My Son's Bloodwork (Advice Needed)

[Mom2-Five]

Hi again - I am fairly new here with one topic posted about myself:

One of the things we talked about in that first topic I posted was, since I got a positive on one portion of the panel - I should get my children tested. My youngest son actually had a celiac panel done last November, as part of bloodwork done trying to pinpoint some of his issues. We were looking at Rheumatoid Arthritus primarily. Dr. ordered a celiac panel as well. He is ultra thin and has aches and pains after normal play (after five children, him being youngest - I have not experienced his aches and pains with the other children). He has dry itchy eyes and dry, peeling lips.

Anyhow, this is the celiac part of the bloodwork if anyone wanted to comment or advise. Dr. said "negative on the celiac" and also the RA as well. So we are still trying to figure him out. I suppose they may look closer if I'm positive for celiac? Also, I don't suppose they should retest for celiac since he just had this done in Nov. (at least not right away, right?)

Celiac Disease Comp PNL

Deamidated Glaidin Abs, IgA - 2 units 0-19

Negative - 0-19

Weak Positive - 20 - 30

Moderate to Strong Positive - >30

Deamidated Gliadin Abs, IgG - 4 units 0-19

Negative 0-19

Weak Positive 20-30

Moderate to Strong Positive - >30

t-Transglutaminase tTG IgA - <2 U/mL 0-3

Negative 0-3

Weak Positive 4-10

Positive >10

t-Transgluteaminase tTG IgG <2 U/mL 0-5

Negative 0-5

Weak Positive 6-9

Positive >9

Endomysial Antibody IgA - Negative

Immunoglobulin A, An, Serum 41 L mg/dL 58-358

[Lfrost]

Your son's blood work looks very similar to my son's. Did they happen to test him for allergies also? My son tested negative for Celiac, but he does have low allergies (one being wheat). Even though his Celiac panel came back negative, however, he has a positive response when we went gluten-free. When he eats gluten (or at least wheat) he gets a rash, itches, wets his pants, etc..

I go in for testing Monday and see where we go from there.

[VydorScope]

There seems to be (I have not counted) a large number of people who have neg blood work, neg biopsy, and "No" dx from a doctor who still get better on a gluten-free diet, and get symptoms whenever they eat gluten.

Keeping that in mind, if nothing else has worked for your son, a gluten-free diet is worth a shot, IMO. So is food allergy testing.

[Mom2-Five]

Your son's blood work looks very similar to my son's. Did they happen to test him for allergies also? My son tested negative for Celiac, but he does have low allergies (one being wheat). Even though his Celiac panel came back negative, however, he has a positive response when we went gluten-free. When he eats gluten (or at least wheat) he gets a rash, itches, wets his pants, etc..

I go in for testing Monday and see where we go from there.

No allergy testing done yet. I do look forward to our family going gluten free - though I know also that if we do, our testing window here is very narrow. Since he already had the blood work, and it was negative, I suppose there will be no biopsy. I still need to get my other children's bloodwork done. I'll be asking my digestive specialist about all this today (consultation - my first).

Boy, gluten really does a number on some of us, doesn't it?

[Mom2-Five]

There seems to be (I have not counted) a large number of people who have neg blood work, neg biopsy, and "No" dx from a doctor who still get better on a gluten-free diet, and get symptoms whenever they eat gluten.

Keeping that in mind, if nothing else has worked for your son, a gluten-free diet is worth a shot, IMO. So is food allergy testing.

Oh, it would be so nice if everything were just straight forward with all of this. Like a pregnancy test.