Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin Panel Results-- Help Please!


Mom-of-Two

Recommended Posts

Mom-of-Two Contributor

I have been gluten free almost 3 months, I just had a vitamin panel done to check iron, folate, vitamin D, B12 and thyroid panel. She told me at my follow up today that I am only slightly low on iron and folate----I was NOT low 6 momths ago so she says this is not an absorption/celiac issue, but probably due to cutting all grains. She gave me a lab order to get a full anemia panel this week, and again in 2 months, gave me a Rx for iron and B complex for folate. But, I wanted to see what you experts though of my numbers and what supplements I should purchase!

So I come home and do my own research, and see that my D and B12 levels ARE low even if not on her "reference scale" of normal ranges.

Here are my results:

Folate: 5.2 (>5.9)

Iron: 56 (60-150)

B12: 357 (180-914)

Vitamin D: 36

Also, thyroid tested normal, the results:

T4: 6.9 (6.1-12.2)

T3 Uptake: 42 (32-48)

FTI: 7.4 (5.9-13.1)

TSH: 0.95 (0.34-5.60)

Thanks so much!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

The results can't be interpreted without the ranges.

Mom-of-Two Contributor

Does anyone have suggestions? Also, what form of B12 should I get? I have heard the methyl B12 is better absorbed and bioactive, I have heard to use sublingual.

Thanks!

Ninja Contributor

I'm not the most experienced at this, but I take NOW brand methyl B12 lozenges.

~Laura :)

Victoria6102 Contributor

Get sublingual b12. As celiacs it is hard for us to absorb things before we heal so the sublingual allows it to be absorbed through the vessels under your tongue. There's a brand of vitamins that is completely gluten free that I use. I believe it's country farm. I'll look at them tomorrow and let you know for sure. :) good luck!

mushroom Proficient

You also need to be taking Vitamin D3 supplements. at least 1,000 iu/day.

Mom-of-Two Contributor

I already take 4000 units of D3 daily! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nursenation2 Rookie

I have struggled with my vit d for many years. I was at 9 when I started. Then hung around the teens for awhile. I even was on the prescription d of 50000 units twice a week. I started taking this d3 that is 10000 units and sublingual and I finally have a good vit d level. 10000 is the max daily dose. But the newest research is saying most people need to be taking more it improves brain function, sleep and even has ties to our heart function.

Mom-of-Two Contributor

I have my eye on some sublingual B12, the methyl version-- they have a few different varieties, 1mg, 5mg, etc- the one that is 5mg has 400mcg of folic acid which I am low on. The larger dosage one (brand is Source Naturals) is a combo of methyl and dibencozide B12 which are supposedly the bioactive forms. Is the 5mg too much, the directions say one daily. I would like a B complex which includes folate, the other B vitamins, and the methyl version of B12, but have not found that.

I am considering taking the liquid Floradix iron, I worry about the side effects of an iron tablet- anyone use this kind? It is supposedly much better absorbed, only downside is the price, as most liquids are pricy. My next choice was the RAW iron from Vitamin Code.

I already have my D3, I will up the amount for a couple months till my next labs. I ordered new probiotics, and am also looking to get some omegas in there.

Only other thing I see is controversial is L-Glutamine, and also digestive enzymes....are these necessary or beneficial for me at this point?

I really appreciate any advice, it can be difficult to get the correct amounts and I really want to feel better, I have ZERO energy right now and feel like a truck ran me down! :)

I am ready to take control, as my primary doc is not much help in this matter! I am seeking out a naturopath to work with on these vitamins and such!

Thanks!

mushroom Proficient

Digestive enzymes are indicated if you feel that your food is being poorly digested, loose poorly formed bowel movements, perhaps some gastric distress - bloating, gassiness. If none of this applies to you you probably don't need them.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

    2. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

    5. - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,152
    • Most Online (within 30 mins)
      7,748

    SinnamonToasty
    Newest Member
    SinnamonToasty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
    • trents
      @Mark Conway, here is an article outlining the various tests that can be used to diagnose celiac disease. By far, the most popular one ordered by physicians is the tTG-IGA. But almost all of these tests are known by different names so the terminology will vary from place to place and lab to lab. The article gives common variant names for each test.  In addition to IGA tests there are IGG tests which are particularly useful in the case of IGA deficiency.  
    • JudyLou
      Thank you so much @knitty kitty! My feet aren’t dry or ashy and I don’t have a rash that gets scaly. It’s like very itchy/burning vesicles that are symmetrical - on both arms, both legs, etc. They actually feel better in direct sunlight as long as it isn’t really hot or I’m not exercising outside, but gets worse if I sweat (especially if the area is covered up). It’s not usually on the outside of my elbows and knees which seems more typical of dermatitis herpetiformis (unless it spreads there). It tends to first hit the inside of those areas. Interestingly, twice the rash broke out soon after eating an unhealthy meal and having an alcoholic drink (I only drink a few times a year, no more alcohol content than a glass of wine).  So I wonder if there is a connection. I’m halfway considering doing a gluten challenge for a few months to see what happens, knowing I can stop if I have any symptoms, and asking for a full celiac disease panel at the end. I really appreciate your thoughts! 
    • knitty kitty
      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
    • Wheatwacked
      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins and minerals.  Low or deficient  Vitamin D is almost always found in undiagnosed Celiac Disease. "Over 900 genes have been reported as regulated by vitamin D"  Possible Role of Vitamin D in Celiac Disease Onset  "The overall prevalence rate of vitamin D deficiency was 41.6%, with the highest rate seen in blacks (82.1%), followed by Hispanics (69.2%)."    Prevalence and correlates of vitamin D deficiency in US adults
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.