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New Member, Results Tomorrow

shine

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shine Newbie
shine
Posted

Tomorrow I go to the doctor. I'm real worried that it'll turn out that my tests are negative. I know that may sound strange, but Celiac explains everything, all my syptoms for all these years.

It's rather depressing to look at the list of syptoms, know I have so many of them and then just *know* that the test results are not going to confirm my thoughts. How do I know? Well, the dorctors here always call if you have bad test results. I've had no call and it's been two months. I tried a gluten challenge. All my syptoms went away, only to return when I ate something with gluten.

*sigh*

Thanks for listening. This site is wonderful. I wouldn't have had a clue what gluten was if not for this place.

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Kasey'sMom Enthusiast
Kasey'sMom
Posted

I understand how hard it is to be waiting for test results. I had the tests done last week and I'm probably call tomorrow if I don't hear anything. My dd was tested months ago and I've put so much into her diganosis and recovery, I put my own health on the back bunner. Now that we can see a difference with her, I'm trying to examine my own health as well.

Hopefully you'll get the answers you need tomorrow.

Just something to think about...depending on your diagnosis. I went gluten-free for a while with my dd and then I also got sick when I started eating it again. I've almost come to understand that regardless of my results, my body doesn't tolerate gluten. :)

Take Care

Nantzie Collaborator
Nantzie
Posted

Fingers crossed for you. I know exactly what you mean. It seems so silly to pray that you've got a disease, but when it seems to explain everything.... I just found out about celiac disease a week ago and I feel the same way. I've got an appt to talk to a doctor in early Oct. It seems like forever to wait.

Let us know how things go.

Nancy

shine Newbie
shine
Posted
  • Author

Well, I just got back from the doctor's office and, as I suspected, the test(s) were negative. However, the doctor wants me to be wheat/gluten free and try an elimination diet, while monitored by a dietician.

So, I guess it's kind of a wishy-washy diagnosis. He thinks I'm intolerant or sensitive, posibly to gluten, possibly just wheat.

At least I have this place to help me sort out what I can and can't have while I figure things out.

~shine

Nantzie Collaborator
Nantzie
Posted

It's hard to know what to say.... I'm glad they don't think you have it because who wants someone else to have a disease. But I'm disappointed for you that you didn't get a definite diagnosis. Then, I'm glad your doctor is recommending a gluten free diet and help from a dietician, so you can know if it really is gluten that is causing your problems.

I hope you feel better soon.

Nancy

tarnalberry Community Regular
tarnalberry
Posted

The dietary challenge is a valid diagnostic test, and I'm glad for you that you got a doctor who is willing to use it.

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