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Please Help With My Gluten-Free Self-Experiment

sugnim

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sugnim Newbie
sugnim
Posted

Probably like many on this forum, I had unexplained G.I. issues for years. Recently, I decided to eat gluten-free to see if this might help me. I went just a little over 2 months with absolutely no gluten in my diet, which was pretty easy to do except on my birthday (no cake!) and on vacation (no goodies!) Anyway, I reached the end of my gluten-free period, and this week, I'm going to add gluten back into my diet to see if there are any noticeable changes. Does anyone know how long takes for gluten to begin to affect the G.I. system of those who either have celiac, or are gluten-sensitive? That is, if I am sensitive to gluten, will my first piece of wheat toast do me in, or might it take a while? Thanks for your thoughts!

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pricklypear1971 Community Regular
pricklypear1971
Posted

Everyone is different. Try it and see, advisedly near a bathroom.

birdie22 Enthusiast
birdie22
Posted

I did a 7 day gluten challenge last month after being gluten-free for 5 months. It took a few days for my symptoms to start adding up. I did get some nausea and bloating on day one but then as each day progressed things accumulated...canker sores, headaches, restless sleep, change in stool, increase in heartburn, etc.

Good luck to you!

PS: I used cream of wheat for my trial. I wanted to have as "pure" of a gluten product as I could so as to not then question if it was some other ingredient causing me issues.

MKOT Newbie
MKOT
Posted

I have just done similar... 6 weeks of gluten-free then last week ate a little toast, no change, a little white bread, a couple of anzac biscuits all over a few days. By Sunday I had awful stomach ache, it hurt so bad (cramping up high under my ribs) and felt sick. By Monday I had an awful stomach upset and today my sinus pain has been unbearable. I am gutted I now have to eat gluten again for six weeks to get tested for coeliac. :(

KMMO320 Contributor
KMMO320
Posted

Probably like many on this forum, I had unexplained G.I. issues for years. Recently, I decided to eat gluten-free to see if this might help me. I went just a little over 2 months with absolutely no gluten in my diet, which was pretty easy to do except on my birthday (no cake!) and on vacation (no goodies!) Anyway, I reached the end of my gluten-free period, and this week, I'm going to add gluten back into my diet to see if there are any noticeable changes. Does anyone know how long takes for gluten to begin to affect the G.I. system of those who either have celiac, or are gluten-sensitive? That is, if I am sensitive to gluten, will my first piece of wheat toast do me in, or might it take a while? Thanks for your thoughts!

I am betting everyone is different. My sis in law doesn't feel gluten effects until the next day, usually. I feel them within an hour. I get really bad sinus pressure and swollen glands, and an ear ache followed by digestive issues a few hours later but usually I am "ok" the next day, until I eat it again.

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    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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