Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enzymes? Probiotics? B-12?


Marie1976

Recommended Posts

Marie1976 Enthusiast

I posted this on another category already and someone suggested I cut out soy for a while, which I think I will do (but will be a challenge since I'm vegan and eat a lot of tofu), but in the meantime, I've been researching different things that could help me:

I read that enzymes and probiotics can help with bloating which I am still having after all this time. Anyone else get bloated and burp after eating? I wake up with a flat (well, relatively speaking, ha ha) belly and then by the end of the day on some days I look like I'm pregnant. I do eat soy yogurt right now, with acidophilus etc., but I've read that some people are getting sick ("die-off"?) after starting probiotic pills so I'm a little hesitant to try...

Which would be better to try first? Enzymes or probiotics?

I've also read that sub B-12 can help with moodiness (I'm really irritable lately). I put nutritional yeast (a vegan B vitamin supplement) in my smoothies occasionally. Is that enough? Or do I need a daily B12?

Also, I'm taking l-glutamine powder which I can't tell if it's really helping. Sometimes it seems like it is and sometimes not.

Any opinions/advice appreciated! Thank you! :)

P.S. I have had a cold for about two weeks, I am operating on a sleep deficit as I was awake all night with a sinus headache/fever. Does celiac make your immune system weaker? Why can't I kick this? :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



PNW Rick Newbie

Hi Marie. I am in your boat. Haven't slept well for months now.

I take a b12 stress complex by Twin Labs. 3x daily

I take a refrigerated probiotic with a 15billion count. once at night

I take a quality multi. 3x daily I use Natures Way Alive Max Potency

10K UI of Vitamin D

3K IU of Vitamin C.

1K IU of Vitamin E

I'm looking at 1-2 years before my GI is healed, and it might not ever fully heal. Time will tell.

I believe celiac makes your immune system weaker, if you're very fatigued read up on chronic fatigue syndrome.

I'm moody as heck too, I believe this is due to sleep deprivation. I'm finally getting a bit over 5 hours of sleep a night, I was only getting about 3 on average at my worst.

I use aroma therapy and sound therapy for my sleep and it's helped a lot. Read up on making your bedroom sleep friendly. Read up on breathing and relaxation exercises. All of this helped me gain a couple hours of sleep a night and I'm starting to get a bit more as time goes on.

Melatonin or Tryptophan are natural sleep aids. I have melatonin at home and am going to try it this weekend.

Sleepytime tea might help too. The one i have has valerian in it and that is also a natural sleep aid.

Bubba's Mom Enthusiast

I posted this on another category already and someone suggested I cut out soy for a while, which I think I will do (but will be a challenge since I'm vegan and eat a lot of tofu), but in the meantime, I've been researching different things that could help me:

I read that enzymes and probiotics can help with bloating which I am still having after all this time. Anyone else get bloated and burp after eating? I wake up with a flat (well, relatively speaking, ha ha) belly and then by the end of the day on some days I look like I'm pregnant. I do eat soy yogurt right now, with acidophilus etc., but I've read that some people are getting sick ("die-off"?) after starting probiotic pills so I'm a little hesitant to try...

Which would be better to try first? Enzymes or probiotics?

I've also read that sub B-12 can help with moodiness (I'm really irritable lately). I put nutritional yeast (a vegan B vitamin supplement) in my smoothies occasionally. Is that enough? Or do I need a daily B12?

Also, I'm taking l-glutamine powder which I can't tell if it's really helping. Sometimes it seems like it is and sometimes not.

Any opinions/advice appreciated! Thank you! :)

P.S. I have had a cold for about two weeks, I am operating on a sleep deficit as I was awake all night with a sinus headache/fever. Does celiac make your immune system weaker? Why can't I kick this? :(

If you have damage in your duodenum, where the hormone CCK is made, you may not be digesting your food well? CCK tells your gallbladder to squeeeze bile and pancreas to release digestive enzymes when you eat. The fact that you are bloating would suggest your food is fermenting, rather than getting broken down as it should.

Taking a dgestive enzyme supplement really helps, and probiotics do too. Probiotics are the "good bacteria" that help digest food and they help your immune system too. The good bacteria is what is in yogurt, but supplements have much higher numbers. It's a good idea to supplement with a capsule to ensure you're getting a good dose. Your stomach acid *could* kill off the good guys in your yogurt.

Good bacteria crowds out "bad bacteria" and yeast that like to take over your small intestine when it isn't healthy.

Marie1976 Enthusiast

If you have damage in your duodenum, where the hormone CCK is made, you may not be digesting your food well? CCK tells your gallbladder to squeeeze bile and pancreas to release digestive enzymes when you eat. The fact that you are bloating would suggest your food is fermenting, rather than getting broken down as it should.

Taking a dgestive enzyme supplement really helps, and probiotics do too. Probiotics are the "good bacteria" that help digest food and they help your immune system too. The good bacteria is what is in yogurt, but supplements have much higher numbers. It's a good idea to supplement with a capsule to ensure you're getting a good dose. Your stomach acid *could* kill off the good guys in your yogurt.

Good bacteria crowds out "bad bacteria" and yeast that like to take over your small intestine when it isn't healthy.

Hmmm. Interesting. My endo did show a lot of damage apparently so duodenum damage seems like a possibility. I think I'm going to have to try some probiotics anyway since I just started taking antibiotics for this sinus infection. Thanks!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    PatBurnham
    Newest Member
    PatBurnham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.