Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eczema


ida pachinsky

Recommended Posts

ida pachinsky Newbie

Since 10 years before being diagnosed with Celiac, I itched, scrathced and bled. The dematologists, creamed, sympathized and finally biopssed. Exzema, common garden variety. It did get better with a gluten free diet, but it never made sense. Nothing did.

I would still have random attacks.

Stress is not part of my vocabulary. Sun light helped. But it was the idea that celiac wasn't fully cured has kept me wondering something else was going on, in my digestive tract and on my skin.

When I lost my bowels at the grocery store. How embarrassing, I decided, enough is enough. I kept a journal of everything I was eating. Everything. I broke it down into - sulfites, night shades, eggs and milk. I pulled them all out of the diet. I had done all this before, with no results, but this time it was different. Within two weeks, I saw a pattern. 14 hours after eating the food, my skin oozed. And i scratched. It was sufites. It wasn't potato, a member of the night shade families- like tomato and the hated eggplant. it was the sulfites on the frozen ptoto I brought home.

But what really seems to heal me. And as I say this, I do not sell anything. I bought some super B vitamins and had been taking them for 3 months. It was the combination of taking the vitamins and omitting the sulpher additive. In two weeks I have healing skin.

So I did some checking up on the internet and some other woman had done the same and even took the same vitamins and she is cured. Then while I was in England last week, someone gave me a flyer that said sulfites destroy B1- thiamin in the human body.

So here I have celiac, I don't get all my vitamins as food is not enriched. I now take the vitamins, stop the sufites and my skin is clear.

Am I missing something? I use the ame salt shaker, no more sun than usual, it rained for weeks here. Maybe a bit more humidity.

Even my gum disease looks better.

So this is not scientific. But I am healing. Anyone have similar results, maybe something else is curing me and I have missed it, but my GI tract is humming. This is to good not to share.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Razzle Dazzle Brazell Enthusiast

Since 10 years before being diagnosed with Celiac, I itched, scrathced and bled. The dematologists, creamed, sympathized and finally biopssed. Exzema, common garden variety. It did get better with a gluten free diet, but it never made sense. Nothing did.

I would still have random attacks.

Stress is not part of my vocabulary. Sun light helped. But it was the idea that celiac wasn't fully cured has kept me wondering something else was going on, in my digestive tract and on my skin.

When I lost my bowels at the grocery store. How embarrassing, I decided, enough is enough. I kept a journal of everything I was eating. Everything. I broke it down into - sulfites, night shades, eggs and milk. I pulled them all out of the diet. I had done all this before, with no results, but this time it was different. Within two weeks, I saw a pattern. 14 hours after eating the food, my skin oozed. And i scratched. It was sufites. It wasn't potato, a member of the night shade families- like tomato and the hated eggplant. it was the sulfites on the frozen ptoto I brought home.

But what really seems to heal me. And as I say this, I do not sell anything. I bought some super B vitamins and had been taking them for 3 months. It was the combination of taking the vitamins and omitting the sulpher additive. In two weeks I have healing skin.

So I did some checking up on the internet and some other woman had done the same and even took the same vitamins and she is cured. Then while I was in England last week, someone gave me a flyer that said sulfites destroy B1- thiamin in the human body.

So here I have celiac, I don't get all my vitamins as food is not enriched. I now take the vitamins, stop the sufites and my skin is clear.

Am I missing something? I use the ame salt shaker, no more sun than usual, it rained for weeks here. Maybe a bit more humidity.

Even my gum disease looks better.

So this is not scientific. But I am healing. Anyone have similar results, maybe something else is curing me and I have missed it, but my GI tract is humming. This is to good not to share.

That is interesting, thanks for sharing.

ciamarie Rookie

Thanks for sharing that, Ida! That's awesome that you've found relief.

I've discovered I need to avoid sulfites too; but at the moment I'm avoiding supplements, until I can get my diet figured out and stop having reactions. I'm getting pretty close, though! Which ones do you take? I have some called 'Just Vitamins' by Solgar that someone else mentioned on here, I'll get back on those soon I hope.

squirmingitch Veteran

I'm so happy for you Ida! And also glad that you shared that info. it may help many of us now or in the future.

ida pachinsky Newbie

Replying to the question- whick vitamins do I take.

I happened upon a Walmart store and got Nature Made Super B vitamins. Hold on to your hat, they have 6,000 percent Thiamin. Most of the other b vitamins are in the 100- 250 per cent range.

doing a little reading, it seems that sulfites destroy Thiamin (B1). And considering all of this stuff is water soluble, there is no danger. (I drink lots of water).

One oither thing about these particular vitamins- they are USP. In other words, they are tested for potency. Just because a label says something, doesn't always mean it is verifiable.(sp?).

I understand that Costco's vitamin brand- Kirkland is also USP. It is certainly not the price that makes them special.

I have been reading that a number of Celiac's have problems with Sulfites. Gluten has a large number of sulfer bonds (cysteine and methionine). There has to be some relationship. It maybe too, that I am malnourished. I find that very hard to beleive by my diet, but not hard to see if I have chronic malabsorption from celiac damage to the samll intestine.

I don't know if people can show before and after pictures here, but I am still healing up. I would hope by next week to have solid skin.

squirmingitch Veteran

Ida, you can certainly show before & after pictures! I would be very interested to see them & i'm sure others would benefit from them too.

Interesting about the sulfites. I am low salicylate (sal) for the dh & it appears to me that being low sal has the added benefit of being low sulfite.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.