, I am new to this forum, but not new to a gluten free lifestyle. I found out I was gluten intolerant almost 10 years ago and have been gluten free ever since, to the best of my ability. I have seen many improvements to my health, and to all outward appearances, seem healthy. But haven't been able to lick the mild hypo-thyroid, the the osteopenia (I'm 48), and I'm not sure where my adrenals stand. I control blood sugar with my diet. Anyway, long story short, I just recently decided to check to see if I have other food intolerances that are holding me back. So, did the panel enterolab offers: gluten,rice, corn, soy,milk, eggs, walnuts, beef, chicken, tuna, pork, and white potatoes.

I am "most" reactive to RICE, corn, soy, beef, pork, walnuts and white potatoes. They recommend also that I stay away from all nightshades (because of the reaction to white potato) AND eggs and dairy (because although I didn't show a reaction I may be one of 1 in 500 people who don't make the Iga that shows up in the testing) (?) I'm afraid this new knowledge brings up more questions than it answers.. if I'm sensitive to all of these foods - how many more may be out there that I didn't test for? I just came off the Colorado Cleanse - at the core of it is a period of eating only rice and mung beans, which are supposed to be super easy to digest, and healing to the gut - only to find out that RICE is one of my no-no foods. I am overwhelmed. Am thinking of doing broader testing... because what's the point of putting so much energy into eating well if you don't know what's hurting you (rice - a staple gluten-free food, for example). Going gluten free is EASY compared to this. Help! anyone else having this dilemna? Any advice for me? I don't have insurance, don't have a doc that understands gluten issues and testing -it's all me. I'm willing to do the work but not sure where to start. So far, I'm trying to figure out how to live without rice, corn and soy - baking not a problem, but what to substitute for rice. Went to the grocery store and realized that where I used to be able to buy 10% of what's in there, now it's more like 1%. I'm gonna get familiar with millet (hope I'm not sensitive to that!). Thanks for any tips you might have : )

Jenny


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Juliebove Rising Star

Sorry, I am unfamiliar with the test that you had done. Is that for true allergies (IgE) or intolerances? If intolerances it is possible you can eventually add rice back into your diet. It's also possible that your eating rice daily could have brought about the intolerance. It's usually best to vary your diet if you can.

Michelle1234 Contributor

Hi Jenny,

I also developed a bunch of food allergies after 5 yrs on a gluten free diet. I got a head to toe skin reaction with white pustules that itched like crazy and my stomach hurt any time I ate. My testing showed I was reacting to cow dairy, goat dairy, egg (both whites and yolks), beef, lamb, rice, almond, peanut, avocado, blueberry, pineapple, red grape, asparagus, green been, green pepper, kidney bean and mushroom. And I got the simple food panel! No telling how many it would be if they had tested for the advanced panel. My Dr. ran a digestive profile with more info than I can begin to describe and we solved the problem with supplements and staying completely off the reactive food for 3 months. I can now eat all of it again. Basically I had a yeast problem and was low on one strain of probiotic.

Since you don't have a Dr. I can tell you about the supplements I took. But they aren't cheap. I looked on the Internet for the best price.

Allimax - 2 times per day for 8 weeks. With food. This was to take care of a yeast infection.

Candibactin BR - 2 times per day for 8 weeks. With food. This was to take care of a yeast infection and bad bacteria.

These two can be taken together.

The probiotic I needed more of was Ultra Bifidus DF (DF stands for dairy free). 1/2 tsp per day. But I didn't really take it every day because it is killed by the above two items so it can't be taken with them. Instead I tended to go with a broad base probiotic that I usually take and it was easier for me to remember to do it. I took it in the evening while doing the first two with breakfast and lunch.

He also recommended I take Saccharomyces Boulardii. 3 times per day. Also can't take it with the first two as it is supposedly a good yeast that he was replacing the bad yeast with. I couldn't really figure out how to work it in my schedule so did not take it most days.

