Naturopath Says 100% Not Celiac From Immunolabs Igg And Iga Test Results- Can This Be Wrong?

[bubbleye]

Help-

I had the immunolabs 154 food blood test and the results are making me more confused than ever. Someone please help.

First, note that I have been gluten free for about a year now after doing an elimination diet and having a severe eye hives, discharge and skin breakouts from eating a little pita bread. All the other things I challenged seemed to be just fine, including eggs and dairy i.e. no discernible symptoms when re-introduced.

I've continued to get hives and a skin rash which looks a lot like dermetits herpetiformis when i eat different foods, and haven't been able to decide what is the trigger or if I'm just cross contaminated. So, I went to a naturopath who swears by immunolabs blood testing.

My Gluten antibodies came back negative (IGg 15, IgA 9), and only wheat came back as an allergen. My naturopath says this shows beyond any doubt that I do not have celiacs. I have seen people say that you need to be eating gluten for these tests to be accurate. What is the reality??

Also, my list of allergenic foods was bizarre. Eggs were super high at the highest level 4 while wheat, which I know I react severely to was only a 1.

Can someone please explain why food like eggs which I didn't react to with elimination reintroduction could now be so high and wheat so low. Is this possibly a false positive or can the symptoms just be hidden and systemic as my naturopath says?

So to recap my questions are

1. Is Immunolabs food testing accurate?

2. If my IGG and IGA for gluten both are low, does that conclusively mean I don't have celiacs or gluten issues?

3. Why would I have such a high reaction to eggs when the elimination diet didn't show any issues with them?

Any help would be really appreciated.

[roxieb73]

Your doc is wrong........ you must be EATING gluten on a regular basis or it will show negative! I only went off gluten for 2 weeks and my doctor still thinks we got a false negative.

[ravenwoodglass]

If you really need a doctor to tell you what your body already has then you need to get back on gluten for about 3 months and go to your GP and ask for a celiac panel. Be aware that even then you could have a false negative.

[Mom23boys]

In most cases you have to be eating the food on an IgG test. Being off for a year would create false negatives in most cases.

I did have one that tested high that I had not eaten in 30 years that I am also IgE allergic to and she said that usually shows a genetic issue.

IgG sensitivities are also usually subtle issues which don't give an obvious reaction. They also have the potential of lessening reactions by a period of abstinence from the item. IgG sensitivites are not the anaphylactic/hive/immediate reaction type of reactions. IgG sensitivities are the little headache, tummy ache, joint ache, build up reaction type of sensitivities

[MitziG]

Yes, you have to be eating gluten. That said- you very likely don't have celiac disease. You are probably non-celiac gluten intolerant- meaning you get very sick from eating gluten, but you aren't making antibodies to it.

I realize everyone would rather have the celiac dx so they can be taken seriously, and it is wrong that most doctors dismiss gluten intolerance. However, NOT having an auto-immune disorder is a good thing!

Also, it could be you are sensitive just to wheat, not to gluten. Do you react to barley or rye?

You could put yourself through months of agony eating gluten to test again- and it will likely still be negative.

Or you could acknowledge what your body is telling you without waiting for a "doctor" to agree with you. Your call.

[IrishHeart]

I had those IgG, IgA tests done through an Integrative Doctor and ND too. IMHO, they have major flaws.

I was off gluten for 5 weeks as a trial back in 2010 because I was desperately ill and in horrible pain and I was trying anything to get well. Neither the ND, the IM Doc or my own GI at the time felt it was celiac disease as I was overweight and did not have "floating stools".

They came back negative for everything except SOYBEAN, which showed a severe intolerance.

? soy? I do not eat SOY.

Based on that testing, he told me I did not have a gluten problem and I continued to consume it for another 10 months, until I was so bad, I was dying and unable to think or walk without difficulty. And I was no longer fat, I had lost 90+ lbs. and my hair had fallen out.

I have Celiac.

That test was useless, and I was only off gluten for a few weeks. I am also seronegative, so the celiac blood panel is useless for me.

You can rely on testing from a naturopath (I had one tell me you cure celiac, you can cure cancer and you can cure any AI disease with homeopathy. No, you cannot. )

or you can rely on what your own body tells you.

If you have been gluten free for a year, and still having DH outbreaks, it's possible you are still being CCed.

Also, DH flares can last for several years before dying down, from all I have read on that subject.

[nora-n]

I took a IgG test for 118 foodstuffs, and I was not eating gluten or milk, which I do not tolerate at all. Of course they were negative. Yeast was high, the only high thing. Next kiwi.