Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Everyone Thinks I Have An Eating Disorder - Help!


Sunny1008

Recommended Posts

Sunny1008 Rookie

Hi everyone,

Please help, I don't know what to do. All of my family members think I have an eating disorder because I have lost so much weight (15 lbs., which is a lot for me). I am eating, but I am not putting on any weight.

I have not officially been diagnosed with celiac disease or gluten intolerance, but I have had every other test, and they were all negative. I am trying the gluten-free diet because I don't know what else to do. I got sick suddenly and dramatically four months ago and dropped a lot of weight quickly. All of the doctors tell me it's all in my head, and my family members want me to get help for an eating disorder.

I swear I do not have an eating disorder!! My digestive tract is totally inflamed, so I am eating what I can. But I'm not putting on any weight yet. I have only been on the diet two and a half weeks.

What should I do???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Hi everyone,

Please help, I don't know what to do. All of my family members think I have an eating disorder because I have lost so much weight (15 lbs., which is a lot for me). I am eating, but I am not putting on any weight.

I have not officially been diagnosed with celiac disease or gluten intolerance, but I have had every other test, and they were all negative. I am trying the gluten-free diet because I don't know what else to do. I got sick suddenly and dramatically four months ago and dropped a lot of weight quickly. All of the doctors tell me it's all in my head, and my family members want me to get help for an eating disorder.

I swear I do not have an eating disorder!! My digestive tract is totally inflamed, so I am eating what I can. But I'm not putting on any weight yet. I have only been on the diet two and a half weeks.

Ok. Stop.. Take a deep breath!

What tests have you had? Have you had any Celiac tests? Is there a reason they would think you have an eating disorder? Did you have one before? Do you worry about the size you wear? Excercise more than most people? Have you had your thyroid, vitamin ( iron, ferritin, D, Calcium, B12) tested? Have you had any illness lately other than this?

Edited to say: just looked back at some of your previous posts and they don't jump out as " E.D to me, right now .

Sunny1008 Rookie

Ok. Stop.. Take a deep breath!

What tests have you had? Have you had any Celiac tests? Is there a reason they would think you have an eating disorder? Did you have one before? Do you worry about the size you wear? Excercise more than most people? Have you had your thyroid, vitamin ( iron, ferritin, D, Calcium, B12) tested? Have you had any illness lately other than this?

Edited to say: just looked back at some of your previous posts and they don't jump out as " E.D to me, right now .

Hi kareng,

No, I have never had an eating disorder before or issues with eating. One day about four months ago I got sick to my stomach, and I never got better. No one else in my family has been sick. I have had numerous tests done: blood tests, stool cultures, thyroid tests, abdominal ultrasound, upper endoscopy (but no biopsies taken), and I have had the Celiac blood test - all negative.

However, lots of people (including my GI doctor) have told me that a person can still have Celiac disease and have a negative blood test. That is why I am trying the gluten-free diet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Going for upper endoscopy today

    2. - Russ H replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Guinness, can you drink it?

    3. - Scott Adams replied to Borky's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Gluten food test strips

    4. - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Going for upper endoscopy today


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,269
    • Most Online (within 30 mins)
      7,748

    powergs03
    Newest Member
    powergs03
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Midwesteaglesfan
      Back home after the scope.  Dr said as soon as he got in there it was clear signs of celiacs.  Must be a decent amount of damage.  I don’t remember the post procedure conversation as the anesthesia was still wearing off but that’s what my wife says anyway.  Still the biopsy results to come back but pretty definitive and now I get to learn to live gluten free
    • Russ H
      There are several blogs where people test different beers using commercially available gluten testing kits. Guinness definitely tests positive for gluten. Something to be mindful of is that in some regions, foodstuffs containing less than 20 ppm gluten can be sold as 'gluten free'. However, due to the volume involved, a UK pint of beer at 19 ppm would contain more gluten than the generally accepted as safe daily limit of 10 mg. I have seen gluten-free beers testing at between "undetectable" and 5-10 ppm. I have also seen a report of a positive home test on Daura Damm, which is sold as gluten-free beer - the manufacturer did not respond to the tester's query.
    • Scott Adams
      Welcome to the forum! Do you mean this article, and if so, I don't think these are available yet.  
    • Scott Adams
      First of all, I want to wish you the very best of luck with your procedure today. It's completely understandable to feel a mix of apprehension and hope. Your proactiveness in researching and advocating for that endoscopy was incredibly smart; securing that formal diagnosis is crucial for both insurance and long-term health management. While it's natural to worry that those five gluten-free days could affect the results, your logic is spot-on—it's highly unlikely your intestines healed completely in that short time, and the fact that your joint pain and stomach issues have flared back up aggressively after reintroducing gluten is a very strong, and unfortunate, sign that the inflammation is indeed present and active. It's also very common for people to look back and connect dots, like your lifelong migraines, once a potential celiac diagnosis is on the table, as it's a systemic condition with many non-gastrointestinal symptoms. I truly hope this scope provides the clear answers you need to finally start on the right path to managing your health and finding lasting relief from the fatigue and pain. Safe travels for your drive, and here's hoping for a definitive answer and a brighter, healthier chapter ahead.
    • Scott Adams
      This article might be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.