After 8 weeks of doing this and staying off the offending foods for 3 months I reintroduced the foods and have had no problem with them. I think the first two supplements were the key. I also took and continue to take Digest Spectrum which is a broad base digestive enzyme with every meal. As mentioned above I also took and continue to take a good probiotic with the meal I did not take the supplements with.

Good luck!

Michelle

jenny0 Newbie

Sorry, I am unfamiliar with the test that you had done. Is that for true allergies (IgE) or intolerances? If intolerances it is possible you can eventually add rice back into your diet. It's also possible that your eating rice daily could have brought about the intolerance. It's usually best to vary your diet if you can.

Thanks for your reply.

Inolerances. I haven't tested to see about to what extent my villi are compromised, or to what extend I can digest fats, but I suppose that I can infer from all of these food intolerances that my digestive system still has issues, after all these years of a gluten-free diet. It is comforting to know, though, that I will probably be able to eat most foods again in the future.

jenny0 Newbie

Hi Jenny,

I also developed a bunch of food allergies after 5 yrs on a gluten free diet. I got a head to toe skin reaction with white pustules that itched like crazy and my stomach hurt any time I ate. My testing showed I was reacting to cow dairy, goat dairy, egg (both whites and yolks), beef, lamb, rice, almond, peanut, avocado, blueberry, pineapple, red grape, asparagus, green been, green pepper, kidney bean and mushroom. And I got the simple food panel! No telling how many it would be if they had tested for the advanced panel. My Dr. ran a digestive profile with more info than I can begin to describe and we solved the problem with supplements and staying completely off the reactive food for 3 months. I can now eat all of it again. Basically I had a yeast problem and was low on one strain of probiotic.

Since you don't have a Dr. I can tell you about the supplements I took. But they aren't cheap. I looked on the Internet for the best price.

Allimax - 2 times per day for 8 weeks. With food. This was to take care of a yeast infection.

Candibactin BR - 2 times per day for 8 weeks. With food. This was to take care of a yeast infection and bad bacteria.

These two can be taken together.

The probiotic I needed more of was Ultra Bifidus DF (DF stands for dairy free). 1/2 tsp per day. But I didn't really take it every day because it is killed by the above two items so it can't be taken with them. Instead I tended to go with a broad base probiotic that I usually take and it was easier for me to remember to do it. I took it in the evening while doing the first two with breakfast and lunch.

He also recommended I take Saccharomyces Boulardii. 3 times per day. Also can't take it with the first two as it is supposedly a good yeast that he was replacing the bad yeast with. I couldn't really figure out how to work it in my schedule so did not take it most days.

After 8 weeks of doing this and staying off the offending foods for 3 months I reintroduced the foods and have had no problem with them. I think the first two supplements were the key. I also took and continue to take Digest Spectrum which is a broad base digestive enzyme with every meal. As mentioned above I also took and continue to take a good probiotic with the meal I did not take the supplements with.

Good luck!

Michelle

Thanks Michelle : ) I don't think yeast is one of my problems.. but it's good to hear that you got that cleared up and are eating a more normal range of foods again. Like you, I am wondering: if I am intolerant of all these foods, what else am I eating that I didn't test for? Makes me want to test everything I eat - seems like nothing is off limits - not even fruits and veggies. Also frustrating: I don't react immediately to anything (even gluten) - it's more the long-term effect, like bone loss, foggy brain, acne, etc - so it's hard for me to determine what foods are having a deleterious effect.

  • 4 weeks later...
GF Jeannie Marie Newbie

I got to the point where I didn't know what to even try to eat cause of all the reactions I was having. The common thread I finally found for my issues was MSG. It hides everywhere and under names you'd never know unless you have done lots of research. Although this may not be your problem it could help if you eat only fresh foods and be sure you know where & what really is in your food.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,488
    • Most Online (within 30 mins)
      7,748

    Debruary
    Newest Member
    Debruary
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.