Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Becoming Skeptical

JonsLoveBugg

Recommended Posts

JonsLoveBugg Newbie
JonsLoveBugg
Posted

Hi everybody!

I've been gluten free for about 2 years now after being sick for about 3 years before that and of course Jo doctor could figure out why.. I had two celiac disease tests done; both came back negative. But after being gluten free I have felt so much better! No more symptoms at all so I feel a gluten free lifestyle was the key.

However, I have been glutened accidentally before a few times and I feel awful and there are sometimes where my husband gives me the "uh oh..." look after we eat something and then decide to read the labels. But I won't get sick...

So I'm wondering if this happens to other people or am I not really gluten intolerant..? Although all of my stomach issues went away almost instantly after I cut gluten from my diet..

Thanks!

Natalie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pianoland Rookie
pianoland
Posted

If you're feeling good, then I would stick with it! Maybe you aren't sensitive to trace amounts. I think most people with an intolerance don't have issues with cross-contam or small amounts of gluten like people with celiac would.

  • 4 weeks later...
IndiaEileen Newbie
IndiaEileen
Posted

That happens to me. It randomly striked me three days after eating a couple onion rings off my boyfriends plate that It had a wheat flour batter. "Well, did you get sick?"

"Uhm...no I didn't, no."

I really think it might be your body's immune system taking one for the team. It's totally worth it to stay off the gluten's, if not for the reason you know you'll feel good but because you're supporting the lifestyle and people just might take the hint.

Fight the good fight!

MitziG Enthusiast
MitziG
Posted

Yup, reactions can be random. It happens to me and I have biopsy confirmed celiac. You know how sick you were before, don't second guess yourself now!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,749
    • Most Online (within 30 mins)
      7,748
    Harri
    Newest Member
    Harri
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Tea Bags and Gluten

      By Beverage · Posted

      I order tea from https://www.republicoftea.com/ All gluten free. Sign up for the newsletter and they send discounts regularly. 
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Hi Theresa,  A few of my friends have your same story. You may be right about barley, etc.  18 years ago at a football game while clapping, suddenly my 4th finger was in agony.  It looked like a vein had burst. It was blue for a couple hours, then disappeared.  Finally realized it happened every time when drinking beer.  It's occurred several times over the years when opening a jar, lifting something that was a bit heavy, holding on to tight to something.  Immediate icing stops the pain and discoloration.  Now avoiding wheat in the US, it rarely happens.  Thanks for the reminder.  Will have Entero Labs run another test. Unfortunately they've relocated to Switzerland/Greece.
    • Russ H
      Blood results

      By Russ H · Posted

      The EMA test is an old and less sensitive test for anti-tTG2 antibodies. It relies on a technician using a microscope to check for fluorescence of a labelled substrate (typically monkey oesophagus or human umbilicus), giving a simple positive/negative result. It is similar to running a standard anti-tTG2 test but with a high cut-off, making it more specific but less sensitive. Transient rises in tTG2 can be caused by e.g. viral infections and inflammation. Very high levels of anti-tTG2 (>x10 standard range) are almost certainly coeliac disease but moderately raised levels can have several causes apart from coeliac disease. Other food allergies can cause villi blunting but that is much rarer than coeliac disease or other non-coeliac causes. Not All That Flattens Villi Is Celiac Disease: A Review of Enteropathies
    • Theresa2407
      How Come Gluten Didnt Bother Me In Italy

      By Theresa2407 · Posted

      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.