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A Brave New Me

GF Lover

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GF Lover Rising Star
GF Lover
Posted

I am a chronically empathetic person and my heart goes out to everyone who is struggling. I am also an eternal optimist. When my rheumatologist suggested this diet for me, I immersed my self in research. I have read every Journal Of Gluten Sensitivity, every list of good food, bad food etc. I enlisted the help of a family friend who is a holistic health coach. I immediately went gluten free and started juicing shortly thereafter, I felt I needed the extra nutrition and it did get me thru my first few weeks when I was afraid to eat. I have never questioned my decision to go gluten free and embrace every piece of healthy food I eat. I have no desire to ever cheat as I know very well that I will double over in pain before I'm finished eating. I still have many physical, mental and neurological issues but having resolution in one area is a blessing. Other issues may resolve, maybe not, I don't see that as the point anymore. I am happier and healthier than I was before and that's good enough for me. I believe that many more people all over the world are much worse off than me and I feel pretty selfish thinking this may be a hardship. I hope everyone can bring some hope and peace to themselves just knowing you are moving forward with your health. Everyday I breath in the energy from the world and breath it out to offer it to someone else. Be well.

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sandsurfgirl Collaborator
sandsurfgirl
Posted

It's a great feeling to know you are healing and getting well.

You may find that you have some emotional ups and down at times and we are here for you through all of it.

People are worse off than us, but heck lots of people are far better off too. It's all relative. We have to honor our own process and honor our grief when the grieving comes, honor the joy when the joy comes and seek out joy as much as possible.

Blessings on your gluten free journey.

GF Lover Rising Star
GF Lover
Posted
  • Author

Hi SandSurfGirl. Thank you for reading my post and seeing that it is very emotional. I am on an "up" and being bipolar means I'm way up. A "take away the credit cards and hide the car keys" kind of up. I have more energy than my body can handle and my brain has way too much going on. I know the down will come around and kick my arse. If I don't land in the hospital, I'm good. I have my own complaints, weaknesses and vulnerabilities but I do my best to stay positive so it might rub off on others. I hope when I'm low you will still reply, ill be the same person, just a different side. Be well.

sandsurfgirl Collaborator
sandsurfgirl
Posted

Being gluten free is going to help you a lot. So many celiacs suffer from neuro and psych issues. There have been some good studies on it. I had terrible anxiety due to gluten.

I have a close family member who is bipolar. It's hard to manage but not impossible. You have done something wonderful by going gluten free. She won't even get tested and I'm so certain she has celiac but there's nothing I can do. And you are totally aware of what state you are in. That is huge! Good for you.

Hang in there and keep posting. This board is a lifeline!

I come and go now depending on what's going on in my life. I wish I could post all the time but I get busy and disappear. Or I just get overwhelmed from all the sad stories and I need breaks.

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    • knitty kitty
      Accuracy of testing concerns

      By knitty kitty · Posted

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    • trents
      Accuracy of testing concerns

      By trents · Posted

      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Accuracy of testing concerns

      By McKinleyWY · Posted

      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
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