Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Everyone Thinks I Have An Eating Disorder - Help!


Sunny1008

Recommended Posts

Sunny1008 Rookie

Hi everyone,

Please help, I don't know what to do. All of my family members think I have an eating disorder because I have lost so much weight (15 lbs., which is a lot for me). I am eating, but I am not putting on any weight.

I have not officially been diagnosed with celiac disease or gluten intolerance, but I have had every other test, and they were all negative. I am trying the gluten-free diet because I don't know what else to do. I got sick suddenly and dramatically four months ago and dropped a lot of weight quickly. All of the doctors tell me it's all in my head, and my family members want me to get help for an eating disorder.

I swear I do not have an eating disorder!! My digestive tract is totally inflamed, so I am eating what I can. But I'm not putting on any weight yet. I have only been on the diet two and a half weeks.

What should I do???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Hi everyone,

Please help, I don't know what to do. All of my family members think I have an eating disorder because I have lost so much weight (15 lbs., which is a lot for me). I am eating, but I am not putting on any weight.

I have not officially been diagnosed with celiac disease or gluten intolerance, but I have had every other test, and they were all negative. I am trying the gluten-free diet because I don't know what else to do. I got sick suddenly and dramatically four months ago and dropped a lot of weight quickly. All of the doctors tell me it's all in my head, and my family members want me to get help for an eating disorder.

I swear I do not have an eating disorder!! My digestive tract is totally inflamed, so I am eating what I can. But I'm not putting on any weight yet. I have only been on the diet two and a half weeks.

Ok. Stop.. Take a deep breath!

What tests have you had? Have you had any Celiac tests? Is there a reason they would think you have an eating disorder? Did you have one before? Do you worry about the size you wear? Excercise more than most people? Have you had your thyroid, vitamin ( iron, ferritin, D, Calcium, B12) tested? Have you had any illness lately other than this?

Edited to say: just looked back at some of your previous posts and they don't jump out as " E.D to me, right now .

Sunny1008 Rookie

Ok. Stop.. Take a deep breath!

What tests have you had? Have you had any Celiac tests? Is there a reason they would think you have an eating disorder? Did you have one before? Do you worry about the size you wear? Excercise more than most people? Have you had your thyroid, vitamin ( iron, ferritin, D, Calcium, B12) tested? Have you had any illness lately other than this?

Edited to say: just looked back at some of your previous posts and they don't jump out as " E.D to me, right now .

Hi kareng,

No, I have never had an eating disorder before or issues with eating. One day about four months ago I got sick to my stomach, and I never got better. No one else in my family has been sick. I have had numerous tests done: blood tests, stool cultures, thyroid tests, abdominal ultrasound, upper endoscopy (but no biopsies taken), and I have had the Celiac blood test - all negative.

However, lots of people (including my GI doctor) have told me that a person can still have Celiac disease and have a negative blood test. That is why I am trying the gluten-free diet.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,914
    • Most Online (within 30 mins)
      7,748

    ChrisMary
    Newest Member
    ChrisMary
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.