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Was This Glutened?


1974girl

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1974girl Enthusiast

Not getting any reponses on the "symtoms" board so I will ask over here. My dd doesn't have intestinal symptoms at all. But last night, she left youth group at church early saying she felt like she was going to throw up. We left and she cried for 15 min. with it and never threw up or went to the bathroom. Then it went away as fast as it came on. She was perfectly fine after that and all night. This doesn't sound like most of your glutened symptoms. THey usually are bad and last longer than 15 min. We had to eat away from home for lunch and dinner but she took her entire meal with her. She didn't eat any other food. Was this gluten or a childhood tummy ache, gas? Just wondering if she is starting to have symptoms. She goes back to the doctor Tuesday so I need to know whether to mention this or is it not consistant at all with glutening!


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Razzle Dazzle Brazell Enthusiast

Not getting any reponses on the "symtoms" board so I will ask over here. My dd doesn't have intestinal symptoms at all. But last night, she left youth group at church early saying she felt like she was going to throw up. We left and she cried for 15 min. with it and never threw up or went to the bathroom. Then it went away as fast as it came on. She was perfectly fine after that and all night. This doesn't sound like most of your glutened symptoms. THey usually are bad and last longer than 15 min. We had to eat away from home for lunch and dinner but she took her entire meal with her. She didn't eat any other food. Was this gluten or a childhood tummy ache, gas? Just wondering if she is starting to have symptoms. She goes back to the doctor Tuesday so I need to know whether to mention this or is it not consistant at all with glutening!

Honestly and in my opinion, it doesn't matter how gluten affect anyone else. Everybody is different. However I have acute symptoms after I eat gluten, nausea and drowsiness that goes away quickly but I will still be tired and then the morning after is usually bad again. I stay bloated for days and almost feel like I have moments when I react to it again and again until its out of my system. I think if it concerns you, mention it. A doctor won't be able to decipher without all the possibilities on the table. I saw that you said she ate her own meals. Did she take her own silverware? Could cross contamination be an issue in your kitchen?

1974girl Enthusiast

She did take her own silverware but she drank out of the cup at the restaurant without a straw. I only ordered her a drink. That's all I can think of. But she was literally dancing outside on the porch about 25 minutes after it started. It was just weird. I do have a gluten dd (9) in the house becuase they are retesting her this week to see if she has celiac also. So I had to keep her on gluten. But we are very careful and for 6 months so good ....until yesterday. I guess I could drive myself crazy with this one.

Razzle Dazzle Brazell Enthusiast

She did take her own silverware but she drank out of the cup at the restaurant without a straw. I only ordered her a drink. That's all I can think of. But she was literally dancing outside on the porch about 25 minutes after it started. It was just weird. I do have a gluten dd (9) in the house becuase they are retesting her this week to see if she has celiac also. So I had to keep her on gluten. But we are very careful and for 6 months so good ....until yesterday. I guess I could drive myself crazy with this one.

Yeah that's a tough one but typical stomach bugs don't come and go that fast. I also jabent experienced gas that caused extreme nausea either.

Bubba's Mom Enthusiast

Not getting any reponses on the "symtoms" board so I will ask over here. My dd doesn't have intestinal symptoms at all. But last night, she left youth group at church early saying she felt like she was going to throw up. We left and she cried for 15 min. with it and never threw up or went to the bathroom. Then it went away as fast as it came on. She was perfectly fine after that and all night. This doesn't sound like most of your glutened symptoms. THey usually are bad and last longer than 15 min. We had to eat away from home for lunch and dinner but she took her entire meal with her. She didn't eat any other food. Was this gluten or a childhood tummy ache, gas? Just wondering if she is starting to have symptoms. She goes back to the doctor Tuesday so I need to know whether to mention this or is it not consistant at all with glutening!

Could maybe have been her gallbladder acting up? This can come on suddenly and pass suddenly. Can cause nausea and gas type pains. Just be aware of watching for reactions to greasy or fatty foods.

Many Celiacs have gallbladder issues. They seem to go hand in hand? I was told I needed mine removed, but I'm hanging onto it in the hopes it will heal now that I'm gluten-free. It still acts up though. :(

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    • knitty kitty
      Hello, @Aretaeus Cappadocia, My favorite source of B12 is liver.  😺 I react to nutritional yeast the same way as if I were glutened.  Casein, a protein in dairy, and nutritional yeast have protein segments that match certain antigenic protein segments in gluten.  The proteins in rice, corn (maize), and chicken meat have them as well.   Some people with Celiac might tolerate them without a problem, but I need to avoid them.  For those still having symptoms, cutting these out of our diet may improve symptoms. 
    • trents
      Welcome to the celiac.com community, @ainsleydale1700! First, it is very unlikely, given your genetic results, that you have celiac disease. But it is not a slam dunk. Second, there are some other reasons besides having celiac disease that your blood antibody testing was positive. There are some diseases, some medications and even (for some people) some foods (dairy, the protein "casein") that can cause elevated celiac blood antibody test scores. Usually, the other causes don't produce marginally high test scores and not super high ones. Having said that, by far, the most common reason for elevated tTG-IGA celiac antibody test scores (this is the most common test ordered by doctors when checking for celiac disease) is celiac disease itself. Please post back and list all celiac blood antibody tests that were done with their scores and with their reference ranges. Without the reference ranges for negative vs. positive we can't tell much because they vary from lab to lab. Third, and this is an terrible bum steer by your doc, for the biopsy results to be valid, you need to have been eating generous amounts of gluten up to the day of the procedure for several weeks.  Having said all that, it sounds most likely that you have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. The two share many common symptoms but NCGS is not autoimmune in nature and doesn't damage the lining of the small bowel. What symptoms do you have? Do you have any blood work that is out of norm like iron deficiency that would suggest celiac disease?
    • ainsleydale1700
    • Scott Adams
      HLA testing can definitely be confusing. Classic celiac disease risk is most strongly associated with having the full HLA-DQ2 or HLA-DQ8 heterodimer, which requires specific DQA1 and DQB1 genes working together. Your report shows you are negative for the common DQ2 and DQ8 combinations, but positive for DQB102, which is one component of the DQ2 pair. On its own, DQB102 does not usually form the full DQ2 molecule most strongly linked to celiac disease, which is likely why your doctor said you do not carry the typical “celiac genes.” However, genetics are only part of the picture. A negative gene test makes celiac disease much less likely, but not absolutely impossible in rare cases. More importantly, both antibody testing and biopsy are only reliable when someone is actively eating gluten; being gluten-free for four years before testing can cause both bloodwork and intestinal biopsy to appear falsely negative. Given your positive antibodies and ongoing symptoms, it may be reasonable to seek clarification from a gastroenterologist experienced in celiac disease about whether proper gluten exposure was done before testing and whether additional evaluation is needed.
    • Aretaeus Cappadocia
      I agree with your post and have had similar experiences. I'm commenting to add the suggestion of also using nutritional yeast as a supplement. It's a rich source of B vitamins and other nutrients, and some brands are further supplemented with additional B12. I sprinkle a modest amount in a variety of savory recipes.
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