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I Don't Know If I Should Test For Celiac

AmyWrites

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AmyWrites Newbie
AmyWrites
Posted

I've been the type with a "weak stomach" all my life. Every few weeks or so, I'd go through a day or two where I would vomit and have diarrea all day. It got better, actually felt GOOD, after a surgery I had for endometriosis, but it's back now.

I've been reading a lot about celiac, since white bread sends me running to the toilet. But frankly, I'm reading about a lot of symptoms, and mine seem not often or severe enough. I can eat pasta well enough, and the only gluten-containing food I've stopped consuming is white bread and red meats... and with some digestive enzymes my doctor gave me, I'm better. I still have, if I eat greasy food or whatnot, some bad symptoms; maybe diarrhea, sulfuric like gas,maybe nausea and stomach pains. But it's not like before. I was diagnosed with IBS some time ago but felt it wasn't accurate. I don't have any of the neurological symptoms listed here, maybe except depression and terrible sleep. I don't know if I should try to test for Celiac as my symptoms are not so severe enough. Opinions?

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roxieb73 Contributor
roxieb73
Posted

I look at it this way...... Celiac has so many symptoms it could be the cause and what do you have to lose? Worst that happens is you come back negative. I say go for it.

Cara in Boston Enthusiast
Cara in Boston
Posted

With a diagnosis of IBS, you should at least be tested for celiac. Symptoms can be inconsistent - they can even seem to "go away" for months or years - only to return much worse. I can't really think of a reason NOT to be tested. Just be sure you get all the right tests, or you may rule out celiac when it is actually the real problem - false negatives can just add to the confusion.

Cara

MitziG Enthusiast
MitziG
Posted

You can have NO symptoms and have celiac. Also it is very common for symptoms to wax and wane as you described. Your symptoms sound very much like mine- for the 30 years prior to my diagnosis! Definitely get tested!

MitziG Enthusiast
MitziG
Posted

Also, endometriosis has been strongly linked to Celiac.

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      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
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      how much gluten do I need to eat before blood tests?

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