Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Member, Results Tomorrow


shine

Recommended Posts

shine Newbie

Tomorrow I go to the doctor. I'm real worried that it'll turn out that my tests are negative. I know that may sound strange, but Celiac explains everything, all my syptoms for all these years.

It's rather depressing to look at the list of syptoms, know I have so many of them and then just *know* that the test results are not going to confirm my thoughts. How do I know? Well, the dorctors here always call if you have bad test results. I've had no call and it's been two months. I tried a gluten challenge. All my syptoms went away, only to return when I ate something with gluten.

*sigh*

Thanks for listening. This site is wonderful. I wouldn't have had a clue what gluten was if not for this place.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kasey'sMom Enthusiast

I understand how hard it is to be waiting for test results. I had the tests done last week and I'm probably call tomorrow if I don't hear anything. My dd was tested months ago and I've put so much into her diganosis and recovery, I put my own health on the back bunner. Now that we can see a difference with her, I'm trying to examine my own health as well.

Hopefully you'll get the answers you need tomorrow.

Just something to think about...depending on your diagnosis. I went gluten-free for a while with my dd and then I also got sick when I started eating it again. I've almost come to understand that regardless of my results, my body doesn't tolerate gluten. :)

Take Care

Nantzie Collaborator

Fingers crossed for you. I know exactly what you mean. It seems so silly to pray that you've got a disease, but when it seems to explain everything.... I just found out about celiac disease a week ago and I feel the same way. I've got an appt to talk to a doctor in early Oct. It seems like forever to wait.

Let us know how things go.

Nancy

shine Newbie

Well, I just got back from the doctor's office and, as I suspected, the test(s) were negative. However, the doctor wants me to be wheat/gluten free and try an elimination diet, while monitored by a dietician.

So, I guess it's kind of a wishy-washy diagnosis. He thinks I'm intolerant or sensitive, posibly to gluten, possibly just wheat.

At least I have this place to help me sort out what I can and can't have while I figure things out.

~shine

Nantzie Collaborator

It's hard to know what to say.... I'm glad they don't think you have it because who wants someone else to have a disease. But I'm disappointed for you that you didn't get a definite diagnosis. Then, I'm glad your doctor is recommending a gluten free diet and help from a dietician, so you can know if it really is gluten that is causing your problems.

I hope you feel better soon.

Nancy

tarnalberry Community Regular

The dietary challenge is a valid diagnostic test, and I'm glad for you that you got a doctor who is willing to use it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Anne G posted a topic in Related Issues & Disorders
      0

      celiac disease and braces

    2. - trents replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - HAUS posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    4. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

    5. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,434
    • Most Online (within 30 mins)
      7,748

    Malia Ana
    Newest Member
    Malia Ana
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Anne G
      Hello, My 17 yr old daughter was diagnosed with celiac disease 2 yrs ago. She does not have gum disease and no history of cavities. Her dentist is recommending braces for her lower teeth but I read it may worsen gum recession or possibly increase cavity risk which I know are already issues for patients with celiac. Has anyone here had braces and did it cause any problems or issues with gum recession?  Her dentist seemed oblivious that celiac patients are at higher risk of gum disease /cavities. Her bottom teeth are crooked but are pretty hidden even when she smiles. Thank you!!
    • trents
      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.