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Was This Glutened?


1974girl

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1974girl Enthusiast

Not getting any reponses on the "symtoms" board so I will ask over here. My dd doesn't have intestinal symptoms at all. But last night, she left youth group at church early saying she felt like she was going to throw up. We left and she cried for 15 min. with it and never threw up or went to the bathroom. Then it went away as fast as it came on. She was perfectly fine after that and all night. This doesn't sound like most of your glutened symptoms. THey usually are bad and last longer than 15 min. We had to eat away from home for lunch and dinner but she took her entire meal with her. She didn't eat any other food. Was this gluten or a childhood tummy ache, gas? Just wondering if she is starting to have symptoms. She goes back to the doctor Tuesday so I need to know whether to mention this or is it not consistant at all with glutening!


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Razzle Dazzle Brazell Enthusiast

Not getting any reponses on the "symtoms" board so I will ask over here. My dd doesn't have intestinal symptoms at all. But last night, she left youth group at church early saying she felt like she was going to throw up. We left and she cried for 15 min. with it and never threw up or went to the bathroom. Then it went away as fast as it came on. She was perfectly fine after that and all night. This doesn't sound like most of your glutened symptoms. THey usually are bad and last longer than 15 min. We had to eat away from home for lunch and dinner but she took her entire meal with her. She didn't eat any other food. Was this gluten or a childhood tummy ache, gas? Just wondering if she is starting to have symptoms. She goes back to the doctor Tuesday so I need to know whether to mention this or is it not consistant at all with glutening!

Honestly and in my opinion, it doesn't matter how gluten affect anyone else. Everybody is different. However I have acute symptoms after I eat gluten, nausea and drowsiness that goes away quickly but I will still be tired and then the morning after is usually bad again. I stay bloated for days and almost feel like I have moments when I react to it again and again until its out of my system. I think if it concerns you, mention it. A doctor won't be able to decipher without all the possibilities on the table. I saw that you said she ate her own meals. Did she take her own silverware? Could cross contamination be an issue in your kitchen?

1974girl Enthusiast

She did take her own silverware but she drank out of the cup at the restaurant without a straw. I only ordered her a drink. That's all I can think of. But she was literally dancing outside on the porch about 25 minutes after it started. It was just weird. I do have a gluten dd (9) in the house becuase they are retesting her this week to see if she has celiac also. So I had to keep her on gluten. But we are very careful and for 6 months so good ....until yesterday. I guess I could drive myself crazy with this one.

Razzle Dazzle Brazell Enthusiast

She did take her own silverware but she drank out of the cup at the restaurant without a straw. I only ordered her a drink. That's all I can think of. But she was literally dancing outside on the porch about 25 minutes after it started. It was just weird. I do have a gluten dd (9) in the house becuase they are retesting her this week to see if she has celiac also. So I had to keep her on gluten. But we are very careful and for 6 months so good ....until yesterday. I guess I could drive myself crazy with this one.

Yeah that's a tough one but typical stomach bugs don't come and go that fast. I also jabent experienced gas that caused extreme nausea either.

Bubba's Mom Enthusiast

Not getting any reponses on the "symtoms" board so I will ask over here. My dd doesn't have intestinal symptoms at all. But last night, she left youth group at church early saying she felt like she was going to throw up. We left and she cried for 15 min. with it and never threw up or went to the bathroom. Then it went away as fast as it came on. She was perfectly fine after that and all night. This doesn't sound like most of your glutened symptoms. THey usually are bad and last longer than 15 min. We had to eat away from home for lunch and dinner but she took her entire meal with her. She didn't eat any other food. Was this gluten or a childhood tummy ache, gas? Just wondering if she is starting to have symptoms. She goes back to the doctor Tuesday so I need to know whether to mention this or is it not consistant at all with glutening!

Could maybe have been her gallbladder acting up? This can come on suddenly and pass suddenly. Can cause nausea and gas type pains. Just be aware of watching for reactions to greasy or fatty foods.

Many Celiacs have gallbladder issues. They seem to go hand in hand? I was told I needed mine removed, but I'm hanging onto it in the hopes it will heal now that I'm gluten-free. It still acts up though. :(

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    • JudyLou
    • knitty kitty
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    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
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