Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Upside To Celiac


fisharefriendsnotfood

Recommended Posts

fisharefriendsnotfood Apprentice

I've been thinking, and I realize that being Celiac means we are very aware about what we eat. Like, we know every ingredient of every food item that enters our mouths. Here's a short story:

Me and two of my really, really good friends were at Baskin Robbins for ice cream. I got mint chocolate chip in a cup, obviously (mmmm...), my other friend got the same in a cone, and the other friend got chocolate chip cookie dough in a cone. We get out ice cream, and my friend who I'll call J for the purpose of this story, offers me a lick of her chocolate chip cookie dough ice cream. (By the way, she knows very well that I'm Celiac.)

J: Want some?

Me: Um, no thanks.

Other friend: She can't eat that!

J: Uh, why not?

Other friend: She's allergic to wheat! (lol that's what they think Celiac is... my oh my)

J: So?

Other friend: So, she can't eat chocolate chip COOKIE DOUGH ice cream, you idiot!

J: Why not?

Me: What do you think cookie dough is made of???

J: Cookie dough has wheat in it?

Me & Other friend: Yes!!!

J: Oh. Who knew? Sorry.

Yes, my friend isn't too bright about things like that.

So I was thinking, I was the only ten year old kid who knew what maltodextrin and wheat protein is. No one else knows what they're putting into their bodies. They don't even care or have a clue! I think I'm very lucky to have all this knowledge. Plus, I find food and how the body, especially the digestive system, works now.

Thanks for reading this long story!

Jackie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

Jackie,

I read your story and have to tell you until the end, I thought the friends were my age. (30 something) I have conversations like that all the time. You are right when you say you are better educated because of your Celiac diagnoses.

Laura

fisharefriendsnotfood Apprentice
Jackie,

I read your story and have to tell you until the end, I thought the friends were my age. (30 something)  I have conversations like that all the time.  You are right when you say you are better educated because of your Celiac diagnoses.

Laura

<{POST_SNAPBACK}>

Oh, I'm not ten years old! I'm fourteen! Sorry about the confusion.

  • 2 weeks later...
Guest BellyTimber

I agree absolutely about this blessing

skoki-mom Explorer

I actually had a very well educated person say to me "pasta's got wheat in it?? :blink:

frenchiemama Collaborator

It's amazing how clueless some people are. I mean, even before I was diagnosed, I certainly knew that things like bread, pasta and cookie dough had wheat in them. But I'm constantly astounded by the number of people who don't seem to know anything about their food at all. What exactly do they think the stuff is made of??

PreOptMegs Explorer

If I had a dollar from every person who didn't know that "white flour" had wheat in it..............


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nettiebeads Apprentice
If I had a dollar from every person who didn't know that "white flour" had wheat in it..............

<{POST_SNAPBACK}>

This thread makes me laugh at all the times I've had to educate people about what has flour/gluten in it. My office is right off of the kitchen. Several ladies will go next door to the grocery store (we're in a strip mall) and come back with lots of goodies (?) Like cookie dough ice cream AND cookies! They'll offer me one, and I'll say no I can't have that, then they'll offer me the other! Hello!! cookie dough and cookies have exactly the same ingredients! or offer crackers or something else and always surprised that they contain wheat. I can't get mad or anything, they are being generous, even if I can't eat what's being offered.

Rachel--24 Collaborator
  Several ladies will go next door to the grocery store (we're in a strip mall) and come back with lots of goodies (?)  Like cookie dough ice cream AND cookies!  They'll offer me one, and I'll say no I can't have that, then they'll offer me the other!  Hello!! cookie dough and cookies have exactly the same ingredients!

<{POST_SNAPBACK}>

:lol::lol: That made me laugh!!!!

Funny thing is if I never had to learn about this diet I would probably be one of those people who says "pasta has wheat?" :ph34r:

I don't think I had ever read a food ingredient label in my life.

Nicolette Rookie

I had something similar to this just yesterday. My in-laws came to visit us and we live on an island on the south coast of the UK, so its a popular holiday place and for those of you who don't know, in England, fish and chips out of paper is quite a favourite here.

Well, my mother-in-law, a very educated lady and quite a cook, said "let's all have fish and chips for lunch"

I said, I can't, because of the fish being coated with flour before it's put in batter and fried.

So she said, "oh, well just have the chips then."

HELLO?

I then had to explain that the fish was fried in the same oil as the chips and i really didn't fancy doing that at all. Next, my father-in-law, also an educated man who ran his own business for many years said to me, "so, this coeliacs thing, I guess it's okay for you to have a little bit of gluten, isn't it? You know, like diabetics can have alittle bit of sugar"

I just stared for a moment. I just didn't know what to say. Eventually, I replied about it being totally different and tried to go into detail, but i could tell they just didn't get it.

It's quite sad really. <_<

Guest GITRDONE

I totally agree, people don't think before they open there mouths.

When people tell me that a ccrumb can't hurt you. I now reply that that crumb will make me vomit like you would if you had the flu and its not a 24 hour flu its more like a 10 day flu. If they don't get that then I start in on the deterating intestinal linning caused by that crumb.

Anyway along the same note. My neighbors grand kids came over (4 & 6) to my place with their parents. And the parents told the kids "that is where you Macdonold hamburgers come from and the milk for your cereal, while pointing at my steer. :lol::lol: Then they went to pig pen and told them this where bacon comes from. These poor city kids didn't have clue and the parents weren't much better.

I think we are genius's compared to most people when it comes to food. But I also know that I'm eating much better then most.

Susan

fisharefriendsnotfood Apprentice

Today I went to a friend's birthday party and when I told them about Celiac when they saw I wasn't eating pizza, one asked if I could have whole wheat bread.

WHOLE WHEAT!!!

Oh my goodness. But this isn't very fair, since she isn't the smartest.

-Jackie

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,207
    • Most Online (within 30 mins)
      7,748

    WAB19
    Newest Member
    WAB19
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.