Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Introduction


Huggenkiss27

Recommended Posts

Huggenkiss27 Rookie

This looks like the place to introduce myself before I start posting all over the place and people are wondering who I am. My name is Amanda, 28, currently living in Houston, Texas. I do environmental work in the gas and oil industry. I got my undergrad in watershed science at colorado state and along with working full time I am getting my Masters at Texas A&M. I've got a great supportive boyfriend and we've got two dogs that are on grain-free diets because my golden retriever is allergic. I love outdoor activities like camping and hiking so I'm trying to figure out how I ended up in Houston :rolleyes:

I have had health "problems" for the last 15 years or so. As I'm sure most are familiar with I'd say the typical Celiac type symptoms. When I was 20 I was tested for Celiac, among other things, and was told by my awful doctor that I just had the most severe case of IBS he'd ever seen and I just had to deal with it. His suggestion was to take 2 immodium before every meal. I was heart broken and ended up gaining about 75 pounds by the time I was 23 and graduated college. After college I took a job in a very small mountain town and had a complete life style change. There was no fast food and everyone ate very healthy. I wanted to lose all the excess weight so unknowningly I went almost gluten free and I felt better. I lost 80 pounds and felt great. Then I got transferred to Houston about a year and a half ago. The lifestyle here is very very different. Lots of eating out and meeting for drinks. Slowly I started feeling awful again and spending more and more time in the bathroom plus I've put on about 20 pounds. I just wasn't feeling good either; tired, headaches, body hurts, crabby, mouth sores, and the weirdest mucous production that I don't even want to get into. Then a few months ago I started having awful stomach pains. I went to the doctor and after rounds and rounds of tests, poking, and prodings here I am- not 100% sure I have or don't have celiac but on a wheat/gluten free diet. It's been about 2 weeks now and I'm already noticing a difference in my bathroom habits and stomach pains. My boyfriend and I live together and he is VERY supportive. We're moving at the beginning of August and the new house will be gluten free. Over the weekend he went though the pantry and fridge to seperate all the gluten containing food out to make sure he eats it all so we don't have to trash it when we move.

Thanks for taking the time to read and I look forward to surfing the forums, learning a lot, asking questions, and getting to know you all here!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Welcome!

Glad you are finding something that helps. I hope they did the Celiac blood work before you went gluten-free?

My son will be a sophomore at CSU this year! He loves it. However, he and his friends are devastated by the High Park Fire damage. All the favorite CSU handouts for biking, hiking and camping are destroyed. Some of his friend that stayed or live nearby have gone to fight the fires. He is stuck here in Kansas City.

In your new place, vacuum out the drawers. Then wipe good with a wet paper towel. Crumbs have a way of dropping into the not quite closed drawers.

deltron80 Rookie

Welcome to the forums! B)

Huggenkiss27 Rookie

They did do the bloodwork and it came back negative. I went gluten free right after my endoscopy/coloscopy because I figured that was as clean as my guts will get! I get the results back from my biopsies this Thursday. Thanks for the advice on the cupboards; I didn't even think about that!

The High Park fire is awful. I grew up in the Loveland/Fort Collins area and have many friends who have also felt the effects of the fire. My brother will go out with the fire crews but right now they are so short handed that when he goes to the offices there isn't even anyone to assist him to get on a crew!

Welcome!

Glad you are finding something that helps. I hope they did the Celiac blood work before you went gluten-free?

My son will be a sophomore at CSU this year! He loves it. However, he and his friends are devastated by the High Park Fire damage. All the favorite CSU handouts for biking, hiking and camping are destroyed. Some of his friend that stayed or live nearby have gone to fight the fires. He is stuck here in Kansas City.

In your new place, vacuum out the drawers. Then wipe good with a wet paper towel. Crumbs have a way of dropping into the not quite closed drawers.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.