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Was This Glutened?


1974girl

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1974girl Enthusiast

Not getting any reponses on the "symtoms" board so I will ask over here. My dd doesn't have intestinal symptoms at all. But last night, she left youth group at church early saying she felt like she was going to throw up. We left and she cried for 15 min. with it and never threw up or went to the bathroom. Then it went away as fast as it came on. She was perfectly fine after that and all night. This doesn't sound like most of your glutened symptoms. THey usually are bad and last longer than 15 min. We had to eat away from home for lunch and dinner but she took her entire meal with her. She didn't eat any other food. Was this gluten or a childhood tummy ache, gas? Just wondering if she is starting to have symptoms. She goes back to the doctor Tuesday so I need to know whether to mention this or is it not consistant at all with glutening!


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Razzle Dazzle Brazell Enthusiast

Not getting any reponses on the "symtoms" board so I will ask over here. My dd doesn't have intestinal symptoms at all. But last night, she left youth group at church early saying she felt like she was going to throw up. We left and she cried for 15 min. with it and never threw up or went to the bathroom. Then it went away as fast as it came on. She was perfectly fine after that and all night. This doesn't sound like most of your glutened symptoms. THey usually are bad and last longer than 15 min. We had to eat away from home for lunch and dinner but she took her entire meal with her. She didn't eat any other food. Was this gluten or a childhood tummy ache, gas? Just wondering if she is starting to have symptoms. She goes back to the doctor Tuesday so I need to know whether to mention this or is it not consistant at all with glutening!

Honestly and in my opinion, it doesn't matter how gluten affect anyone else. Everybody is different. However I have acute symptoms after I eat gluten, nausea and drowsiness that goes away quickly but I will still be tired and then the morning after is usually bad again. I stay bloated for days and almost feel like I have moments when I react to it again and again until its out of my system. I think if it concerns you, mention it. A doctor won't be able to decipher without all the possibilities on the table. I saw that you said she ate her own meals. Did she take her own silverware? Could cross contamination be an issue in your kitchen?

1974girl Enthusiast

She did take her own silverware but she drank out of the cup at the restaurant without a straw. I only ordered her a drink. That's all I can think of. But she was literally dancing outside on the porch about 25 minutes after it started. It was just weird. I do have a gluten dd (9) in the house becuase they are retesting her this week to see if she has celiac also. So I had to keep her on gluten. But we are very careful and for 6 months so good ....until yesterday. I guess I could drive myself crazy with this one.

Razzle Dazzle Brazell Enthusiast

She did take her own silverware but she drank out of the cup at the restaurant without a straw. I only ordered her a drink. That's all I can think of. But she was literally dancing outside on the porch about 25 minutes after it started. It was just weird. I do have a gluten dd (9) in the house becuase they are retesting her this week to see if she has celiac also. So I had to keep her on gluten. But we are very careful and for 6 months so good ....until yesterday. I guess I could drive myself crazy with this one.

Yeah that's a tough one but typical stomach bugs don't come and go that fast. I also jabent experienced gas that caused extreme nausea either.

Bubba's Mom Enthusiast

Not getting any reponses on the "symtoms" board so I will ask over here. My dd doesn't have intestinal symptoms at all. But last night, she left youth group at church early saying she felt like she was going to throw up. We left and she cried for 15 min. with it and never threw up or went to the bathroom. Then it went away as fast as it came on. She was perfectly fine after that and all night. This doesn't sound like most of your glutened symptoms. THey usually are bad and last longer than 15 min. We had to eat away from home for lunch and dinner but she took her entire meal with her. She didn't eat any other food. Was this gluten or a childhood tummy ache, gas? Just wondering if she is starting to have symptoms. She goes back to the doctor Tuesday so I need to know whether to mention this or is it not consistant at all with glutening!

Could maybe have been her gallbladder acting up? This can come on suddenly and pass suddenly. Can cause nausea and gas type pains. Just be aware of watching for reactions to greasy or fatty foods.

Many Celiacs have gallbladder issues. They seem to go hand in hand? I was told I needed mine removed, but I'm hanging onto it in the hopes it will heal now that I'm gluten-free. It still acts up though. :(

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      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
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    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    • knitty kitty
      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
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