Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Advise On What Tests To Suggest To Pediatrician

RunnerGrl

Recommended Posts

RunnerGrl Newbie
RunnerGrl
Posted

Hi Everyone

I am a very infrequent poster but I am in need of some help.

I have Celiac Disease - dx 5 years ago and I am now concerned about my 2. 5 year old. He has always been in the 50% for growth since birth and really isn't seeming to lose any weight but he is having some other symptoms that concern me -- very frequent, loose BM's (3-4 a day) that are seriously foul, very pale, bruises very easily and significantly, muscle tone is really not present.

So as we all know how the medical community is seriously lacking when it comes to Celiac disease...I made an appointment with his regular Pediatrician next week and I am thinking that we should start with blood work? From what I have read it is often inconclusive for many folks so I am concerned about that to start. What should I tell my Pediatrician (other than what is obvious here) for what blood work I would like to have them run?

My dx was kind of backwards...I had been suffering from acid reflux for a long time and on med's for it...then later became sick -- Had a biopsy FIRST and was dx that way. So no blood work happened. Not sure really what to do for my son but would rather he be dx sooner than later so I can make sure I can keep my little guy going strong and not suffer needlessly. :)

Thanks

Kris

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mom2J112903 Newbie
Mom2J112903
Posted

I would just honestly ask for a refferal to a GI. Peds are for the common childhood things, not a GI disorder that will need followed by a GI.

Mom-of-Two Contributor
Mom-of-Two
Posted

My pediatrician wouldn't even test my children, she sent us to a pediatric GI. This can take time to get in, so I agree, I would honestly just begin there to start with.

Good luck!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,008
    • Most Online (within 30 mins)
      7,748
    Wigglywoo27
    Newest Member
    Wigglywoo27
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Bebygirl01
      How many people also get sick from the following prolamins?

      By Bebygirl01 · Posted

      Prolamins are a type of protein found in cereal grains. Different cereal grains contain different types of prolamins, which are named based on the grain they originate from.  Here's a breakdown by grain:  Wheat: The prolamin is called gliadin. Barley: The prolamin is called hordein. Rye: The prolamin is called secalin. Corn: The prolamin is called zein. Oats: The prolamin is called avenin. Rice: The prolamin is called oryzenin. Sorghum: The prolamin is called kafirin. Prolamins are a major component of cereal storage proteins and are known for their high proline and glutamine content and can get celiacs and non-celiac gluten sensitive individuals sick.
    • DebJ14
      Dermatitis Herpetiformis

      By DebJ14 · Posted

      Our son was put on Minocycline for his acne.  It did not solve the acne problem.  He developed drug induced lupus and pericarditis from it and missed an entire year of high school.  He literally went from playing football to bedridden in a couple of weeks.  His PCP tested him for genetic antibiotic resistance and he cannot take any drug in the Tetracycline family.  His gut microbiome was totally destroyed.  In fact he had a stool test done and had no good bacteria, whatsoever.   What did fix his (and his brother's acne) years after the Minocycline debacle was when I was diagnosed with Celiac disease and the kids were tested.  They were both put on a Gluten Free/ Caesin Free diet and...
    • wellthatsfun
      confirmed via biopsy, quite depressed

      By wellthatsfun · Posted

      i am australian. we do have plenty of substitutes, but most are very expensive compared to the originals. i believe i'll just stick to home cooked meals and not have many treats at all. it's sad but it's just so much easier. also, ive heard far too many horror stories of people ordering gluten free food from restaurants and cafés, explicitly telling servers and kitchen staff that cross contamination is a strict no go, and they still get very sick. until i find a reasonably priced fully gluten free kitchen somewhere, i am not eating out for my safety and sanity.
    • wellthatsfun
      confirmed via biopsy, quite depressed

      By wellthatsfun · Posted

      thank you all for the kind words and support. it truly means a lot. i know i will adapt, it really just is a grieving process right now though. looking forward to feeling healthier!
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      To Trent’s, yes, from what i’ve read it is not uncommon for digestive systems to become less tolerant to gluten over time. Many types of sensitivity or allergies arise in older people who never had a problem. I don’t see why you are focusing on anything but the fact that after years of my sensitivity to gluten, for whatever reason , it has disappeared after a bout of antibiotics. What i’ve read is antibiotics can make gluten sensitivity worse. In any event, in my case, if I can still eat all the wheat products I want with no reaction after a month or more since my hospital stay this is something that should be investigated. Time will tell.
×
×
  • Create New...