Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Supplement Question


BRCoats

Recommended Posts

BRCoats Enthusiast

Hey all,

I know this is kind of a weird question, but here goes:

Is there a way to get supplement in your system without taking them orally? I am unable to tolerate any and every supplement I've ever tried. And I KNOW my diet is not adequate. So......would it have to be via an i.v.? Feeding tube inserted into small intestine?? Any other ideas that I'm not seeing?

I have also wondered if I should have a blood screen done to see where my nutrition levels are. Anybody ever do that?

Thanks in advance,

~Brenda


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
Hey all,

I know this is kind of a weird question, but here goes:

Is there a way to get supplement in your system without taking them orally? I am unable to tolerate any and every supplement I've ever tried. And I KNOW my diet is not adequate. So......would it have to be via an i.v.? Feeding tube inserted into small intestine?? Any other ideas that I'm not seeing?

I have also wondered if I should have a blood screen done to see where my nutrition levels are. Anybody ever do that?

Thanks in advance,

~Brenda

<{POST_SNAPBACK}>

Ask your doctor to do the blood screen, lots of us have it done and it can pick up deficencies in many important vitamins and minerals. Have you tried childrens gluten-free chewable vitamins? They generally contain a bit of sugar to make them more palatable as long as your not sucrose intolerant they might work, also try liquid if you haven't already. Sublingual B12 bypasses the digestive track by being absorbed by the mucus membranes under the tongue, if you have neuro symptoms like parastheias (pins and needles in hands or feet) that might help. My celiac son does not like vitamins so he drinks a carnation instant breakfast (chocolate is safe and vanilla but avoid the malt) that provides a lot of vitamins and minerals. gluten-free nutrition bars might help too, they are intended as a meal replacement usually but we have them as a snack or treat. Also bear in mind that you are probally doing better with your diet than you think, don't freak if no vitamin works for you, just try to get more 'good' foods. This from someone who has developed almost an addiction to Lays stacks, glory be no cross contamination with these!

BRCoats Enthusiast

Hmmm....I've tried liquid, but not the children's. I can have sucrose. So maybe I'll give them a try. I had actually thought about that earlier today.....

I've not tried Carnation Instant Breakfasts, but I've tried Ensure. That stuff is like poison to me....yuck, yuck, yuck. I get so sick with it. I think maybe it's all the stuff they add in there....chemicals and such. I'll look at the Carnation ingredients and see what it says.

I like Lay's stacks too. They don't agree with me....but I can eat just a few at a time. :P

Oh, and I will ask for the blood screen.

Thanks so much!!!

~Brenda

anerissara Enthusiast

The only vitamins I can stomach are Gummi Vites, they are little gummy bears and don't have any viamin taste at all. Other types sit in my stomach like a ton of bricks, these have been much better.

BRCoats Enthusiast
The only vitamins I can stomach are Gummi Vites, they are little gummy bears and don't have any viamin taste at all.  Other types sit in my stomach like a ton of bricks, these have been much better.

<{POST_SNAPBACK}>

Can you tell me where you purchase them? I've never seen them. <_<

~Brenda

Kasey'sMom Enthusiast

I've been trying to find a liquid gluten-free vitmain but I haven't had any luck yet.

I just bought some Gummi Vites last week and they taste so yummy!! I got mine at Wal-mart but I've also seen them at Walgreens and CVS.

My dd takes Yummi Bears for Hero Nutritionals and they are really good too. I have to get them at the health food store. She begs me for her bears everyday!! :)

BRCoats Enthusiast
I've been trying to find a liquid gluten-free vitmain but I haven't had any luck yet.

I just bought some Gummi Vites last week and they taste so yummy!! I got mine at Wal-mart but I've also seen them at Walgreens and CVS.

My dd takes Yummi Bears for Hero Nutritionals and they are really good too. I have to get them at the health food store. She begs me for her bears everyday!! :)

<{POST_SNAPBACK}>

Great!!! I will check next time I'm at WM. I wanna gummi bear!!!! :lol:

~Brenda


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chronic Newbie

This is so interesting that someone else cannot take supplements. My body tolerates nothing and yes I did try intraveineous (sp) vitamins treatments for three months. For me eating healthy works best. Chronic

BRCoats Enthusiast
This is so interesting that someone else cannot take supplements.  My body tolerates nothing and yes I did try intraveineous (sp) vitamins treatments for three months.  For me eating healthy works best.  Chronic

<{POST_SNAPBACK}>

Well, that's kinda my point though. I'm not able to eat healthy, because I can't tolerate the fruits and veggies. Hence the possible need for some type of supplemental nutrients. :)

~Brenda

anerissara Enthusiast

I couldn't take suppliments for years because they just didn't sit well. About 2 months after starting on the gummi vites I have really started to feel better energy-wise, and my body seems to be recovering in a lot of ways.

I found the gummi vites at Costco in a huge container, the Calcium suppliments are terrific too!

4getgluten Rookie

I tried so many different gluten-free vitamins, and they all made me sick. The only thing I've been able to tolerate so far is Boost - avoid the choc malt. I realize it's probably very similar to Ensure, so it may not work for you. But, I've tried both products, and I found Boost is a lot easier on my stomach. After I started on the Boost every day, I began to feel so much better. (I haven't tried the gummi vites yet - they sound good).

BRCoats Enthusiast
I tried so many different gluten-free vitamins, and they all made me sick. The only thing I've been able to tolerate so far is Boost - avoid the choc malt.  I realize it's probably very similar to Ensure, so it may not work for you.  But, I've tried both products, and I found Boost is a lot easier on my stomach.  After I started on the Boost every day, I began to feel so much better. (I haven't tried the gummi vites yet - they sound good).

<{POST_SNAPBACK}>

I didn't buy the gummy vites, but I got some called Yummi Bears today at my HFS. They're really yummy and seem to agree with me. The only problem is that they don't have much calcium/magnesium. Those are two that I really need, so I guess I'll try and get that some other way. Anybody know if the Gummy Vites has the cal/mag?

I'll sure look at the Boost and see what the ingredients are. Thanks for sharing that. :)

~Brenda

Kasey'sMom Enthusiast

Brenda,

Looks like gummy vites have a product called "L'il Critters Calcium Taffy Chews." I just did a search and found it on drugstore.com. The information doesn't say gluten free so you might want to check. Also I noticed that it contains milk and soy.

Yummi Bears are what I give my dd and she really likes them as well. They have a veg. calcium/mag. bear and a seperate vitamin c bear. The veg. calcium/mag. bears have a much softer texture but she likes them. :)

anerissara Enthusiast

Gummi Vites have a calcium product that's great, they've got a sort of sour sugar coating on top. I emailed the company that makes them and they said that all their products are gluten-free, however I don't know if they meant all their *bear* supplements or all of them in general, including the taffy chews.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

    2. - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    3. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    4. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    5. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748

    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.