Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reintroduce Dairy? - Casein Intolerant


Greeneyes4

Recommended Posts

Greeneyes4 Newbie

Any thoughts/opinions would be helpful.

I have been gluten/dairy/soy free for 6 years. Enterolab test came back positive for gluten intolerance and celiac/gluten intolerant genes. Also tested high for casein intolerance 34 (should be less than 10). I am allergic, carry an epi pen for soy.

I have been thinking lately about reintroducing dairy into my diet though I have mixed feelings about it.

I was surprised when the test results came back positive for casein intolerance. I knew I was lactose intolerant, but never had any other issues with it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missmellie Newbie

Just curious as to why you would want to reintroduce something to your body that you know you are intolerant of?

deb445 Rookie

Any thoughts/opinions would be helpful.

I have been gluten/dairy/soy free for 6 years. Enterolab test came back positive for gluten intolerance and celiac/gluten intolerant genes. Also tested high for casein intolerance 34 (should be less than 10). I am allergic, carry an epi pen for soy.

I have been thinking lately about reintroducing dairy into my diet though I have mixed feelings about it.

I was surprised when the test results came back positive for casein intolerance. I knew I was lactose intolerant, but never had any other issues with it.

Why are you mulling over the idea of reintroducing dairy into your diet? What are your thoughts on how would it benefit your health?

  • 2 weeks later...
icm Apprentice

If it were me I would stick to A2 milk only. Depending on where you are, it may be easy or difficult to find A2-only milk as almost all of our milk today contains both A1 and A2 forms of beta-casein. A1 beta casein has a structure that allows the release of opiods which may be the culprit behind your casein intolerance.

Juliebove Rising Star

I am intolerant to casein. I was in the past. Then according to testing, I wasn't. The Dr. warned me not to eat any just because of how severe my symptoms had been. But did I listen? No. At first it wasn't a problem.

Then I noticed that if I got the nachos at Target, I couldn't make it through the store even for a quick shopping trip. The big D would strike. And did I listen to my body? No. Kept on eating it.

Eventually I was eating less and less of it and it got to the point where I was actually kind of repulsed by it. And now I know for sure. I can't have it. Not now anyway.

If you are going to re-introduce it, I would do it at home and just once to begin with. Then wait a week to try it again, assuming you get no reaction. Of course if there is a reaction do not have it again.

Then if you find that there is no reaction, have it once in a while. Don't overdo it like I did.

TomC Rookie

I was wondering this same about myself.

Last time I consumed some casein, I got small red itchy bumps on my arm for about an hour and then they went away. Does this kind of reaction mean I should stay away from casein forever or is it such a minor reaction that I shouldn't worry about it? In other words, is it doing some kind of damage to my body?

TeknoLen Rookie

Is your 34 enterolab casein score a recent test or from 6 years ago before you went GFCFSF? If a recent test, then I would wonder why my casein antibodies were still high after 6 years dairy free. I would also continue to avoid dairy, IMHO.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kitchenchemist Newbie

Is your 34 enterolab casein score a recent test or from 6 years ago before you went GFCFSF? If a recent test, then I would wonder why my casein antibodies were still high after 6 years dairy free. I would also continue to avoid dairy, IMHO.

I can't seem to get the Enterolab's website to load. :(

Last year my gastroenterologist did the blood test for Celiacs. It came back negative. I found out my grandmother had the same thing happen, but her doctor didn't stop at the blood test. She got scoped and had significant intestinal damage. Diagnosis: Celiacs. Her sister had been diagnosed a number of years prior. I cut gluten from my diet and I felt LOADS better. I had gotten to the point that I had one "normal" meal every four days. The days in between I felt horrid, bloated, and nauseous, and so only ate very small amounts. I realized that even gluten-free dairy triggered a gluten-like reaction (less severe). I cut all dairy out and found marked improvement. Potatoes trigger a gluten-like reaction, although I can tolerate potato flour/starch/sugar as long as it isn't in the top 3-5 ingredients. I also seem to have problems with avocados. They contain high levels of salycilates and caused the same horrid cramping that happened the one time I took aspirin. I'm fine with gluten-free oats, but have to watch how much corn I eat (more of a bloating issue than a full-blown gluten-like rxn). I'm HIGHLY sensitive. Even a small amount of cross-contamination can set me off. I've been gluten-free (sans accidental glutenation events) for over a year and dairy free for nearly one year. All of my three children exhibit gluten sensitivity in varying degrees.

I'd like to find out how much the tests run, as there doesn't seem to be any local doctor who specializes in Celiacs. My gastroenterologist told me I had IBS and I needed to eat more fiber. *sigh* I'd like to make sure I've eliminated all the foods I need to avoid and figure out if it really is the casein I have issues with. It probably is, but I'd like to make sure. I'd read that it was quite possible that gluten from grains crosses into cow's milk and that could be a culprit.

Has anyone w/milk issues tried dairy from grass-fed cows? Did it make a difference? Has anyone tried the A2 milk? Where is that sold in the USA?

Considering how sick I can become, I don't want to try it without having first checked for casein intolerance.

How can I get a hold of EnteroLab?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    3. - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    4. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,386
    • Most Online (within 30 mins)
      7,748

    TByrd
    Newest Member
    TByrd
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.