Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Things Are Changing

pricklypear1971

Recommended Posts

pricklypear1971 Community Regular
pricklypear1971
Posted

Sooooo....

That kid I've got - the one that swears he doesn't have a gluten or other issue has started getting "bloated, too full belly" after eating his favorite meal - cheeseburger, fries and shake. Glutenous cheeseburger and dairy shake.

He also grilled me twenty ways yesterday about Celiac and if I miss eating gluten. This was while he ate the before mentioned foods.

He's home from school today with D, which was preceded by bloat and pain and headache and nausea.

I think at this point he's really reacting to milk, but gluten may be why.

I may give him a gluten-free cheeseburger and coconut milkshake to test it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Takala Enthusiast
Takala
Posted

I chuckled out loud, when I read this. :rolleyes:

I would bake a potato and then do up some home fries with that. Go for the full-meal deal. :P

pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

I know. Funny, this morning he tripped himself up when denying an issue with the meal - he let "lately" slip in.

I asked him to think about how he feels after eating milk and we'll talk about it soon.

Kind of like leading a horse to water....and having him stare at you like you got it wrong. Only good thing I can say is he has a strong self-preservation drive. If it causes him pain he screams like a banshee and runs the other way.

Honestly, he has been self-selecting around dairy a while. He just doesn't see it. I'll make him a dairy free shake and see what happens. I think he's afraid of giving up ice cream - if he sees he has an alternative maybe he'll open up more.

Sesara Rookie
Sesara
Posted

Has he tried some of the coconut ice cream on the market? That stuff is just tasty, I don't care if you're lactose intolerant or not!

pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

Has he tried some of the coconut ice cream on the market? That stuff is just tasty, I don't care if you're lactose intolerant or not!

Yes, I bought some for me when I first went gluten-free and he wasn't impressed. Neither was I but you know how stuff grows on you.

I am freezing some So Delicious chocolate coconut milk and will make him a shake tonight.

Btw his D has stiopped and he's eating me out of house and home.

Mmm hmmm. Yeah. He doesn't have an intolerance does he??? De Nile runs through my house.

I may pick up some lactaid, too. It may be lactose not casein.

sa1937 Community Regular
sa1937
Posted

If it's lactose and not casein, Breyers does make a lactose-free ice cream. I picked up some at Wal-Mart shortly after I was diagnosed (price is the same as the other Breyers).

pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

If it's lactose and not casein, Breyers does make a lactose-free ice cream. I picked up some at Wal-Mart shortly after I was diagnosed (price is the same as the other Breyers).

Wow, didn't know that. We'll give it a whirl.

I know some places sell lactose free milk - I could always make ice cream with that, too.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sa1937 Community Regular
sa1937
Posted

Wow, didn't know that. We'll give it a whirl.

I know some places sell lactose free milk - I could always make ice cream with that, too.

The only Breyers I've seen that's lactose-free is vanilla. I've also seen it at local grocery stores.

I was buying Lactaid milk but know other brands are also available. I believe Lactaid also makes ice cream but I haven't looked for it...and thankfully I'm no longer lactose intolerant. I bet it would be difficult to beat homemade ice cream! smile.gif

Sesara Rookie
Sesara
Posted

Wow, didn't know that. We'll give it a whirl.

I know some places sell lactose free milk - I could always make ice cream with that, too.

If you ever wanted to attempt it (just because it's something I've thought of doing for my brother's fiance, who is lactose intolerant), you could try making creme fraiche ice cream. You just need to buy fresh cream, and then stir in a little bit of buttermilk and let it sit in a warm place overnight, and voila! A nice big batch of creme fraiche can be yours. Not totally lactose free, but it would be cultured to the point where it would contain about as much lactose as yogurt, so if he could tolerate that, he could definitely tolerate creme fraiche ice cream.

pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

If you ever wanted to attempt it (just because it's something I've thought of doing for my brother's fiance, who is lactose intolerant), you could try making creme fraiche ice cream. You just need to buy fresh cream, and then stir in a little bit of buttermilk and let it sit in a warm place overnight, and voila! A nice big batch of creme fraiche can be yours. Not totally lactose free, but it would be cultured to the point where it would contain about as much lactose as yogurt, so if he could tolerate that, he could definitely tolerate creme fraiche ice cream.

Thank you! That sounds wonderful.

Didn't do the shake tonight. Made him soup and oatmeal cookies. So far he ate a lot and is perfectly fine.

I'll kill him if he tries to have milk on his cereal tomorrow.

pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

Well, judging by the desperate run to the bathroom two seconds ago, the lactose free Breyers was NOT a success. I'll try the So Deliciious shake tomorrow with the gluten-free burger.

Oh, and he DID try to eat milk and cereal this morning.

pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

Okay, I asked if he went to the bathroom again and he said yes. Asked if it was like Sunday night or had D and he said no - regular bm's. He definitely isn't as crampy as Sunday night - not on the couch in my lap taking about how sick he is.

So, tomorrow we'll try the gluten-free burger and coconut shake.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine. Legumes (beans) do contain thiamine. Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and Cobalamine B12 are mostly found in meats. Meat, especially organ...
    2. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc. Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food....
    3. Scott Adams
      - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    4. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

      @lizzie42, You're being a good mom, seeking answers for your son. Cheers! Subclinical thiamine deficiency commonly occurs with anemia. An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal. Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps...
    5. Scott Adams
      - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,869
    • Most Online (within 30 mins)
      7,748
    MaryannHall
    Newest Member
    MaryannHall
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Bob red mill gluten free oats

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.